Re: ginny...has a sick child...others with children read her post!

[Guest guest]

Thank you so much for your reply. It's a really lonely feeling when doctors and

friends don't understand. It's crazy-making, these symptoms. I ache for him.

Our rheumatologist is a pediatric specialist. We're in Portland, Oregon.

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> My God thats awful!

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> Have you seen a pediatric rheumatologist? You must!

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> It really does sound to me like Stills. I myself had horrible joint pain

without it looking like much to the docs...after my fevers lasted more than 2

weeks I was put in a hospital. (age 16 now 54) " Gee you do have something

" the docs would say A rheumatologist finally diagnosed me.

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> WHere do you live?

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> You will get support here. There are sights too for children with arthritis.

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> My granpa had something like this as a baby and it went away. I do hope he

gets better.. But this is a long time. I am sad for you

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> email me on the list or privately I hope we can help you.

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> Where do you live?

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> Hugs

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> Liz

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