Re: Re: ginny...has a sick child...others with children read her post!

[Guest guest]

I will email you offline. I live in Portland, Oregon and run a support group

for the children and families with JRA in Oregon. My daughter has had Still's

for eleven years. (n, 21, systemic jra)

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> Thank you so much for your reply. It's a really lonely feeling when doctors

and friends don't understand. It's crazy-making, these symptoms. I ache for him.

Our rheumatologist is a pediatric specialist. We're in Portland, Oregon.

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> > My God thats awful!

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> > Have you seen a pediatric rheumatologist? You must!

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> > It really does sound to me like Stills. I myself had horrible joint pain

without it looking like much to the docs...after my fevers lasted more than 2

weeks I was put in a hospital. (age 16 now 54) " Gee you do have something " the

docs would say A rheumatologist finally diagnosed me.

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> > WHere do you live?

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> > You will get support here. There are sights too for children with arthritis.

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> > My granpa had something like this as a baby and it went away. I do hope he

gets better.. But this is a long time. I am sad for you

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> > email me on the list or privately I hope we can help you.

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> > Where do you live?

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> > Hugs

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> > Liz

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