Re: getting help

[Guest guest]

Imogene,

Another place to look is churches. Call the church office and ask

if they have anyone who could use the work. Quite often just a few

tries will land results.

Gurganus

>

>

> Hi, getting the help I need has been a loosing battle so far,

Vivian. I have

> called Elder Affairs, and have talked to them four times, and the

girl

> promised to call me back on Wed. Well, Wednesday and Thursday have

gone by and she

> hasn't called yet. I will call first thing in the morning.

> Imogene

>

[Guest guest]

Thank you . I have thought of that. Some times it is more comfortable

to have a stranger to come in and give a bath, than a friend from church. I

will get help. I am working on it.

Imogene

In a message dated 11/17/2006 10:48:53 PM Central Standard Time,

linda_smith_gurganus@... writes:

Imogene,

Another place to look is churches. Call the church office and ask

if they have anyone who could use the work. Quite often just a few

tries will land results.

Gurganus

[Guest guest]

If he has a neurologist or even a primary care doctor,

you might start with them for information. I don't

know what state you are in, but most all places have

some kind of an Area on Aging place (ours is Jayhawk

AoA here in Kansas). They can give you lots of

information on caregivers, who, what they cost, etc.

If your finances are such that you need help to get on

Medicaid, they will advise you where to go. Generally

the local SRS handles those applications, and it is a

big headache to get all the paperwork done, but in the

long run, it will help you. Especially if he has to

go to a NH eventually and your finances are such that

you can't afford it. If you check into it, you can't

any more than be told " no. " Whatever you do, get some

help. From experience, I tried to do it alone,

thinking I could, but it was extremely draining. In

the end, your health will suffer. Do you have any

family nearby, and if so, are they willing to help?

Even short breaks are helpful, although I always knew

what I was going back to, so it kind of spoiled any

time away, of which I had very little.

It's such an awful disease, and so many people feel so

alone with it. So, do what you can to get some help

before you get down yourself.

June, husband Darrell dx'd AD in 1999; probably dx of

LBD 2006; died Nov. 2006 after two serious infections

and pneumonia.

--- memaiza wrote:

> I'm sure it's different for everyone,but how do you

> know when and

> where to go for help.My husband has been diagnosed

> with dementia and

> parkinson's with lewy bodies.It's been 2 yrs

> diagnosed and probably 4

> yrs before being diagnosed.I don't want to wimp out

> on his care but

> sometimes it's too much.Thanks for any help and

> words of wisdom.

>

>

________________________________________________________________________________\

____

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[Guest guest]

MEME,

Get as much help as you can from as many places as people as you can as soon as

you can!!!!

I used day care and it helped. Many say their LO won't go, but I was surprised

when I took Mom and she got interested in the activities, she did go. It is a

very social outlet. Depending on your religious outlook, there are Jewish and

Catholic day care and you will find help there if they can't afford it. Then I

went to the Senior Center and got the bus to pick her up. The first few times I

took her and the first time, I stayed with her so we could see what it was like.

Just do what ever you have to do get care and please don't try and do it all

alone. It is way to difficult. Our Alzheimers group had Vols who came once a

week so I could get away for 3-4 hours. Use anything!

Hope this helps. Glad you are here. Would love to know your name?

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Getting Help

If he has a neurologist or even a primary care doctor,

you might start with them for information. I don't

know what state you are in, but most all places have

some kind of an Area on Aging place (ours is Jayhawk

AoA here in Kansas). They can give you lots of

information on caregivers, who, what they cost, etc.

If your finances are such that you need help to get on

Medicaid, they will advise you where to go. Generally

the local SRS handles those applications, and it is a

big headache to get all the paperwork done, but in the

long run, it will help you. Especially if he has to

go to a NH eventually and your finances are such that

you can't afford it. If you check into it, you can't

any more than be told " no. " Whatever you do, get some

help. From experience, I tried to do it alone,

thinking I could, but it was extremely draining. In

the end, your health will suffer. Do you have any

family nearby, and if so, are they willing to help?

Even short breaks are helpful, although I always knew

what I was going back to, so it kind of spoiled any

time away, of which I had very little.

It's such an awful disease, and so many people feel so

alone with it. So, do what you can to get some help

before you get down yourself.

June, husband Darrell dx'd AD in 1999; probably dx of

LBD 2006; died Nov. 2006 after two serious infections

and pneumonia.

--- memaiza wrote:

> I'm sure it's different for everyone,but how do you

> know when and

> where to go for help.My husband has been diagnosed

> with dementia and

> parkinson's with lewy bodies.It's been 2 yrs

> diagnosed and probably 4

> yrs before being diagnosed.I don't want to wimp out

> on his care but

> sometimes it's too much.Thanks for any help and

> words of wisdom.

>

>

________________________________________________________________________________\

____

Need Mail bonding?

Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

http://answers.yahoo.com/dir/?link=list & sid=396546091

[Guest guest]

hi,,

also call your local elders affairs office and council of aging there are many

federally funded programs taht you may qualify for. even though dad was a

retired naval officer and had a substantial income although my hubby and i were

his 24 hours cgs. i called council of aging and elders affairs office, and daddy

qualified for 72$ a month for ALL of the following, 24hrs a week cg, box of

adult diapers, large container cornstarch baby powder, special mediplex gauze

pads for a wound he had from surgery, a box of bedpads, neosporin, container of

huggies with 3 refills, room deodorizer, periwash for cleaner dried on poop,

gosh i cant rememvber what else, but we got 3 huge boxes everymonth plus 24 hrs

a week of cg of the hours of MY choice. so call around dont be afraid to ask a

caseworker will need to spek with you and evaluate teh situation but here they

were super nice. since daddy was supposed to come home we were on a list for

having a free handicapped ramp put in too, same program. all i did was make

phone calls, oh yeah, taht also included 30 days of one frozen meal on wheels

dinner. by the way th frozen dinners are microwaveable and much better than the

hot foods delievered too. hugs, sharon m

---- Donna Mido wrote:

MEME,

Get as much help as you can from as many places as people as you can as soon as

you can!!!!

I used day care and it helped. Many say their LO won't go, but I was surprised

when I took Mom and she got interested in the activities, she did go. It is a

very social outlet. Depending on your religious outlook, there are Jewish and

Catholic day care and you will find help there if they can't afford it. Then I

went to the Senior Center and got the bus to pick her up. The first few times I

took her and the first time, I stayed with her so we could see what it was like.

Just do what ever you have to do get care and please don't try and do it all

alone. It is way to difficult. Our Alzheimers group had Vols who came once a

week so I could get away for 3-4 hours. Use anything!

Hope this helps. Glad you are here. Would love to know your name?

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Getting Help

If he has a neurologist or even a primary care doctor,

you might start with them for information. I don't

know what state you are in, but most all places have

some kind of an Area on Aging place (ours is Jayhawk

AoA here in Kansas). They can give you lots of

information on caregivers, who, what they cost, etc.

If your finances are such that you need help to get on

Medicaid, they will advise you where to go. Generally

the local SRS handles those applications, and it is a

big headache to get all the paperwork done, but in the

long run, it will help you. Especially if he has to

go to a NH eventually and your finances are such that

you can't afford it. If you check into it, you can't

any more than be told " no. " Whatever you do, get some

help. From experience, I tried to do it alone,

thinking I could, but it was extremely draining. In

the end, your health will suffer. Do you have any

family nearby, and if so, are they willing to help?

Even short breaks are helpful, although I always knew

what I was going back to, so it kind of spoiled any

time away, of which I had very little.

It's such an awful disease, and so many people feel so

alone with it. So, do what you can to get some help

before you get down yourself.

June, husband Darrell dx'd AD in 1999; probably dx of

LBD 2006; died Nov. 2006 after two serious infections

and pneumonia.

--- memaiza wrote:

> I'm sure it's different for everyone,but how do you

> know when and

> where to go for help.My husband has been diagnosed

> with dementia and

> parkinson's with lewy bodies.It's been 2 yrs

> diagnosed and probably 4

> yrs before being diagnosed.I don't want to wimp out

> on his care but

> sometimes it's too much.Thanks for any help and

> words of wisdom.

>

>

________________________________________________________________________________\

____

Need Mail bonding?

Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

http://answers.yahoo.com/dir/?link=list & sid=396546091

[Guest guest]

never be afraid to ask for help, the lbd roller coaster has a tough ride, dad

ws on hospice for one year before he died. it is never too early to ask, if you

dont qualify nw at least you will know when you might, another suggestion, if

yu have a local nursing school, many students may be interestedi n making extra

money caregiving. we were lucky after several miserable attempts of personal

recommendations we foudn sissy and she still lives iwth us now, even though dad

has been gone onver a year now, she is like a daughter to me, she took wonderful

care of dad nad helps me alot with my health issues. hugs, s.

---- memaiza wrote:

I'm sure it's different for everyone,but how do you know when and

where to go for help.My husband has been diagnosed with dementia and

parkinson's with lewy bodies.It's been 2 yrs diagnosed and probably 4

yrs before being diagnosed.I don't want to wimp out on his care but

sometimes it's too much.Thanks for any help and words of wisdom.

--

I am daugher of Leonard, diagnosed May 2004, probably had lbd since 1993,.Dad

had a serious fall in 7/05 causing him to hav hip surgery .After that he

developed aspiration pneumonia 7/05 with pulmonary embolyis, which he almost

died from. He had a 2nd bout of aspiration pneumonia and uti 8/05. He died when

his blood pressure fluctuations started dropping without coming back up on

9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

[Guest guest]

It's different for everyone -- when it's time to get help and what type

of help is needed. Knowledge is key though, so it's never too early to

look into different types of help. Be sure to go into our Links section:

http://health.groups.yahoo.com/group/LBDcaregivers/links

Go into the folder marked:

Caregiver Support

Other chat rooms, other message boards, advice

Where you'll find lots of links that will help in assessing your needs.

Go into the folder marked:

Nursing Home / Long Term Care Search

A list of sites that may help in one of your most difficult decisions.

Where you'll find information that will help you decided what type of

care your LO needs.

Go into the folder marked:

Planning (Directory of Services)

Online directory of a variety of resources. A link section for the

links section.

TONS of info to help you in the different types of resources that is

out there.

Go into the folder marked:

End of Life Issues

Decisions for loved ones in the final stages of LBD

This section helps you make life's most difficult choices...

Also go into the Files section:

http://health.groups.yahoo.com/group/LBDcaregivers/files/

There's a document to read entitled:

The Business of Dementia.doc

The 'legal' things you need to know about

and a PDF file entitled:

hospcie_1_.pdf

List of Hospice Criteria

Our first and gut reaction when we here the word " Hospice " is a

negative feeling... But shift the way you think of the word to what it

really is: HELP in your situation. I never would have thought my mother

was eligible - but she was. And the Hospice team were God send. My

mother was in a NH so what the team did for our situation is basically

tons of one-on-one visits -- which made mom become the best she

personally could become. The family benefitted from this with tons of

miraculous visits where we LAUGHED during every visit. It was awesome

to spend that time with her - and those one-on-one visits from the team

(social worker, chaplain, visiting nurse) did this for us.

; loving daughter of Maureen of Boston, MA; dx'd with LBD in

2/2006; fell victim to rapid decline from Risperidone; Was successful

on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept.

30th, 2006.

Visit the LBDCaregivers board on the web:

http://groups.yahoo.com/group/LBDcaregivers/