The doctor wants me to go to the ER to be evaluated but...

December 2, 2010

I called the neuro and told them of my worsening symptoms (the 4th kind of

headache - the one that is getting worse on the right side of my head where it

comes and goes hard) anyway, then I told them of my trouble walking - where I am

limping and I can't hardly walk - that my legs seems like it is coming off and

weak like. I still have the pain in my legs & all my other symptoms (the head

pain and stuff) but these 2 things are worsening. I am afraid I will fall or

just not be able to walk soon.

So he said bc of the worsening of them, that he wants me to be seen in the ER to

be evaluated. My problem with going there is that they don't believe me and

think I am there for medication! I told the nurse this and she said tell them my

surgeon wanted me to be seen and to call him if I have any questions. My other

fear is that they will call him up and although he has his diagnosis of what is

wrong with me (the chiari/cerebellar ptosis) that they will tell him there is

nothing wrong with me and he will not want to see me anymore. They don't know

anything about Chiari here where I live. I can go in there and tell them I don't

want meds...I just need them to see what is wrong with me, but they still act

like I am " seeking " ! They are the rudest people I have ever met in my life here

at the ER.

What should I do? They told me that I need to keep my appt with them in 2 weeks

and my CT/MRI's too. I am definitely, but I don't know what to do about the ER.

My husband has a problem with taking me there too. We wait for hours and hours

and they are just rude and don't do anything for me.

December 3, 2010

I will say that the ER where I live is the rudest of all and lack even basic

skill sets I feel you.When I my heart had stoped because of CM SCT I went thirty

miles further to the teaching hospital where even thoug it took seveal hours a

Dr. who knew about CM looked at me and gave me some good advice and even said it

stoped because of my CM. I don't do what I was doing that day any more and I

know you probaly do not have a choice but don't let them stop you from much

needed atention.We all want to live long lives and with proper care we can.Try

asking them if anyone is neuro or such when you go you might get lucky!

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