Re: Re: The doctor wants me to go to the ER to be evaluated but...

[Guest guest]

I agree, it's so hard to explain to any doctor about ACM's much less an ER doc!

I'm really sorry your going through this!

My husband, boyfriend at the time, would be so good at making a game out of it

and would crawl on the floor with me! We would have our picnic meals on the

family room floor and ect.

I know first hand just how scary and hard it is when all your symptoms are

flaring up along with the pain. And I'm sorry we can not give real help with

your situation but chin up! Hopefully soon u will have your apt. with the right

doctors and they might be able to help u in some way!

My husband and I know right now if I push my body and brain to far, I'll end up

sleeping for a whole day and be weak the next. Is it worth it???? That's the

personal decision you are going to need to make! When your sick and your

symptoms are high, it's your bodies way of saying it needs help! Try to listen

to it and keep a daily log of activities. That's how we caught onto a few

things while brain storming with Dr. Kula and Dr.B @ TCI. I hope this helps in

some way!

Bea

Having my 5th surgery Jan 12!

Sent from my Verizon Wireless BlackBerry

Re: The doctor wants me to go to the ER

to be evaluated but...

I will say that the ER where I live is the rudest of all and lack even basic

skill sets I feel you.When I my heart had stoped because of CM SCT I went thirty

miles further to the teaching hospital where even thoug it took seveal hours a

Dr. who knew about CM looked at me and gave me some good advice and even said it

stoped because of my CM. I don't do what I was doing that day any more and I

know you probaly do not have a choice but don't let them stop you from much

needed atention.We all want to live long lives and with proper care we can.Try

asking them if anyone is neuro or such when you go you might get lucky!