Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Okay, here is my story for today. Went and had my MRI this morning of the brain. They had to knock me out because my leg spasms have been so bad I couldn't lay still long enough. But it was nice to be in la-la land for a while!!!! Anyway, my neuro called me this afternoon to let me know that there are new lesions in my brain and they might hold off on doing the spine MRI for now because we know there are new lesions. I've been on solumedrol for three days but they are going to continue the full five course with the taper. I've had good success with them before. I have been on Rebif for a year and now they are going to look into an additional therapy to go along with it. Ugh. My frustration is that I was diagnosed a year ago, I'm 31, and I'm already unable to walk. Hopefully this flare up will go by, but still, I am so aggravated. I try, try, try to have a positive outlook on life and this disease, but gosh darn it, there are days that I just can't and today is one of them. But I keep saying that tomorrow will be better! Thank you for listening to me, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 KRISTEN, I KNOW WHAT YOU MEAN. SOME DAYS ARE SO HARD. I SPENT MOST OF YESTERDAY AND PART OF TODAY CRYING. OVER NOTHING - OVER STUPID STUFF - OVER EVERYTHING. I THINK IT BOILS DOWN TO I USED TO BE ABLE TO DO STUFF - I USED TO BE ABLE TO HANDLE STUFF- - - - I AM SURE MOST IF NOT ALL OF YOU KNOW WHAT I AM TALKING ABOUT. AT ONE TIME OR ANOTHER OVER ONE THING OR ANOTHER. OR FOR NO REASON. TOMORROW WILL BE BETTER. I AM SURE THAT THESE MRIs HANGING OUT THERE IN THE FURTURE HAVE NOT HELPED BUT THEY ARE PAST SO YOU CAN STOP WORRING ABOUT GETTING THEM DONE AND WHAT THE RESULTS WILL BE. THAT SHOULD HELP SOME. WORRY AND STRESS MAKES THE ATTACK WORSE. I USED TO TELL MY SISTER TO DRIVE OUT IN THE COUNTRY AND SCREAM AND THAT BY THE TIME SHE GOT HOME SHE SHOULD FEEL BETTER. I CRY MORE THAN I SCREAM BUT THE RESULTS ARE ABOUT THE SAME. YOU ARE IN MY PRAYERS FOR YOU LEGS AND THAT THE TREATMENTS GETS YOU BACK UP ON YOUR FEET AGAIN. GOD LOVE YOU. *Friendship with oneself is all-important because without it one cannot be friends with anyone else inthe world.* <<<Eleanor Roosevelt Need to vent Okay, here is my story for today. Went and had my MRI this morning of the brain. They had to knock me out because my leg spasms have been so bad I couldn't lay still long enough. But it was nice to be in la-la land for a while!!!! Anyway, my neuro called me this afternoon to let me know that there are new lesions in my brain and they might hold off on doing the spine MRI for now because we know there are new lesions. I've been on solumedrol for three days but they are going to continue the full five course with the taper. I've had good success with them before. I have been on Rebif for a year and now they are going to look into an additional therapy to go along with it. Ugh. My frustration is that I was diagnosed a year ago, I'm 31, and I'm already unable to walk. Hopefully this flare up will go by, but still, I am so aggravated. I try, try, try to have a positive outlook on life and this disease, but gosh darn it, there are days that I just can't and today is one of them. But I keep saying that tomorrow will be better! Thank you for listening to me, No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.308 / Virus Database: 266.7.3 - Release Date: 3/15/2005 No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.308 / Virus Database: 266.7.3 - Release Date: 3/15/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 Aw, , I'm so sorry. I wish there was more comfort I could send than e-hugs, but you sure have those. It really is a struggle at times and those days are miserable to go through. Did you know, over in the UK they have a different way of saying "keep your chin up"? They've another word for "chin", I should say. A good friend of my Mother's was raised over on that side of The Pond and learned none too fast that they say things a bit different than we do. In an elevator in the US she offered their version of the encouraging words, and says the man's face went stark when she told him cheerfully to "keep your pecker up!" Hugs, Challis Okay, here is my story for today. Went and had my MRI this morning of the brain. They had to knock me out because my leg spasms have been so bad I couldn't lay still long enough. But it was nice to be in la-la land for a while!!!! Anyway, my neuro called me this afternoon to let me know that there are new lesions in my brain and they might hold off on doing the spine MRI for now because we know there are new lesions. I've been on solumedrol for three days but they are going to continue the full five course with the taper. I've had good success with them before. I have been on Rebif for a year and now they are going to look into an additional therapy to go along with it. Ugh. My frustration is that I was diagnosed a year ago, I'm 31, and I'm already unable to walk. Hopefully this flare up will go by, but still, I am so aggravated. I try, try, try to have a positive outlook on life and this disease, but gosh darn it, there are days that I just can't and today is one of them. But I keep saying that tomorrow will be better! Thank you for listening to me, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 {{{{{{{{Lynn}}}}}}}} Hugs, Challis KRISTEN, I KNOW WHAT YOU MEAN. SOME DAYS ARE SO HARD. I SPENT MOST OF YESTERDAY AND PART OF TODAY CRYING. OVER NOTHING - OVER STUPID STUFF - OVER EVERYTHING. I THINK IT BOILS DOWN TO I USED TO BE ABLE TO DO STUFF - I USED TO BE ABLE TO HANDLE STUFF- - - - I AM SURE MOST IF NOT ALL OF YOU KNOW WHAT I AM TALKING ABOUT. AT ONE TIME OR ANOTHER OVER ONE THING OR ANOTHER. OR FOR NO REASON. TOMORROW WILL BE BETTER. I AM SURE THAT THESE MRIs HANGING OUT THERE IN THE FURTURE HAVE NOT HELPED BUT THEY ARE PAST SO YOU CAN STOP WORRING ABOUT GETTING THEM DONE AND WHAT THE RESULTS WILL BE. THAT SHOULD HELP SOME. WORRY AND STRESS MAKES THE ATTACK WORSE. I USED TO TELL MY SISTER TO DRIVE OUT IN THE COUNTRY AND SCREAM AND THAT BY THE TIME SHE GOT HOME SHE SHOULD FEEL BETTER. I CRY MORE THAN I SCREAM BUT THE RESULTS ARE ABOUT THE SAME. YOU ARE IN MY PRAYERS FOR YOU LEGS AND THAT THE TREATMENTS GETS YOU BACK UP ON YOUR FEET AGAIN. GOD LOVE YOU. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 I can't remember are you in a wheelchair or are you like me and use a walker? I feel your frustration and hope things soon will get better for you. The MS meds we take aren't suppose to completely stop the MS from getting worse only slow it down. Lets hope taking our MS meds isn't a waste of time though. Bill Need to vent Okay, here is my story for today. Went and had my MRI this morning of the brain. They had to knock me out because my leg spasms have been so bad I couldn't lay still long enough. But it was nice to be in la-la land for a while!!!! Anyway, my neuro called me this afternoon to let me know that there are new lesions in my brain and they might hold off on doing the spine MRI for now because we know there are new lesions. I've been on solumedrol for three days but they are going to continue the full five course with the taper. I've had good success with them before. I have been on Rebif for a year and now they are going to look into an additional therapy to go along with it. Ugh. My frustration is that I was diagnosed a year ago, I'm 31, and I'm already unable to walk. Hopefully this flare up will go by, but still, I am so aggravated. I try, try, try to have a positive outlook on life and this disease, but gosh darn it, there are days that I just can't and today is one of them. But I keep saying that tomorrow will be better! Thank you for listening to me, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 says the man's face went stark when she told him cheerfully to "keep your pecker up!" Challis, Only you could crack me up with that one!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 Just wanted to update and thank everyone for their kind words. Today is a much better day for me. Just had to get past the initial aggravation and take it all in stride. again, thank you all for listening to me vent.Many hugs, kisses, and prayers to all of you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 , Hang in there gal! I was 31 when dx 4 years ago (34 now), I know the frustrations you are feeling. My first year and a half were pretty rough and hard hitting attacks...but they have diminished a lot (attacks) since the initial year. Kim in Nebraska Need to vent Okay, here is my story for today. Went and had my MRI this morning of the brain. They had to knock me out because my leg spasms have been so bad I couldn't lay still long enough. But it was nice to be in la-la land for a while!!!! Anyway, my neuro called me this afternoon to let me know that there are new lesions in my brain and they might hold off on doing the spine MRI for now because we know there are new lesions. I've been on solumedrol for three days but they are going to continue the full five course with the taper. I've had good success with them before. I have been on Rebif for a year and now they are going to look into an additional therapy to go along with it. Ugh. My frustration is that I was diagnosed a year ago, I'm 31, and I'm already unable to walk. Hopefully this flare up will go by, but still, I am so aggravated. I try, try, try to have a positive outlook on life and this disease, but gosh darn it, there are days that I just can't and today is one of them. But I keep saying that tomorrow will be better! Thank you for listening to me, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 {{{{{{{{Krissy}}}}}}}}}}} x0x0x0x0 Shirleykrissyinnh@... wrote: Okay, here is my story for today. Went and had my MRI this morning of the brain. They had to knock me out because my leg spasms have been so bad I couldn't lay still long enough. But it was nice to be in la-la land for a while!!!! Anyway, my neuro called me this afternoon to let me know that there are new lesions in my brain and they might hold off on doing the spine MRI for now because we know there are new lesions. I've been on solumedrol for three days but they are going to continue the full five course with the taper. I've had good success with them before. I have been on Rebif for a year and now they are going to look into an additional therapy to go along with it. Ugh. My frustration is that I was diagnosed a year ago, I'm 31, and I'm already unable to walk. Hopefully this flare up will go by, but still, I am so aggravated. I try, try, try to have a positive outlook on life and this disease, but gosh darn it, there are days that I just can't and today is one of them. But I keep saying that tomorrow will be better! Thank you for listening to me, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.