Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 I received a note from and here is the information about IN support group. Not sure how to get this on the website (chiariconnectioninternational) but we have a support group meeting the first Sat. of every month for chiari and its related conditions in ville,Indiana @ Deaconess Hospital 2 resource Center they can contact me @ ellisparkhorse@... Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ Quote Link to comment Share on other sites More sharing options...
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