Friendship/IEPs/inclusion and V.

[Guest guest]

V. wrote:

about the IEPC goals for the rep LOL. I do

>believe she needs them!!

Thanks, ! I'll have to think up some good ones for her such as 1.

_______ will curb the sarcastic manner when talking with parents. 2.

________ will acknowledge and act with a positive attitude in regards to

possibilities for children's IEPs. 3. __________ will refrain from blaming

parents for long IEPs that _____ drags out. 4. ______ will acknowledge

that interactions with peers can be positive IEP goals., etc. That's

probably a good start.

I'v been thinking about two things you mentioned. First, is it possible to

ask a school employee to be with Mark sometimes after school? Districts

have different regulations, but we hire a school employee who doesn't work

in our district but who signs and has tube-feeding skills. We no longer

need the tube-feeding skills but it was a great help before. This person is

great but of course is not available very often due to her work schedule.

Also, we have hired special education teacher training students before and

had some really neat people. Our son who is 18 plays with Kendra while my

husband and I get out every once in a while but we try to limit this

because we don't want him to feel that he is always obligated to be there

for us. He's a senior in high school and we want him to be able to study

and have fun and do kid things. I think you mentioned that you had already

tried teacher training programs and not had much success? How about CNA

students? This Fall my husband and I decided we really need to take walks

together or watch rented movies together or just stay in touch more often

than we have in several years. We have done some fun things but it is a

real effort to find the time. Jackie Kenley in San Francisco is a real

believer in parents getting to do fun things. She really is right. It is so

important!!!

Next, in terms of Mark's activities at home, I've been thinking of some

things Kendra likes to do. She loves to clean counters and pans, so if I'm

cooking, she often gets the kitchen looking really clean while I do the

cooking. She also loves to sort things for recycling and take the paper

off the cans and stomp the cans. She likes chores a lot. She seems really

proud when she does these things. She likes to fold laundry and put it

away. Are any of these things Mark would like to do independently while

you read or have a cup of tea or chat on the phone???

I'm thinking of you and I know how important a little free time is.

Raising our kids who have CHARGE is a really intense experience. Breaks

can be really a tremendous help.

Kendra's Mom

Portland, OR

[Guest guest]

Bob,

I'm so glad for your input. You have clearly made these goals measurable

and have even built in a little leniency and flexibility since we don't

know if we can hold her to these goals 100 percent or even 90 percent of

the time. Yes, you are a superb goal writer!!!!! I like the 6 weeks part

also as we won't have to wait endlessly to see how much progress is being

made. Now, who's going to attend this meeting with me?? Heh, just kidding.

Many thanks!

Kendra, and Camille's Mom

Portland, OR