Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 > > Hello to all, > > Can anyone tell me what they have used, or know of what others have used, to successfully mitigate the horrible pain and aches associated with MS? I have heard of people trying L-Phenylanaline since it is an analgesic, but don't know how good this is, or if there is anyhting else (not narcotic meds or anything of that nature, I mean) that has been helpful for others. > > Pelase let me know if anyone can help. > > Sincerest regards, > > Victor. ====== That's the DL-Phenylalanine 500mg taken 2 to 3 times per day. There is an L-Phenyl and a D-Phenyl but those using LDN should take the combo DL-Phenylalanine, that is if you do not have high blood pressure, are not using an anti-depressant or have PKU or Melanoma. I use Solaray brand DL-Phenylalanine 500mg. I found that taking one DL-P at the same time as my LDN dose I got slightly better results in reduction of pain and a slight more reduction in fatigue. 4.5mg LDN helped my neuropathic MS pain a good 60% and helped my fatigue approx. 30% but It did nothing for my spasticity. I do pool therapy at the YMCA for spasticity. I have used the max dose of neurontin with minimal results so I stopped taking that. So far pool therapy is the only thing that can chisel the spastic muscles somewhat looser. Baclofen was a joke for my spasticity...many people have had some success with it though. I was born spastic in all 4 extremeties and it got worse as the years passed & then at age 26 I was diagnosed with chronic progressive MS...started having noticable MS-like symptoms around age 9 but doctors said it was growing pains and those growing pains got worse and worse and worse...I am 42 now. LDN at 4.5mg has halted my chronic progressive MS progression dead in its tracks for 2 years & 4 months. To stay limbered up as much as possible I have had to do my part in doing pool therapy and other exercising. When fuel prices went up I got lax on pool therapy because the YMCA is a 50 mile drive 1 way from my home and my spasticity has increased considerably. I just started again this week going back to the Y. They have a dome over the pool and the water is not too warm for my MS...the water does not need to be over 87 degrees for MS'ers to exercise. The pool I use is the olympic size pool and it is the one with the cooler temp. The other pool is heated a little over 90 degrees and would cause me paralysis. If you have access to an indoor pool for the winter try to join up and use it at least 2 to 3 times per week no less than 1 hour a session. I do no less than two hours a session. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Thank you so much, - as always! Victor.Bren <TwisterAlley2@...> wrote: >> Hello to all,> > Can anyone tell me what they have used, or know of what others have used, to successfully mitigate the horrible pain and aches associated with MS? I have heard of people trying L-Phenylanaline since it is an analgesic, but don't know how good this is, or if there is anyhting else (not narcotic meds or anything of that nature, I mean) that has been helpful for others.> > Pelase let me know if anyone can help.> > Sincerest regards,> > Victor.======That's the DL-Phenylalanine 500mg taken 2 to 3 times per day. There is an L-Phenyl and a D-Phenyl but those using LDN should take the combo DL-Phenylalanine, that is if you do not have high blood pressure, are not using an anti-depressant or have PKU or Melanoma.I use Solaray brand DL-Phenylalanine 500mg. I found that taking one DL-P at the same time as my LDN dose I got slightly better results in reduction of pain and a slight more reduction in fatigue.4.5mg LDN helped my neuropathic MS pain a good 60% and helped my fatigue approx. 30% but It did nothing for my spasticity. I do pool therapy at the YMCA for spasticity. I have used the max dose of neurontin with minimal results so I stopped taking that. So far pool therapy is the only thing that can chisel the spastic muscles somewhat looser. Baclofen was a joke for my spasticity...many people have had some success with it though. I was born spastic in all 4 extremeties and it got worse as the years passed & then at age 26 I was diagnosed with chronic progressive MS...started having noticable MS-like symptoms around age 9 but doctors said it was growing pains and those growing pains got worse and worse and worse...I am 42 now. LDN at 4.5mg has halted my chronic progressive MS progression dead in its tracks for 2 years & 4 months. To stay limbered up as much as possible I have had to do my part in doing pool therapy and other exercising. When fuel prices went up I got lax on pool therapy because the YMCA is a 50 mile drive 1 way from my home and my spasticity has increased considerably. I just started again this week going back to the Y. They have a dome over the pool and the water is not too warm for my MS...the water does not need to be over 87 degrees for MS'ers to exercise. The pool I use is the olympic size pool and it is the one with the cooler temp. The other pool is heated a little over 90 degrees and would cause me paralysis. If you have access to an indoor pool for the winter try to join up and use it at least 2 to 3 times per week no less than 1 hour a session. I do no less than two hours a session. Personals Single? There's someone we'd like you to meet. Lots of someones, actually. Personals Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hi Victor, If you try that product, why not try it with the combination of DLP the two enzymes work very well together. Aletha [low dose naltrexone] MS associated pain - PLEASE HELP Hello to all, Can anyone tell me what they have used, or know of what others have used, to successfully mitigate the horrible pain and aches associated with MS? I have heard of people trying L-Phenylanaline since it is an analgesic, but don't know how good this is, or if there is anyhting else (not narcotic meds or anything of that nature, I mean) that has been helpful for others. Pelase let me know if anyone can help. Sincerest regards, Victor. DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hi Aletha, Even when not on the LDN yet? I'm having a hard time finding DLP, just finding LP. Does it take some time to build up in your system? A week or two? Do you knwo how much time it takes for results to be noticed? Not sure what you mean by the "two enzymes work well together". Can you explain? Sorry . . . Thanks so much! Victor.Aletha Wittmann <Aletha@...> wrote: Hi Victor, If you try that product, why not try it with the combination of DLP the two enzymes work very well together. Aletha [low dose naltrexone] MS associated pain - PLEASE HELP Hello to all, Can anyone tell me what they have used, or know of what others have used, to successfully mitigate the horrible pain and aches associated with MS? I have heard of people trying L-Phenylanaline since it is an analgesic, but don't know how good this is, or if there is anyhting else (not narcotic meds or anything of that nature, I mean) that has been helpful for others. Pelase let me know if anyone can help. Sincerest regards, Victor. DSL Something to write home about. Just $16.99/mo. or less DSL Something to write home about. Just $16.99/mo. or less Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hi Victor, I use elavil (amitriptyline) for my nerve pain. It's a very old drug that was primarily used for depression. It was found to help different types of pain by changing the way our body feels pain. At least that was what a pharmacist told me. I take a low dose and have had no more neuropathy pain. It takes awhile to work. I hope that helps. > > Can anyone tell me what they have used, or know of what others have used, to successfully mitigate the horrible pain and aches associated with MS? I have heard of people trying L-Phenylanaline since it is an analgesic, but don't know how good this is, or if there is anyhting else (not narcotic meds or anything of that nature, I mean) that has been helpful for others. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Thank you, . Victor. <pomsaregreat@...> wrote: Hi Victor,I use elavil (amitriptyline) for my nerve pain. It's a very old drug that was primarily used for depression. It was found to help different types of pain by changing the way our body feels pain. At least that was what a pharmacist told me. I take a low dose and have had no more neuropathy pain. It takes awhile to work.I hope that helps.> > Can anyone tell me what they have used, or know of what others have used, to successfully mitigate the horrible pain and aches associated with MS? I have heard of people trying L-Phenylanaline since it is an analgesic, but don't know how good this is, or if there is anyhting else (not narcotic meds or anything of that nature, I mean) that has been helpful for others.> > Music Unlimited - Access over 1 million songs. Try it free. Personals Single? There's someone we'd like you to meet. Lots of someones, actually. Try Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hi Victor, I don't know about taking it without being on LDN, but I don't think that should be a problem. The brand of DL-Phenylalanine my husband takes at 500mg twice per > day is Solaray. Dr. Bihari recommends it if you do NOT have high > blood pressure. You get it at healthfood stores or order from the > internet, no Drs. script needed. Dr. Bihari says this will keep your > endorphins up throughout the day.>> CAUTION: This product NOT intended for use by people with > PKU(Phenylketonuria), or pregnant or lactating women. If you have high > blood pressure or pre-existing pigmented malignant melanoma, use only > under the guidance of a physician. Do NOT take with MAO inhibitor > antidepressant drugs.>>> DL-Phenylalanine 500mg by Solaray> http://www.affordablesolaray.com/4871.html>>> What is DL-Phenylalanine? Here are two great explanations.>> DL-Phenylalanine> http://www.internalhealth.com/dl_phenylalanine.htm>>> DL-Phenylalanine> http://www.vrmed.com/dl-phenylalanine.htm Take care, Aletha [low dose naltrexone] MS associated pain - PLEASE HELP Hello to all, Can anyone tell me what they have used, or know of what others have used, to successfully mitigate the horrible pain and aches associated with MS? I have heard of people trying L-Phenylanaline since it is an analgesic, but don't know how good this is, or if there is anyhting else (not narcotic meds or anything of that nature, I mean) that has been helpful for others. Pelase let me know if anyone can help. Sincerest regards, Victor. DSL Something to write home about. Just $16.99/mo. or less DSL Something to write home about. Just $16.99/mo. or less Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Is paxil a MAO in hibitor antidepressant? Could I take this Stuff while taper in off the paxil?(the dl-phenylalanine, I mean) nola [low dose naltrexone] MS associated pain - PLEASE HELP Hello to all, Can anyone tell me what they have used, or know of what others have used, to successfully mitigate the horrible pain and aches associated with MS? I have heard of people trying L-Phenylanaline since it is an analgesic, but don't know how good this is, or if there is anyhting else (not narcotic meds or anything of that nature, I mean) that has been helpful for others. Pelase let me know if anyone can help. Sincerest regards, Victor. DSL Something to write home about. Just $16.99/mo. or less DSL Something to write home about. Just $16.99/mo. or less Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 No, Paxil is not an MAO inhibitor. > > Is paxil a MAO in hibitor antidepressant? Could I take this Stuff while taper in off the paxil?(the dl-phenylalanine, I mean) > nola Quote Link to comment Share on other sites More sharing options...
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