Re: A question about paranoid and mean behavior

[Guest guest]

What is your name deal girl, if your mom is Vallerie, then pray tell us who

you are?

You are up against what you are seeing. Is her paper work in order? In the

Links section on our home page you will find what kind of papers you will

need. Our precious has been working very hard on it for us. Read the

Lewy Body Association's information.

She will need to be protected from wondering. Put locks that she can't

figure out how to use on the doors. You may need to remove mirrors, and

pictures

that have reflective glass. The mirror effects some dementia patients, and it

makes them have more hallucinations. The aggressive hallucinations are what

you need to be on guard about. Get rid of any object, guns or knives, that

she can use. They can become surprisingly strong sometimes. They have been

known to severly hurt or kill the caregiver.

Child proof your house diligently. You may need an alarm by her bed if she

tries to get up at night, it will alert you. Some people like a baby monitor.

There are many

from which to choose.

My dear I am getting so rum dumb I can't write anymore. It's off to dream

land for me!

Imogene

-------------- Original message ----------------------

> I went with my parents to the Psychiatrist today. Moms behavior is just

> psychotic. She is hearing voices, seeing people in the house (or family

members

> who are living in other states, and thinking my dad is trying to kill her.

This

> has been going on for about a month. After doing a lot of reading and

research

> I was thinking that the high doses of Sinimet my mom must take to control

the

> Parkinson's Disease might be causing a lot of the problems now that she is

so

> much older. We left my dad in the waiting room and I went back with mom.

She

> doesn't get as agitated with me. I asked the doctor if he though that

could be

> some of the problem and he said he felt it was probably most of the

problem. He

> feels she is getting way too much dopamine to her brain and it causes a

medicine

> induced psychosis. He said it was one of the very bad side effects of

Sinimet

> and its a very fine balancing act to not overdose a long term Parkinsons

suffer.

> I also asked him if he thought she

> had Lewy Body (I didnt' say Dementia because that upsets my mom) and he

said he

> really didn't feel that she did. Our Nuro group says the same thing. I

just

> don't know. I did tell him she did not do well on the Respirdal and we

are

> starting a very small dose of another antipsychotic which at this moment

the

> name escapes me. She will also continue to take her small dose of

Seroquel. He

> did say the new medicine can cause agitation in some people so we will

watch

> very carefully and discontinue if she doesn't get any better or gets

worse. I

> am going up to Cincinnati next week for moms neurology appointment and we

are

> also going to discus trying to reduce the amount of Sinimet moms takes.

Maybe

> cutting back on the fast acting and trying more of the slow release.

>

> Dad had discontinued the Respirdal this weekend and today she wasn't as

crazy.

> She even told the doctor she was feeling very afraid and anxious and and

lately

> had been so afraid that her husband was trying to do her in. Then she

said she

> knew that couldn't be right because he was a wonderful person but she just

> couldn't get it out of her mind and she felt like she had to fight.

>

> Its been a roller coaster ride the last month. I sure hope we can get mom

> stablized soon. I wish she didn't need the Sinimet.

> Vallerie

>

>

In a message dated 11/30/2006 10:50:52 PM Central Standard Time,

teegurl@... writes:

Hi Everyone

I'm new here and Vallerie my mom is just now experiencing what your mom is

going through, the neurologist is saying she thinks it is Lewy Body Dementia

and have begun different testing. My mom is in total denial nothing is wrong

with her and it is tearing me apart. Jan. 05 she took a fall down the

basement stairs and was constantly falling hurting herself and not saying

anything, finally we ended up in ER and they concluded it was probably a

serious of

mini strokes but the falling and weakness in the legs still continued and in

Nov 05 after MRI and ct scan nothing was found to be wrong with her. Well in

May 06 she started seeing bugs and accusing my father of stealing from her

and her neighbors spying on her with a laser and putting bugs in her room and

knowing her every move and just moved to different parts of the house trying

to hide until they still found her and scaring my father and he just took the

notion she was crazy when she would accuse him of breaking and taking he

r things and he would call me complaining. In June, she moved in with me to

get away from the bugs and neighbors but the bugs still didn't go away took

her to MD who thought a psychiatrist was needed not medical issue after two

month of that the psychiatrist said medical problem a person doesn't get 70

and start having mental issues and referred back to MD and Neurologist well Md

still says not medical so Neurologist is saying Dementia LBD but running test

with the last one being some type of 6hr analysis and my mom is really upset

with everyone and discontinue any help and has been told right now unable to

stay alone but insist moving with her 90 year old mom who is encouraging her

to come home. I have called my grandmother and explained to her what is

going on and told her their is no way she can handle my mom with her problems

and to stop encouraging her to come home and tell her to stick with her

appointments. My dad has just basically walked away from the situation and it

l

eaves me holding the bag alone and I have a 3 and 11 year old to deal with

in the mass of this confusion. The medication isn't working and the bugs

still are with her and I'm feeling hopeless in how to handle all this alone and

maintain my sanity so I'm hoping joining this group can help me to shed a

little more light on what I'm up against. Sorry for the long email but I need

help.

[Guest guest]

Hi Everyone

I'm new here and Vallerie my mom is just now experiencing what your mom is going

through, the neurologist is saying she thinks it is Lewy Body Dementia and have

begun different testing. My mom is in total denial nothing is wrong with her

and it is tearing me apart. Jan. 05 she took a fall down the basement stairs

and was constantly falling hurting herself and not saying anything, finally we

ended up in ER and they concluded it was probably a serious of mini strokes but

the falling and weakness in the legs still continued and in Nov 05 after MRI and

ct scan nothing was found to be wrong with her. Well in May 06 she started

seeing bugs and accusing my father of stealing from her and her neighbors spying

on her with a laser and putting bugs in her room and knowing her every move and

just moved to different parts of the house trying to hide until they still found

her and scaring my father and he just took the notion she was crazy when she

would accuse him of breaking and taking he

r things and he would call me complaining. In June, she moved in with me to get

away from the bugs and neighbors but the bugs still didn't go away took her to

MD who thought a psychiatrist was needed not medical issue after two month of

that the psychiatrist said medical problem a person doesn't get 70 and start

having mental issues and referred back to MD and Neurologist well Md still says

not medical so Neurologist is saying Dementia LBD but running test with the last

one being some type of 6hr analysis and my mom is really upset with everyone and

discontinue any help and has been told right now unable to stay alone but insist

moving with her 90 year old mom who is encouraging her to come home. I have

called my grandmother and explained to her what is going on and told her their

is no way she can handle my mom with her problems and to stop encouraging her to

come home and tell her to stick with her appointments. My dad has just

basically walked away from the situation and it l

eaves me holding the bag alone and I have a 3 and 11 year old to deal with in

the mass of this confusion. The medication isn't working and the bugs still are

with her and I'm feeling hopeless in how to handle all this alone and maintain

my sanity so I'm hoping joining this group can help me to shed a little more

light on what I'm up against. Sorry for the long email but I need help.

-------------- Original message ----------------------

> I went with my parents to the Psychiatrist today. Moms behavior is just

> psychotic. She is hearing voices, seeing people in the house (or family

members

> who are living in other states, and thinking my dad is trying to kill her.

This

> has been going on for about a month. After doing a lot of reading and

research

> I was thinking that the high doses of Sinimet my mom must take to control the

> Parkinson's Disease might be causing a lot of the problems now that she is so

> much older. We left my dad in the waiting room and I went back with mom. She

> doesn't get as agitated with me. I asked the doctor if he though that could

be

> some of the problem and he said he felt it was probably most of the problem.

He

> feels she is getting way too much dopamine to her brain and it causes a

medicine

> induced psychosis. He said it was one of the very bad side effects of Sinimet

> and its a very fine balancing act to not overdose a long term Parkinsons

suffer.

> I also asked him if he thought she

> had Lewy Body (I didnt' say Dementia because that upsets my mom) and he said

he

> really didn't feel that she did. Our Nuro group says the same thing. I just

> don't know. I did tell him she did not do well on the Respirdal and we are

> starting a very small dose of another antipsychotic which at this moment the

> name escapes me. She will also continue to take her small dose of Seroquel.

He

> did say the new medicine can cause agitation in some people so we will watch

> very carefully and discontinue if she doesn't get any better or gets worse. I

> am going up to Cincinnati next week for moms neurology appointment and we are

> also going to discus trying to reduce the amount of Sinimet moms takes. Maybe

> cutting back on the fast acting and trying more of the slow release.

>

> Dad had discontinued the Respirdal this weekend and today she wasn't as crazy.

> She even told the doctor she was feeling very afraid and anxious and and

lately

> had been so afraid that her husband was trying to do her in. Then she said

she

> knew that couldn't be right because he was a wonderful person but she just

> couldn't get it out of her mind and she felt like she had to fight.

>

> Its been a roller coaster ride the last month. I sure hope we can get mom

> stablized soon. I wish she didn't need the Sinimet.

> Vallerie

>

>

>

[Guest guest]

>I can emphatize with where you are now and the confusion and anxiety

you are feeling. When my dad started hallucinating and the doctors

kept changing meds things got progressively worse.. Your mom's

condition is further complicated by the Parkinsons meds... I am not

sure where you are located but if you let the group know they may be

able to recommend someone in your area who is knowledgeable. I will

tell you the key is changing only 1 med at a time and giving it a

while for it to get into her system... It is comforting to know you

can calm her down (but also exhausting and stressful for you).. Are

there any good dementia facilities where you are??? My dad has been

suffering for over 7 years and has no health issues. We were

fortunate to finally get the right mix of drugs (Seroquel, Remeron)

and find a great dementia only facility that knows how to treat this

disease with dignity.. Keep posting.. It is a roller coaster ride and

was such a relief for me to be able to find people who could answer my

questions and just vent..