Re: open question to group

[Guest guest]

Hi Sheldon, I have either SPMS or PPms, more likely PP. I was not diagnosed till 48yrs old. Never had any major attacks that I can remember,just kept getting weaker. Most of my lesions are on my thorasic spine. Since I have been on LDN (July 4th 2003) I have remained stable and slightly better than I was prior. Still need my cane, have bad days, but bladder and energy improved and voice got better control.Overall, I feel like a new person. I was previously on Rebif and felt I was going to die a slow death.

For PPMS their is nothing else, they lie so that they can put us on a CRAB because they are only aproved by insurance for RRMS. I believe the docs mean well because there is nothing but LDN has saved me. I thank God every day that I found LDN,,,,my only regret is that I did not start it sooner.

Get it any way you can!! Good Luck Kiki

[Guest guest]

Hi Arlene,

Do you have a success story to share?

If so, would you consider sharing through 'Case Health - Health Success Stories' to build the collective?

Happy to help, and all LDN stories are shared with low dose naltrexone.org and ldnresearchtrust.org.

Regards,

Cris

Re: [low dose naltrexone] open question to group

In a message dated 12/16/2005 1:12:56 PM Eastern Standard Time, shelbul@... writes:

My name is Sheldon. Does anyone take LDN and have SPMS or PPMS? I have searched Casehealth website. I found 1 person with SPMS taking LDN. I have a second neuro who will not prescribe LDN. I have yet to get an answer why. He ordered

Hi Sheldon

I have SPMS and take ldn.

Arlene