Re: Getting worse on LDN...but is it sleep deprivation???

December 3, 2005

Hi , If your going nuts I am to! Lol! I'm into my third

week. This past thurs. I felt like I hit a brick wall. I was tired

and weak all day. Prior to that I had been doing well on the ldn.

I'm taking 3.0mg. Today I felt a little better this morning but

weaker in the afternoon. I am also taking provigil and on thurs. it

felt as if I never took it. The same for this afternoon. I am

hoping I will get better in the days ahead.

Lately I am sleeping alot and dragging myself out of bed. Which is

better than the broken sleep I had. Oh and the numb symptom I've

been having is still happening. That in itself tells me the ldn is

doing something.

Taking the provigil at noon should not affect your sleep. I have

taken at dose at 2pm. I realize we are all different tho.

Your period could have alot to do with how you are feeling. Ms like

many autoimmune diseases are worse during our periods. Meaning our

symptoms become worse. Did you go into remission during your

pregnancys?

Take Care

> I started LDN just over 2 weeks ago and am so GRATEFUL to have

found

> it and to be on it! The first few days were amazing...I really

> felt things happening.

>

> However, I was still struggling with that mid-day (around 2-3 pm)

> zombie time . I have stayed on my Provigil and moved the

> time I take it from 10am to noon..that seems to help, but it may be

> affecting my sleep.

December 3, 2005

--- In low dose naltrexone , " cookinginvegas " <cookingisfun@h...>

wrote:

>

> I started LDN just over 2 weeks ago and am so GRATEFUL to have found

> it and to be on it! The first few days were amazing...I really

> felt things happening.

>

> However, I was still struggling with that mid-day (around 2-3 pm)

> zombie time . I have stayed on my Provigil and moved the

> time I take it from 10am to noon..that seems to help, but it may be

> affecting my sleep. It seems that if I do get to sleep, one of my

> little ones (I have a 2 yr old, a 5 yr old, and a 7 yr old) gets me

> up for some reason...but then if they don't, I have been just

> staying up! Since moving the Provigil dosage, my zombie time has

> only moved from 2 or 3pm to about 5 pm....but I can't shake it.

>

> My last exacerbation was just over a month ago and after taking my 3

> day dosage of steroids, it didn't take away the pain, numbness,

> limping in my right leg. When I began LDN 2 weeks ago, my leg pain

> started going away and I was improving. Since the build up of my no

> sleep for over a week (on my best nights, I'm in bed between 2-3am

> and then am up between 5-6 am with little ones...I don't get to take

> naps in the daytime either), I'm getting worse. The pain in my leg

> is going back to how it was, I'm back to limping, it's not happy.

> I'm also very moody and irritable (I just started my period

> yesterday too, ugh).

>

> So, long terrible story short, am I crazy? HEHE I mean, are my

> symptoms getting worse and my body still a zombie because of my lack

> of sleep or is the LDN not working correctly?

>

> I've been taking 3 ml dosage, perhaps it's time to move to

> 4.5....any input?

>

> Thanks so much,

>

=========

,

That zombie time between 2pm & 3pm happens to non-sick people too. I've always

gotten zombied out around this time of day if I am not very busy during that

time. Something that might help is taking DL-Phenylalanine 500mg twice per day.

Make sure you use the combo DL-Phenyl and not just the L-Phenyl or D-Phenyl.

Your local healthfood store can order it for you if they don't have the

DL-Phenyl. or you can order it off the net. Don't take DL-P if you have high

blood pressure, PKU, take an anti-depressant.

December 3, 2005