Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Dear June- No suggestions or helpful advice just wanted you to know you and your husband are in our hearts, thoughts, and prayers. Wishing you much strength during this time in your journey. Many heartfelt hugs- Sandie and Des Moines, IA -- Re: Re: MY Loved One When a woman from the Alzheimer's Ass'n told me to get the book " 36 Hours " or something like that, she said I would know what to expect. I told her that I didn't want to read the whole book and know what to expect, because I wasn't sure I could handle it. I think it helps in a way to know, but it also keeps you on edge. My husband was returned to the NH today in very bad condition. I had a long visit with the DON, and with the hospital diagnosis of a bedsore, or whatever terminology they use now, she was quite upset, as she said he had been examined for that before he went in. She said there was some roughness in that area that possibly was caused by the catheter when he was moved. She doesn't believe that a skin break could cause the extremely high wbc or fever and dehydration. When he got back today, they weighed him. He is now at 156#. Originally, in January, 183#. Last week 160# on entering the hospital. He is not drinking well and today did not eat well at all. He does not open his eyes or appear to wake up (at least while I am there), and he is in very great pain upon being moved. I think we are definitely on the downhill slide. I also found out that even if Hospice would have taken him to the Hospice House, Medicare would not pay for room and board, only meds, supplies, care, etc., so that is out of the question. Of course, they will still come to the NH for care. I have asked that FLomax and Seroquel be dc'd, as I think he may have neuroleptic malignancy syndrome, even if the Dr. doesn't. There is no need to use FLomax when he has a catheter. If anyone out there has any experience with NMS, please let me know the symptoms. --- Iward27663@... wrote: > > , you are a dear. Knowing has some advantages, > but it also has a > downside. > A person knows what is happening and why, and that > it is downhill. Ignorance > is bliss in the sense that the caregiver enjoys time > with the loved one > thinking he/she is just getting old along with > oneself. Knowing has a caregiver > annalizing the phases or stages, and watching for > new symptoms. It stresses > the caregiver. I wanted to know, and I still do, but > I don't seem to have any > rest. I need to just let it all go more, and be his > mate with love. But, I > find that role slowly erroding. I don't like it. > Nothing I can do about it. Just > make every moment count while I can. Thanks for your > love, > Imogene > > > > But then, we are all going downhill. Sooner or > later. > > > In a message dated 10/31/2006 4:12:41 PM Central > Standard Time, > stim@... writes: > > Imogene, it breaks my heart too, to hear what you > are experiencing with your > most loved > and cherished husband. How very difficult to live > with. My heart goes out to > you. As > Mom went through the downslide I had no idea what > was happening to her nor > what was > ahead. I hate what you are going through. > > , Oakville Ont. > > Mother, age 92, died Aug. 12/06 after 13 year > decline from PDD > > > > > > > > [Non-text portions of this message have been > removed] > > _____________________________________________________________________________ ____________ Check out the New Yahoo! Mail - Fire up a more powerful email and get things done faster. (http://advision.webevents.yahoo.com/mailbeta) Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
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