Re: [MSWatchers] How long before LDN kicks in?

[Guest guest]

I've been taking LDN since around September 8th at 3mg ( I have RRMS and am on Copaxone also and have been for 6 years) and although I'm trying to think positive, give it time to work, etc., I must say I eel much worse on it than before. Physically, I just don't feel well, have had occassional night sweats, have an increase in my pain (and I was never on any narcotics so that isn't the reason),occassional nausea, tingling in my legs that I didn't have before and occassional slight numbness in my legs. I'm not sure yet if I'll stick with it. I'm concerned it's causing me damage rather than helping me. Those of you on it for a long time, please tell me how it was for you in your early months on LDN? Desinie bj <canerday@...> wrote: I wonder myself. . . I've been taking it since

October and I've noticed nodifference in symptoms.bjmailto:canerday@... Date: Sun, 04 Dec 2005 05:23:43 -0000 From: "moinmoin2u" <moinmoin2u@...>Subject: How long before LDN kicks in?I have been on LDN almost 4 weeks now. Diagnosed in 96, now SPMS in the past 2 years. Started with 3mg, now 4.5mg LDN. Have not noticed improvement, but worsening of walking ability. No sleep problems or bad dreams. Very stiff now with moderate footdrop, extremely sensitive to cold temperatures. That's new, since usually it's heat! Howlong should I continue LDN? Any suggestions?

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[Guest guest]

>

> I've been taking LDN since around September 8th at 3mg ( I have RRMS and am on

Copaxone also and have been for 6 years) and although I'm trying to think

positive, give it time to work, etc., I must say I eel much worse on it than

before. Physically, I just don't feel well, have had occassional night sweats,

have an increase in my pain (and I was never on any narcotics so that isn't the

reason),occassional nausea, tingling in my legs that I didn't have before and

occassional slight numbness in my legs. I'm not sure yet if I'll stick with it.

I'm concerned it's causing me damage rather than helping me. Those of you on it

for a long time, please tell me how it was for you in your early months on LDN?

> Desinie

========

Give LDN some more time but while you are doing that if you haven't had Lyme

ruled out via Western Blot do so.

LYME WESTERN BLOT by Igenex Labs

http://www.personalconsult.com/articles/drjonesapproach.html

[Guest guest]

They did think I had Lyme disease back in 92. My Lyme titre was positive but not excessively so. The Lyme tests were even more unreliable back then. I was treated with I believe it was doxycycline for 6 weeks but it was only when I became pregnant, that I started feeling better ( Something often seen in MS). I'm not sure which test was done back then and I did not have the bull's eye rash. But I understand often people do not get the tell tale rash. Anyhow, when my symptoms returned in 1999, but presented as more neurological in nature, MS was discovered after an MRI of the brain and a spinal tap. It was then said by my neurologist that my condition in 1992 was likely my first MS attack and not Lyme. This past July I did find a tick on myself. Again, no rash. I'll ask my doctor about the Western blot test. I'm sure it's quite possible to have both Lyme and MS. Thanks for your help. I'm just so tired of feeling ill. My PCP thinks I'm my own

worst enemy as I'm always looking things up online but she isn't the one who's feeling ill daily. She's tested me for Lupus also( after noticing I had the malar( butterfly) rash on my face), but my ANA was negative as were the antibody tests. DesinieBren <TwisterAlley2@...> wrote: >> I've been taking LDN since around September 8th at 3mg ( I have RRMS and am on Copaxone also and have been for 6 years) and although I'm trying to think positive, give it time to work, etc., I must say I eel much worse on it than before. Physically, I just don't feel well, have had occassional night sweats, have an increase in my pain (and I was never on any narcotics so that isn't the reason),occassional nausea,

tingling in my legs that I didn't have before and occassional slight numbness in my legs. I'm not sure yet if I'll stick with it. I'm concerned it's causing me damage rather than helping me. Those of you on it for a long time, please tell me how it was for you in your early months on LDN?> Desinie========Give LDN some more time but while you are doing that if you haven't had Lyme ruled out via Western Blot do so. LYME WESTERN BLOT by Igenex Labs http://www.personalconsult.com/articles/drjonesapproach.html

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