Going back to NY (TCI) Aug. 11th (NCC)

[Guest guest]

 I'm having follow up testing and then I see Neurologist and Neurosurgeon it has

been over a year (May 2009) since they put a tube in my spinal cord somewhere

around the C2 area.I had Teathered cord surgery Scheduled but it was cancelled

because my spinal cord had expanded

  Is anyone going to be there on the 12th or 13th ? I'm hoping they got room for

me at the variety house I won't know for sure until Monday.

(Indiana)

Surgery for Chiari in 1974 at age 17 which I've always considered a success even

though Ive always had problems.I new little to nothing about Chiari until May

2006.Revision done at TCI in Jan.2009.