re: Undifferentiated Connective Tissue Disease/Liz

[Guest guest]

Hey Liz! Thanks for replying. Rheumatology can be so annoying sometimes huh?!

I'm a nurse and I want to understand what I have and what to expect and to learn

all I can about my disease. But there are soo many gray areas and unknowns in

this field of medicine it's enough to drive ya nuts! lol My sister and I

definitely seemed more " Stills-y " for a while. Now it's looking more " lupus-y. "

Who the heck knows! The good thing at least is that mostly the same medications

are used so we don't have to wait for a 100% firm diagnosis to start treatment.

Since I can't start any meds until my skin biopsy in October, my sister gets to

be the guinea pig in the meantime with trying methotrexate. The low-dose

prednisone taper she just did had no effect on her. The rheum said she could try

high dose pred, Imuran, or the methotrexate and that's what she chose. Hopefully

my skin biopsy will give us some more info pointing to a specific diagnosis if

there is in fact some vasculitis going on. Well here's to being

" undifferentiated " ! haha!

Aubrey