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hi all - update

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Hi All,

Well, it has been way too long since I have posted. I can tell that it

seems that way too many people are suffering and there are also a lot of new

people being diagnosed. For that I am very sad.

In regards to me, I am staying upbeat in my fight, although, I must say I am

getting fatigued and tired very often. I am getting close to my next dose

of Actemra, which seems to help my energy, but I do notice that about 8-10

days before I am due for my next does my severe fatigue sets back in. I am

thankful that it does give me some energy. My last sed rate before actemra

was 70. Yikes, here we go again. if it's not one thing - it's another.

I had x-rays of my back done and found out that I have many bone spurs (some

pressing on the nerves) and also have spondylosis now (which I did not have

two years ago. So I guess that explains why it is hard to sit up in hard

chairs for more than 15 minutes.

My left foot has not healed from it's fracture from over a year ago - so

next week I get to see a new foot specialist and see if he can come up with

what is going on with it.. It is always swollen and has bruising on it all

the time.

I am glad that it is summer though. I am enjoying the pool and trying to

stay out of the resort J

I hope you all are enjoying summer - either in air conditioning or a pool as

it seems it is the only place to survive the weather!

Hang in there!

Alli

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Dearest Alli,

You are a trooper dear, that's for sure. I hope your app.'s went well enough and

thank you for letting us know how you're holding up.

Thinking of you with love,

hi all - update

Hi All,

Well, it has been way too long since I have posted. I can tell that it

seems that way too many people are suffering and there are also a lot of new

people being diagnosed. For that I am very sad.

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Well Alli, it does sound as if Sir Still's is staying with you..like has moved

in baggage and all...sorry to hear about your troubles and the foot

fracture...that is a bear!  But, like you said, happy for your up-beat attitude

and staying out of the Resort!  Also, like you, were it not for the pool and

air-vonditioning, i would not survive the summer!  Humidity and Brother Still's

like to party together!  So far, they haven't had any pool parties! LOL!

I hope and pray you get some answers and relief for your foot fracture...

You keep hangin in there and may God continue to bless you and your family!

Many Blessings!

Larry B.

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