Diatribe of a two year user by Reg

[Guest guest]

Hi there Hyper Hans and everyone else

I have been reading all the posts (except for when people don't trim off the

excess as said before when you get the digest reading the same thing over

and over is a drag.) and I am one of the very happy LDN users that doesn't

get up at all most nights,depending on how much I have had to drink before

bed of course.

I have been on three mgs for over two years now and while I am no " poster

child " for LDN I have very few bad days and am not loosing ground at all

compared to those without the benefits of LDN.

My nueropathic pain has never come back and I have not ever felt the need to

self inject,probably much to the dismay of the MS society here,and being a

mentor for this said society I have been (not so quietly promoting the

benefits of this regimin)kind of against their will.

I rankled a few people at the last meeting by asking a rep from the society

why we are not researching this drugs actions on how MS is being helped by

this very cheap(at least around here) drug.

There was a mumbled " well you gotta be carefull with the long term effects

of " alternative " treatments,and he went on to another question and ignored

me from then on... I saw a lot of promtional papers and products from Teva

nueroscience (Rebif) so I knew who I was fighting here.

What made me mad was that the first thing this person who is supposed to be

their P.R. spokesman said was " We are working at trying to put ourselves out

of business " meaning the M.S. society, And he said this with a big smile on

his face like we were supposed to believe it.How many times have I heard

this before?

To get back to the suggestion that we have to watch out for the long term

effects well what are the long term effects of the injectable crab drugs?

I think they sound pretty dire to me,fluelike symptoms,taking massive

amounts of tylenol or such before the shot just to help with this,injection

site cell death,and suicidal tendancys, plus possible kidney problems or

liver failure and now maybe a tendancy toward osteoporosis? Lets see maybe a

little sleeplessness,and a few wild dreams ain't that bad Oh sure there has

not been any tests done and probably the results, in the event of a test

being done, will only be inconclusive and need to be redone but except for

a very few postings stating that even the smallest amount of naltrexone is

causing big problems there has been very little bad press.

Maybe the people with those problems should use only the crab drugs as they

were those that these have been designed for.

Now I never meant to rile anyone I just had to vent.

Thanks for being such a compassionate group

Reg