Just Checking In:

[Guest guest]

Been awhile since I've checked in, and today is my two year anniversary

on LDN. Started Dec11th 2003 at 3mg, was on that for a month, and then

upped it to 4.5mg and have been there ever since. Like Reg, I'm another

Happy Camper on LDN that has a lot to be thankful for.

I still tend to 'lurk' in the shadows and will probably continue to do so, but

thought I'd throw my 2 cents worth in for what it's worth. So, now that I'm

out of my "Cave" I'll re-gale you with a short version of Thanks....

Thank you to the 'old-timers' for your encouragement aways back, when

I was at my ropes end and just looking for something that would halt/stop

the onward progression of this MonSter. Received more than I was hoping

for. All I wanted, hoped for, was something, anything, that would stop me

from getting any worse. As it turns out, I 'suffered' an "almost" complete

turnaround of symptoms. Not remission, as if I miss a dose...tried the old

style of Dr. Bob's two day off, and couldn't walk at the end of the two days,

and learned, that for me, it 'appears' to be working. :-) Again, thanks to all

who helped me in the beginning. To try to name all of you would be next

to impossible and if you remember me, then you've probably helped me

at one time or another. :-) Thank you!

Cured??? Not hardly, but I will say again, my 'Worst' day taking LDN is

by far and away, much much better than my 'Best' day on the injections.

Just my personal observation as it relates to me.

I still have the ups and downs, but seem to bounce back pretty well.

I have good days, and 'better' days. Any day I can get up, out of bed, make

it to the 'throne'-room (blush) without falling down, having an 'accident'

along the way, and make it there by myself, without a cane, or the W/C,

is a good day. The better days are when I have the energy to last all

day without falling asleep in the middle of the day, actually get projects

complete around here. Being able to (half-way) think once again, having

a "Memory" once again, balance, bladder control, no more shakes/tremors,

a general 'lessening' of most symptoms to the point that most of them are

easily tolerated or ignored altogether, is absolutely wonderful.

It's nice to be able to stand for more than a couple of minutes without

having to sit down, because the legs are starting to wobble, or tingle and

going numb. And if they go numb, I fall. :-( I have pushed myself too hard

on occasion, and have paid for it, but not like in the past. No more knives

in the backs of the thighs, arms, back, or elsewhere. No more electric type

shock sensation, no more Intense burning over half the body. (mild now)

If only.....if only I had been guided to this site/medication in the beginning,

probably would not have (maybe?/maybe not) ANY lingering symptoms as

I have now. I'll happily settle-for, what I've regained as opposed to what

"could have been."

Two years, no...NO relapses, no flu, no colds, no pneumonia, no more

migraines, no more sorry honey, I"VE got a headache <grin> and I

really believe, No progression.

To ALL the newbies, and people I haven't had the chance to meet yet,

Welcome, and hang in there. Listen to the 'old-timers' as they've been

around a little while, and just want to help you if they possibly can, plus

from what I've been reading, some of the newbies are pretty sharp their

own selves.

There is a wealth of information to be harvested here, and information

to share that is available to all of us. All we have to do is 'post' a question

and someone who has information, answers......hmmm duhh...if I can do

this, anyone can. <grin> Lot of sharp people here, and they want to

help.

To anyone out there, still sitting on the fence as I once was....read all you

can about ldn, both the pro's and the con's on it, and one thing I did, that

you might try...e-mail a couple of people off the message board (private),

get their story, call them up, or have them call you, talk to them "in person"

so you get up front and personal. For me, it changed the whole way I

thought about it. Figured it couldn't hurt, so why not, take a leap of faith,

and maybe, just maybe, it might help. For me, it did. Hopefully for you, it

will also.

Hopefully this makes sense to 'someone' out there, hmmm, guess I'm

sicker than I thought, as it's starting to make sense to me. hahaha

Time to go before this becomes another book, so off to my "Cave!"

Take care, have a Great Day!

Jim(rrms)