Guest guest Posted September 16, 2010 Report Share Posted September 16, 2010 I am still waiting for the Chiari Institute to call me. It's only been two weeks since they recieved all of my information. I have noticed that there are a lot of comments about Chiari and Tethered Cord Syndrome. I don't however, read a lot about people with significant Syringomyelia. I now know some terms that I didn't know before. I know that I have severe bouts of Myoclonus. I get them everywhere, for seemingly no reason. I do get them at night as I'm going to bed, as others have mentioned. I also get them during the day, particularly when I take pain meds. I also have the burning in my back...it's like wearing one of the blankets they put on you when you get an exray....only there is a burning underneath it. I learned that this is called Dysesthetic pain. I like finding out that what I feel has a name...many names in fact. Now if I could find someone who also experiences creaking or grinding noises inside of their head and tell me what that's called, I won't feel crazy and I will have a name for a sympotom that I have had since I was a young child of 5 or 6. Waiting patiently... Sonya Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.