Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 > > Been awhile since I've checked in, and today is my two year anniversary > on LDN. Started Dec11th 2003 at 3mg, was on that for a month, and then > upped it to 4.5mg and have been there ever since. Like Reg, I'm another > Happy Camper on LDN that has a lot to be thankful for. > > I still tend to 'lurk' in the shadows and will probably continue to do so, but > thought I'd throw my 2 cents worth in for what it's worth. So, now that I'm > out of my " Cave " I'll re-gale you with a short version of Thanks.... > > Thank you to the 'old-timers' for your encouragement aways back, when > I was at my ropes end and just looking for something that would halt/stop > the onward progression of this MonSter. Received more than I was hoping > for. All I wanted, hoped for, was something, anything, that would stop me > from getting any worse. As it turns out, I 'suffered' an " almost " complete > turnaround of symptoms. Not remission, as if I miss a dose...tried the old > style of Dr. Bob's two day off, and couldn't walk at the end of the two days, > and learned, that for me, it 'appears' to be working. :-) Again, thanks to all > who helped me in the beginning. To try to name all of you would be next > to impossible and if you remember me, then you've probably helped me > at one time or another. :-) Thank you! > > Cured??? Not hardly, but I will say again, my 'Worst' day taking LDN is > by far and away, much much better than my 'Best' day on the injections. > Just my personal observation as it relates to me. > > I still have the ups and downs, but seem to bounce back pretty well. > I have good days, and 'better' days. Any day I can get up, out of bed, make > it to the 'throne'-room (blush) without falling down, having an 'accident' > along the way, and make it there by myself, without a cane, or the W/C, > is a good day. The better days are when I have the energy to last all > day without falling asleep in the middle of the day, actually get projects > complete around here. Being able to (half-way) think once again, having > a " Memory " once again, balance, bladder control, no more shakes/tremors, > a general 'lessening' of most symptoms to the point that most of them are > easily tolerated or ignored altogether, is absolutely wonderful. > > It's nice to be able to stand for more than a couple of minutes without > having to sit down, because the legs are starting to wobble, or tingle and > going numb. And if they go numb, I fall. :-( I have pushed myself too hard > on occasion, and have paid for it, but not like in the past. No more knives > in the backs of the thighs, arms, back, or elsewhere. No more electric type > shock sensation, no more Intense burning over half the body. (mild now) > > If only.....if only I had been guided to this site/medication in the beginning, > probably would not have (maybe?/maybe not) ANY lingering symptoms as > I have now. I'll happily settle-for, what I've regained as opposed to what > " could have been. " > > Two years, no...NO relapses, no flu, no colds, no pneumonia, no more > migraines, no more sorry honey, I " VE got a headache <grin> and I > really believe, No progression. > > To ALL the newbies, and people I haven't had the chance to meet yet, > Welcome, and hang in there. Listen to the 'old-timers' as they've been > around a little while, and just want to help you if they possibly can, plus > from what I've been reading, some of the newbies are pretty sharp their > own selves. > > There is a wealth of information to be harvested here, and information > to share that is available to all of us. All we have to do is 'post' a question > and someone who has information, answers......hmmm duhh...if I can do > this, anyone can. <grin> Lot of sharp people here, and they want to > help. > > To anyone out there, still sitting on the fence as I once was....read all you > can about ldn, both the pro's and the con's on it, and one thing I did, that > you might try...e-mail a couple of people off the message board (private), > get their story, call them up, or have them call you, talk to them " in person " > so you get up front and personal. For me, it changed the whole way I > thought about it. Figured it couldn't hurt, so why not, take a leap of faith, > and maybe, just maybe, it might help. For me, it did. Hopefully for you, it > will also. > > Hopefully this makes sense to 'someone' out there, hmmm, guess I'm > sicker than I thought, as it's starting to make sense to me. hahaha > > Time to go before this becomes another book, so off to my " Cave! " > > Take care, have a Great Day! > > Jim(rrms) > ======== Hey Captain Caveman...CONGRATS on your 2 years on LDN. I've got my grandma living with me at this time...she goes back home on Wednesday after she gets her stitches out from her recent surgery. She's the main reason I've been so scarce on the forums this past week. We got snow here in Arkansas last week. For those who don't know, Jim and I sometimes correspond via private email so that's why I'm filling him in on what I'm up to. Cavey Jim, glad to hear All's Well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Hi Jim, Has your success story been recorded for low dose naltrexone.org, or ldnresearchtrust.org or casehealth.com.au yet? If not, would you mind if I capture it for the record? Regards, Cris [low dose naltrexone] Just Checking In: Been awhile since I've checked in, and today is my two year anniversary on LDN. Started Dec11th 2003 at 3mg, was on that for a month, and then upped it to 4.5mg and have been there ever since. Like Reg, I'm another Happy Camper on LDN that has a lot to be thankful for. I still tend to 'lurk' in the shadows and will probably continue to do so, but thought I'd throw my 2 cents worth in for what it's worth. So, now that I'm out of my "Cave" I'll re-gale you with a short version of Thanks.... Thank you to the 'old-timers' for your encouragement aways back, when I was at my ropes end and just looking for something that would halt/stop the onward progression of this MonSter. Received more than I was hoping for. All I wanted, hoped for, was something, anything, that would stop me from getting any worse. As it turns out, I 'suffered' an "almost" complete turnaround of symptoms. Not remission, as if I miss a dose...tried the old style of Dr. Bob's two day off, and couldn't walk at the end of the two days, and learned, that for me, it 'appears' to be working. :-) Again, thanks to all who helped me in the beginning. To try to name all of you would be next to impossible and if you remember me, then you've probably helped me at one time or another. :-) Thank you! Cured??? Not hardly, but I will say again, my 'Worst' day taking LDN is by far and away, much much better than my 'Best' day on the injections. Just my personal observation as it relates to me. I still have the ups and downs, but seem to bounce back pretty well. I have good days, and 'better' days. Any day I can get up, out of bed, make it to the 'throne'-room (blush) without falling down, having an 'accident' along the way, and make it there by myself, without a cane, or the W/C, is a good day. The better days are when I have the energy to last all day without falling asleep in the middle of the day, actually get projects complete around here. Being able to (half-way) think once again, having a "Memory" once again, balance, bladder control, no more shakes/tremors, a general 'lessening' of most symptoms to the point that most of them are easily tolerated or ignored altogether, is absolutely wonderful. It's nice to be able to stand for more than a couple of minutes without having to sit down, because the legs are starting to wobble, or tingle and going numb. And if they go numb, I fall. :-( I have pushed myself too hard on occasion, and have paid for it, but not like in the past. No more knives in the backs of the thighs, arms, back, or elsewhere. No more electric type shock sensation, no more Intense burning over half the body. (mild now) If only.....if only I had been guided to this site/medication in the beginning, probably would not have (maybe?/maybe not) ANY lingering symptoms as I have now. I'll happily settle-for, what I've regained as opposed to what "could have been." Two years, no...NO relapses, no flu, no colds, no pneumonia, no more migraines, no more sorry honey, I"VE got a headache <grin> and I really believe, No progression. To ALL the newbies, and people I haven't had the chance to meet yet, Welcome, and hang in there. Listen to the 'old-timers' as they've been around a little while, and just want to help you if they possibly can, plus from what I've been reading, some of the newbies are pretty sharp their own selves. There is a wealth of information to be harvested here, and information to share that is available to all of us. All we have to do is 'post' a question and someone who has information, answers......hmmm duhh...if I can do this, anyone can. <grin> Lot of sharp people here, and they want to help. To anyone out there, still sitting on the fence as I once was....read all you can about ldn, both the pro's and the con's on it, and one thing I did, that you might try...e-mail a couple of people off the message board (private), get their story, call them up, or have them call you, talk to them "in person" so you get up front and personal. For me, it changed the whole way I thought about it. Figured it couldn't hurt, so why not, take a leap of faith, and maybe, just maybe, it might help. For me, it did. Hopefully for you, it will also. Hopefully this makes sense to 'someone' out there, hmmm, guess I'm sicker than I thought, as it's starting to make sense to me. hahaha Time to go before this becomes another book, so off to my "Cave!" Take care, have a Great Day! Jim(rrms) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Hi Jim, You and from England were the ones that helped me feel comfortable pushing my husband into taking LDN. Just like you stated, started off very early (within 3 months of his first symptoms of MS). Just like you stated below the sooner the better, has only the slightest symptoms of MS to contend with (numbness and tingling). Thanks for being there. Aletha Been awhile since I've checked in, and today is my two year anniversary on LDN. Started Dec11th 2003 at 3mg, was on that for a month, and then upped it to 4.5mg and have been there ever since. Like Reg, I'm another Happy Camper on LDN that has a lot to be thankful for. I still tend to 'lurk' in the shadows and will probably continue to do so, but thought I'd throw my 2 cents worth in for what it's worth. So, now that I'm out of my "Cave" I'll re-gale you with a short version of Thanks.... Thank you to the 'old-timers' for your encouragement aways back, when I was at my ropes end and just looking for something that would halt/stop the onward progression of this MonSter. Received more than I was hoping for. All I wanted, hoped for, was something, anything, that would stop me from getting any worse. As it turns out, I 'suffered' an "almost" complete turnaround of symptoms. Not remission, as if I miss a dose...tried the old style of Dr. Bob's two day off, and couldn't walk at the end of the two days, and learned, that for me, it 'appears' to be working. :-) Again, thanks to all who helped me in the beginning. To try to name all of you would be next to impossible and if you remember me, then you've probably helped me at one time or another. :-) Thank you! Cured??? Not hardly, but I will say again, my 'Worst' day taking LDN is by far and away, much much better than my 'Best' day on the injections. Just my personal observation as it relates to me. I still have the ups and downs, but seem to bounce back pretty well. I have good days, and 'better' days. Any day I can get up, out of bed, make it to the 'throne'-room (blush) without falling down, having an 'accident' along the way, and make it there by myself, without a cane, or the W/C, is a good day. The better days are when I have the energy to last all day without falling asleep in the middle of the day, actually get projects complete around here. Being able to (half-way) think once again, having a "Memory" once again, balance, bladder control, no more shakes/tremors, a general 'lessening' of most symptoms to the point that most of them are easily tolerated or ignored altogether, is absolutely wonderful. It's nice to be able to stand for more than a couple of minutes without having to sit down, because the legs are starting to wobble, or tingle and going numb. And if they go numb, I fall. :-( I have pushed myself too hard on occasion, and have paid for it, but not like in the past. No more knives in the backs of the thighs, arms, back, or elsewhere. No more electric type shock sensation, no more Intense burning over half the body. (mild now) If only.....if only I had been guided to this site/medication in the beginning, probably would not have (maybe?/maybe not) ANY lingering symptoms as I have now. I'll happily settle-for, what I've regained as opposed to what "could have been." Two years, no...NO relapses, no flu, no colds, no pneumonia, no more migraines, no more sorry honey, I"VE got a headache <grin> and I really believe, No progression. To ALL the newbies, and people I haven't had the chance to meet yet, Welcome, and hang in there. Listen to the 'old-timers' as they've been around a little while, and just want to help you if they possibly can, plus from what I've been reading, some of the newbies are pretty sharp their own selves. There is a wealth of information to be harvested here, and information to share that is available to all of us. All we have to do is 'post' a question and someone who has information, answers......hmmm duhh...if I can do this, anyone can. <grin> Lot of sharp people here, and they want to help. To anyone out there, still sitting on the fence as I once was....read all you can about ldn, both the pro's and the con's on it, and one thing I did, that you might try...e-mail a couple of people off the message board (private), get their story, call them up, or have them call you, talk to them "in person" so you get up front and personal. For me, it changed the whole way I thought about it. Figured it couldn't hurt, so why not, take a leap of faith, and maybe, just maybe, it might help. For me, it did. Hopefully for you, it will also. Hopefully this makes sense to 'someone' out there, hmmm, guess I'm sicker than I thought, as it's starting to make sense to me. hahaha Time to go before this becomes another book, so off to my "Cave!" Take care, have a Great Day! Jim(rrms) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 You're very welcome, and glad we could be of service. When you've been given something back, that you thought you'd lost forever, and it's within your power/ability to share with others....(haven't posted this much on the board probably for over a year)....and hope, that they too may benefit from the same, well, me personally, I feel it's a responsibility I need to 'payback,' by sharing the information with others. Your welcome package was a great idea. And thank you for it! will yak at you later. Those whom haven't received Aletha's welcome package, e-mail her for it. Good information to take with you, and share with others. Thanks Aletha & Take care, Jim Re: [low dose naltrexone] Just Checking In: Hi Jim, You and from England were the ones that helped me feel comfortable pushing my husband into taking LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Jim, do you mix your own LDN from tablets or do you buy capsules? Rae From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of jsgarvinSent: Sunday, December 11, 2005 10:21 PMlow dose naltrexone Subject: [low dose naltrexone] Just Checking In: Been awhile since I've checked in, and today is my two year anniversary on LDN. Started Dec11th 2003 at 3mg, was on that for a month, and then upped it to 4.5mg and have been there ever since. Like Reg, I'm another Happy Camper on LDN that has a lot to be thankful for. I still tend to 'lurk' in the shadows and will probably continue to do so, but thought I'd throw my 2 cents worth in for what it's worth. So, now that I'm out of my "Cave" I'll re-gale you with a short version of Thanks.... Thank you to the 'old-timers' for your encouragement aways back, when I was at my ropes end and just looking for something that would halt/stop the onward progression of this MonSter. Received more than I was hoping for. All I wanted, hoped for, was something, anything, that would stop me from getting any worse. As it turns out, I 'suffered' an "almost" complete turnaround of symptoms. Not remission, as if I miss a dose...tried the old style of Dr. Bob's two day off, and couldn't walk at the end of the two days, and learned, that for me, it 'appears' to be working. :-) Again, thanks to all who helped me in the beginning. To try to name all of you would be next to impossible and if you remember me, then you've probably helped me at one time or another. :-) Thank you! Cured??? Not hardly, but I will say again, my 'Worst' day taking LDN is by far and away, much much better than my 'Best' day on the injections. Just my personal observation as it relates to me. I still have the ups and downs, but seem to bounce back pretty well. I have good days, and 'better' days. Any day I can get up, out of bed, make it to the 'throne'-room (blush) without falling down, having an 'accident' along the way, and make it there by myself, without a cane, or the W/C, is a good day. The better days are when I have the energy to last all day without falling asleep in the middle of the day, actually get projects complete around here. Being able to (half-way) think once again, having a "Memory" once again, balance, bladder control, no more shakes/tremors, a general 'lessening' of most symptoms to the point that most of them are easily tolerated or ignored altogether, is absolutely wonderful. It's nice to be able to stand for more than a couple of minutes without having to sit down, because the legs are starting to wobble, or tingle and going numb. And if they go numb, I fall. :-( I have pushed myself too hard on occasion, and have paid for it, but not like in the past. No more knives in the backs of the thighs, arms, back, or elsewhere. No more electric type shock sensation, no more Intense burning over half the body. (mild now) If only.....if only I had been guided to this site/medication in the beginning, probably would not have (maybe?/maybe not) ANY lingering symptoms as I have now. I'll happily settle-for, what I've regained as opposed to what "could have been." Two years, no...NO relapses, no flu, no colds, no pneumonia, no more migraines, no more sorry honey, I"VE got a headache <grin> and I really believe, No progression. To ALL the newbies, and people I haven't had the chance to meet yet, Welcome, and hang in there. Listen to the 'old-timers' as they've been around a little while, and just want to help you if they possibly can, plus from what I've been reading, some of the newbies are pretty sharp their own selves. There is a wealth of information to be harvested here, and information to share that is available to all of us. All we have to do is 'post' a question and someone who has information, answers......hmmm duhh...if I can do this, anyone can. <grin> Lot of sharp people here, and they want to help. To anyone out there, still sitting on the fence as I once was....read all you can about ldn, both the pro's and the con's on it, and one thing I did, that you might try...e-mail a couple of people off the message board (private), get their story, call them up, or have them call you, talk to them "in person" so you get up front and personal. For me, it changed the whole way I thought about it. Figured it couldn't hurt, so why not, take a leap of faith, and maybe, just maybe, it might help. For me, it did. Hopefully for you, it will also. Hopefully this makes sense to 'someone' out there, hmmm, guess I'm sicker than I thought, as it's starting to make sense to me. hahaha Time to go before this becomes another book, so off to my "Cave!" Take care, have a Great Day! Jim(rrms) Quote Link to comment Share on other sites More sharing options...
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