RE: [wacmaparents] Diabetes insipidus

[Guest guest]

My son was worked up at our children's hospital by a metabolic specialist. They

do a deprivation study, which means that they withhold water and food for up to

12 hours while measuring the concentration of the urine. It's a genetic problem

usually, and most chiari kids have issues with fluid balance because of some

damage to the pituitary gland and/or high ICP.

Take good care,

To: wacmaparents

From: LBITeach@...

Date: Wed, 17 Nov 2010 09:14:26 -0500

Subject: [wacmaparents] Diabetes insipidus

This is the first time I have heard of diabetes insipidus. I looked online

and it seems to discribe my son. He started wetting the bed a month before

his surgery two years ago. He is still in pullups at night and urniates

frequently most days. I have taken him to a urologist and tests were done

and nothing was found. Does anyone know if this is something they would

have looked at? Where do I take him to look into this?

I just love all the info I learn on this group.

Patti

Mom to 8, decompressed 7/10/07, and doing great, and his fraternal

twin, Nick, and Spencer, 13, 10q26.3 deletion, asthma, allergies

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