Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Cindi- Ok, understanding the C-1 joint and C-2 joint in some cases have been compromised to save a persons life, yeahhhh, no: nothing that would jar the head and upper neck region. I can play golf if I walk the course but as soon as I hit the first good hole with the cart, I start to feel differt. By the fifth, I need a Long Island Ice Tea for me to for go the discomfort. (Note that is not my remedy for Chiari pain) I can ride a bike but not on a mountain, I can teach but not do... .... U have to learn to be happy to be alive, to learn to serve a Chiari. Dr. B @ TCI helped me have two wonderful children, not easy I may say! As many, I have lived with in rules, and they work IF THEY ARE RESPECTED! Bea Sent from my Verizon Wireless BlackBerry ACTIVITIES ??? Just wondering what each of you might have been told about how soon you could return to normal activities .Also about sports and amusement rides once you were decompressed ??? I know each person will be different , but I'd like a general idea and what each person might have been told ....for both children and adults .Thanks in advance !!! Cindi in Pa . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 From what I was told amusement rides should be out after decompression. Nothing with G-Force. NO ROLLERCOASTERS! You might get away with the merry-go-round but my NS wasn't that specific. As for activities, I was told I could return to my normal activities at 16 weeks post op - swimming, aquabics, yoga (modified), even driving. But it really depends on which activities. I wouldn't play football or rugby! I was told I can ride my motorcycle next summer (1 year post-op) but no racing and no crashing (hoping I never ever crash regardless). I was walking 5 minutes at a time from day 3 post op 3 to 4 times a day, then gradually up to 1.5 hours daily over the next couple months. Walking is one of the best exercises for CSF flow and recovery, so my NS told me anyway! It's very dependent on you personally as well. I know I can't go back to high-impact aerobics or roller blading (for fear of falling) but I feel pretty much okay with the rest of my activity level. Cassandra Ontario, Canada http://cassandraelvish.blogspot.com/ Around here, however, we don't look backwards for very long. We keep moving forward, opening up new doors and doing new things, because we're curious... and curiosity keeps leading us down new paths. Walt Disney ________________________________ To: Sent: Mon, February 14, 2011 6:48:11 PM Subject: ACTIVITIES ??? Just wondering what each of you might have been told about how soon you could return to normal activities .Also about sports and amusement rides once you were decompressed ??? I know each person will be different , but I'd like a general idea and what each person might have been told ....for both children and adults .Thanks in advance !!! Cindi in Pa . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 ACTIVITIES ??? Cindi,hi.. That's really a pretty tough, if not impossible question to answer in a way that would be helpful to you. To start with, one must define " normal " . I firmly believe that a Chiari patient needs to establish a " new normal " . A level of activity that is a satisfying life but also limits the affects of chiari. This can take time and trial and error to accomplish. And this is something that depends GREATLY on the indivifual involved. I was able to comtinue playing competitive tennis ( with some modificatins to my game) and won! <g> I gave up horse back riding, etc.... One must evaluate the individual sport and what the risks are to the Chiari patient. I have not gone on an amusement ride and I grew up at the shore where amusement rides are a way of life. The vast majority of them are simply too risky for the Chiari person. In the case of rides such as roller coasters, there is quite a bit of evidence that they are too risky for anyone! <g> The " guidelines " given to the post decompression patient can differ greatly from patient to patient and doctor to doctor. One must often make some decisions oneself based on an understanding of what things CAN be detrimental to the person. Then one needs to weigh the risks/rewards. Sorry this is so vague...but there is a HUGE variance from one chiari patient to another... COntinuing to learn AMAP about chiari is a " good thing " ... Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling pretty good on NO meds in Bethlehem,Pa > Just wondering what each of you might have been told about how soon you > could return to normal activities .Also about sports and amusement rides > once you were decompressed ??? I know each person will be different , but > I'd like a general idea and what each person might have been told ....for > both children and adults .Thanks in advance !!! > > > Cindi in Pa . > > > Quote Link to comment Share on other sites More sharing options...
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