Guest guest Posted November 20, 2010 Report Share Posted November 20, 2010 It is not uncommon for symptoms to return after decompression, as there is no cure for Chiari malformation. Your neurosurgeon may tell you that your MRI's look good, even though you are having symptoms. Your doctor might also want to check your CSF pressure. Don't be shy about calling you neurosurgeon back and telling him that your pain is so excruciating that you need something to be done now. The Thanksgiving holiday coming up might be why you won't see him until 12/1. Best wishes! Barbara In a message dated 11/20/2010 10:46:47 A.M. Eastern Standard Time, pebbles2125@... writes: Ok I had the chiari surgery nov of 2009 and a couple weeks ago I started getting really bad headaches again sharp and thumping ones. Everyday and some are worse than others like today I was woke up at 3am hurting so bad I was shaking so I took my med and it hasn't stopped and now my eyelids are swollen. My script for my mri should arrive today or monday from my neuro dr. The ringing in my ears and runny nose has started up again also so my questions are is it possible for my brain to descend again and could I have fluid built up? I am in a lot of pain and I had talked to my dr thurs and they said we will order the mri and then u come into the office dec 1. I am just so confused idk if I can wait that long I know if I go to the er I will just be given iv meds and sent home that's not what I want. So I am just going to wait until the mri. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2011 Report Share Posted November 1, 2011 Dear , Has he been checked for syringomyelia? Has he had decompression surgery? Does he have a neurosurgeon who specializes in these disorders? This is important information to know to start with. I hope we can help you here! Barbara Sent from my iPhone > Hi my name is my husband has been told he had Chairi in 2007 ever since we have been going to dr. He has had c3 and c 4 fussed together in April 2011. We were also told that he has Epilepsy. Just recently he has totally lost all feeling in his right side from head to toe. Also we were told he has nerve damage that is not fixable. we were also told that now he has to have 6 more discs in spine done but the dr appt is not til Dec. any one have any ideas on what to do > > Quote Link to comment Share on other sites More sharing options...
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