Re: Digest Number 1757/Attn: Susie Sedlock

[Guest guest]

--- In low dose naltrexone , MICHAEL ALLEN <msallen1984@s...>

wrote:

>

> Hi,

>

> I just discovered this group via a friend with CFS who has an autist

child. What kinds of experiences have people with CFS had with LDN? I've been

sick for 14 years. The first 1 1/2 or so years I took LDN and also mega vitamin

drips.That was in 1991-92. I very slowly got better and was in good shape for

a year. The doc who gave me LDN said that was why I got better; the doc who gave

me the drips said the drips made me better. I continued to work all that time

Moved from nyc to San Francisco, thinking it would be better for my health. It

wasn't. Relapsed in late 1993 and I've been sick ever since and on disability.

Tried LDN again about ten year ago but didn''t see any improvement. But now I'm

thinking about it again for the obvious reason that nothing else has worked.

>

> My primary symptoms are: terrible non-restorative sleep (which only

started five years ago); cognitive problems, which can take about a a half

dozen different forms; low energy to no energy. I used to have the bad

'flu-like' symptoms but that's rare now unless I over do it; and I had terrible

food intolerances (passing out after meals!) which are now under control; also,

I used to have bad energy crashes where in the span of a few minutes it felt

like the mitochondrias in all my cells shut down and I'd go, literally, into a

coma-like state for an hour or two, once or twice a day. That seems behind me

after almost a year on zithromax (I was chasing down a possible Lyme infection).

>

> Don't know if it's relevant, but I've an autistic cousin -- the classical

kind, i.e., autistic from birth.

>

> thanks in advance for any responses.

>

> michael

>

========

,

I will let Susie answer you on this as I have MS but Susie has CFS and is one of

Dr. Bihari's patients. If you haven't read the LDN website then please do so

and on that site read the Further Q and A page as it has some good info. I

don't know if Susie's around or away for the Christmas holidays but she'll

eventually see this.

LDN website

http://www.low dose naltrexone.org