Guest guest Posted October 25, 1998 Report Share Posted October 25, 1998 Jeanie- I appreciated your point of view and loved what you said about not letting CHARGE win. I agree and try to find a balance between my " normal " stuff and my CHARGE stuff. Sometimes I have to force myself to continue with the big group activities with my friends. They have all been an outstanding source of support, but I find it easier to handle emotionally when we do things one-on-one. You sound very solid and I'm sure that will continue to serve you well as you journey thru " CHARGEland " . Michele mom to Aubrie (10.5 mos) CHargE and (7 yrs) IL westml@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 Congratulations! you did a pretty fine job. It is amasing to me to see how you all cope. I know how you feel and I HAVE BEEN THERE !! but all my support !! Love JANA LOUW > coping > > > > Michele > > I've always wondered if my best friend's daughter who is 1 month > younger > than Caitlyn (but was talking and walking before my kid could even > roll > over) would accept Caitlyn when they were older. And you know what, > Caitlyn won't accept her. Caitlyn screams every time she sees this > child now for the past 9 mos. even though they've been playing > together > for 2 1/2 yrs. We've talked to behaviorists and we're trying to work > through it, but this other girl wants so bad to play with my kid but > Caitlyn will have no parts of it. > > My suggestion is to not cut yourself off completely to your friends > with > " typical " children. For one thing, I've used my friend as a guide, > because I take my cues from Caitlyn and she never gives me any cues, I > > use my friend as a " typical role model " and it's helped. But I do > limit > our get togethers to what I can take. Besides, if you surround > yourself > with all special needs families, when you're ready to deal with your > other friends again, they may not be there for you. So take it on > slowly, what you can handle. > > I remember Caitlyn's first year, I couldn't even go to the mall > without > crying. Watching mothers feed their babies from their breast or > bottle > with no tubes (while my kid was at home with a babysitter too ill to > go > out). Anyway, I always ramble, sorry. > > Jeanne > > > > ---------------------------------------------------------------------- > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 1998 Report Share Posted October 26, 1998 I really appreciate the comments about coping. I think we're all in the same boat. That is why this list becomes so much a part of our lives, and why getting together at conferences and meetings helps so much. A nice thing about the CHARGE conferences is that when your child pukes or falls, or is tube fed, or whatever, nobody looks at you like you're from a different planet. Tim Hartshorne (father of ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 1998 Report Share Posted October 27, 1998 > nobody looks at you like you're from > a different planet. > Do you guys ever feel like this without reason? I have noticed that I am less receptive to strangers talking to Aubrie in public than I was with . I kind of turn away and try to limit the conversation. With , I was so thrilled with him that I warmly welcomed strangers' comments. Now that I'm aware of this reaction, I will try to change it. Aubrie's really enjoying strangers now too. She used to just look at them. Now she looks at me for approval first, then gives them a beautiful smile. nobody looks at you like you're from a different planet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1998 Report Share Posted October 28, 1998 Jackie, 15 minutes talking about cleaning a bathroom.. I'm lucky if I can find 15 minutes to CLEAN the bathrooms !! Having with his hearing and medical probs and Ken with his LDs sure makes life interesting around here. So far I have had three meetings at school for .. two for Ken and a couple more coming.. A husband that may end up back on the road again ( only home on weekends if we're lucky) Anyway.. I borrowed this from a friend on another list, thought it was appropriate: Some houses try to hide the fact That children shelter there; Ours boasts of it quite openly The signs are everywhere. For smears are on the windows Little smudges on the doors; I should appologize I guess For toy's strewn on the floor. But I sat down with the children And we played and laughed and read; And if the doorbell doesn't shine Their eye's will shine instead. For when at times I'm forced to choose The one job or the other; I want to be a housewife But first I'll be a mother. Sheryl Casey charge@... minnow@... Mom to Dawn 19, Ken 8 ADHD, and 6 CHARGE. Cobb California ICQ UIN# 728514 ICQ Pager http://wwp.mirabilis.com/728514 Quote Link to comment Share on other sites More sharing options...
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