Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 > > Hi > I am on my second week of ldn for fibromyalgia. I can only tolerate 2 mg liquid. > Even this is causing me to feel quite sickly. Waking up extremely tired and wanting to s > sleep all day. Plus some tummy/nausea feelings. > Is this normal, should I stick with it. I tried 3 mg one night but nearly wiped me out. > I am also taking some elavil(small amount ) for depression. Could this be interacting w > with the ldn. > > Many thanks for your support > > Cathal > ====== Stay at 2mg for awhile. These symptoms are not unusual...they will fade...these symptoms are a good indication that the LDN is bringing up your endorphins. As soon as the symptoms die down up to 2.5mg or 3.0mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hi Cathal, I experienced similar symptoms which unfortunately became worse not better over time until I eventually had to stop.I had tried 3mg,4.5mg then finally 1.5 mg in water.I hung in hoping the symptoms would settle.In hindsight I hung in for too long because I was desperate and honestly believed things would improve but alas,that was not the case. My doctor is still keen for me to resume again at a lower dose but I have been off it now for almost 2 weeks and altho I am improving every day,I am still not yet back to where I was when I started. It is with enormous sadness that I suspect I have to admit I am unable to tolerate LDN. I am envious of those who have had such success with it - you are very lucky people.I am so glad it has been able to help you all. Treveen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 > > Hi Cathal, > I experienced similar symptoms which unfortunately became worse not better > over time until I eventually had to stop.I had tried 3mg,4.5mg then finally > 1.5 mg in water.I hung in hoping the symptoms would settle.In hindsight I > hung in for too long because I was desperate and honestly believed things > would improve but alas,that was not the case. > My doctor is still keen for me to resume again at a lower dose but I have > been off it now for almost 2 weeks and altho I am improving every day,I am > still not yet back to where I was when I started. > It is with enormous sadness that I suspect I have to admit I am unable to > tolerate LDN. > I am envious of those who have had such success with it - you are very lucky > people.I am so glad it has been able to help you all. > Treveen > ======== Treveen refresh my memory...are you the one who took LDN for chemical sensitivities? You don't have MS or other autoimmune disease? You were doing an experiment to see if LDN would help your chemical sensitivities? If you are the one, maybe chemical sensitivities is not an autoimmune response. You'd be the first person I know of to try LDN for chemical sensitivities. I'm sorry LDN couldn't help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hi Treveen, I just wanted to butt in and say hugs. I'm usually the one who can't tolerate medications. Like the crab drugs but in hindsight maybe that was for the best. I am sure there will be newer and better treatments to come. My neuro. is presently doing a study on a pill. Don't give up okay! I really believe things happen for a reason. Take Care > > It is with enormous sadness that I suspect I have to admit I am unable to > tolerate LDN. > I am envious of those who have had such success with it - you are very lucky > people.I am so glad it has been able to help you all. > Treveen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Hi , Thanks for your response. I have CFS/MCS(multilpe chemical sensitivities) but have been that way now for over 40 years. The chemical sensitivities makes it almost impossible to treat as I cannot tolerate the medications that would normally help solve the problem,including supplements,pain killers etc. It would appear my problems started after Epstein Barr as a child and the immune system has been damaged as a result of that.It is definitely an immune problem but I am not sure you would classify it as an auto immune disease as such.I see it more as an immune system that has been " damaged " that has to recover back to operating in a normal healthy way. The LDN makes so much sense to me but it is my problem that is stopping me from tolerating it yet I need to be able to take it to overcome my problem.So round we go again! Unfortunately I am very used to hitting brick walls with regard to my treatment but I have come so far and learnt so much .It is just unbelievably frustrating watching other people respond to stuff which I cannot cope with but I guess that is the story of my life. Thank you to everyone who has responded to my queries. I appreciate all the input I received and have been inspired by some of the stories I have read. I wish you all the best of luck for the future and hope LDN proves to be the miracle I believe it can be for so many people. Treveen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 > > > > > Hi , > Thanks for your response. > I have CFS/MCS(multilpe chemical sensitivities) but have been that way now > for over 40 years. > The chemical sensitivities makes it almost impossible to treat as I cannot > tolerate the medications that would normally help solve the > problem,including supplements,pain killers etc. > It would appear my problems started after Epstein Barr as a child and the > immune system has been damaged as a result of that.It is definitely an > immune problem but I am not sure you would classify it as an auto immune > disease as such.I see it more as an immune system that has been " damaged " > that has to recover back to operating in a normal healthy way. > The LDN makes so much sense to me but it is my problem that is stopping me > from tolerating it yet I need to be able to take it to overcome my > problem.So round we go again! > Unfortunately I am very used to hitting brick walls with regard to my > treatment but I have come so far and learnt so much .It is just unbelievably > frustrating watching other people respond to stuff which I cannot cope with > but I guess that is the story of my life. > Thank you to everyone who has responded to my queries. > I appreciate all the input I received and have been inspired by some of the > stories I have read. > I wish you all the best of luck for the future and hope LDN proves to be the > miracle I believe it can be for so many people. > Treveen > ======== Treveen, Let me make a suggestion. You need LDN in liquid form made from Pure Naltrexone Powder(PNP)...not the 50mg naltrexone pills or the LDN capsules as they all have fillers. The PNP has no filler. You would be able to adjust dose as you like. Start with .25mg for 1 month and then up to .50mg for 3 months and then to .75mg for 4 months and gradually work your way up. You may need to stay on .25mg for 6 months...whatever it takes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 Hi , I was already using the pure powder dissolved in water.Initially started with caps but went to liquid/powder form when it became obvious I was having problems and wanted to eliminate as many variables as poss. Am still improving now I am off it - actually did some Xmas shopping today,a huge first for a long time,a major effort but I did it. May still resume on infinitisimal doses (probably by the dropper) but am not prepared to resume unless it is testing good on machines like Mora,LISTEN and kinesthiology. At this stage it def looks like I am unable to tolerate even small doses of the pure powder but I have not ruled out trying it again by any means,my poor old body just needs a break to get back to where it was before I have another go. Thanks Treveen Quote Link to comment Share on other sites More sharing options...
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