Re: Feeling bad on Ldn is this normal

[Guest guest]

>

> Hi

> I am on my second week of ldn for fibromyalgia. I can only tolerate 2 mg

liquid.

> Even this is causing me to feel quite sickly. Waking up extremely tired and

wanting to s

> sleep all day. Plus some tummy/nausea feelings.

> Is this normal, should I stick with it. I tried 3 mg one night but nearly

wiped me out.

> I am also taking some elavil(small amount ) for depression. Could this be

interacting w

> with the ldn.

>

> Many thanks for your support

>

> Cathal

>

======

Stay at 2mg for awhile. These symptoms are not unusual...they will fade...these

symptoms are a good indication that the LDN is bringing up your endorphins. As

soon as the symptoms die down up to 2.5mg or 3.0mg.

[Guest guest]

Hi Cathal,

I experienced similar symptoms which unfortunately became worse not better

over time until I eventually had to stop.I had tried 3mg,4.5mg then finally

1.5 mg in water.I hung in hoping the symptoms would settle.In hindsight I

hung in for too long because I was desperate and honestly believed things

would improve but alas,that was not the case.

My doctor is still keen for me to resume again at a lower dose but I have

been off it now for almost 2 weeks and altho I am improving every day,I am

still not yet back to where I was when I started.

It is with enormous sadness that I suspect I have to admit I am unable to

tolerate LDN.

I am envious of those who have had such success with it - you are very lucky

people.I am so glad it has been able to help you all.

Treveen

[Guest guest]

>

> Hi Cathal,

> I experienced similar symptoms which unfortunately became worse not better

> over time until I eventually had to stop.I had tried 3mg,4.5mg then finally

> 1.5 mg in water.I hung in hoping the symptoms would settle.In hindsight I

> hung in for too long because I was desperate and honestly believed things

> would improve but alas,that was not the case.

> My doctor is still keen for me to resume again at a lower dose but I have

> been off it now for almost 2 weeks and altho I am improving every day,I am

> still not yet back to where I was when I started.

> It is with enormous sadness that I suspect I have to admit I am unable to

> tolerate LDN.

> I am envious of those who have had such success with it - you are very lucky

> people.I am so glad it has been able to help you all.

> Treveen

>

========

Treveen refresh my memory...are you the one who took LDN for chemical

sensitivities? You don't have MS or other autoimmune disease? You were doing

an experiment to see if LDN would help your chemical sensitivities? If you are

the one, maybe chemical sensitivities is not an autoimmune response. You'd be

the first person I know of to try LDN for chemical sensitivities. I'm sorry LDN

couldn't help.

[Guest guest]

Hi Treveen, I just wanted to butt in and say hugs. I'm usually the

one who can't tolerate medications. Like the crab drugs but in

hindsight maybe that was for the best. I am sure there will be newer

and better treatments to come. My neuro. is presently doing a study on

a pill.

Don't give up okay! I really believe things happen for a reason.

Take Care

> > It is with enormous sadness that I suspect I have to admit I am

unable to

> tolerate LDN.

> I am envious of those who have had such success with it - you are

very lucky

> people.I am so glad it has been able to help you all.

> Treveen

>

[Guest guest]

Hi ,

Thanks for your response.

I have CFS/MCS(multilpe chemical sensitivities) but have been that way now

for over 40 years.

The chemical sensitivities makes it almost impossible to treat as I cannot

tolerate the medications that would normally help solve the

problem,including supplements,pain killers etc.

It would appear my problems started after Epstein Barr as a child and the

immune system has been damaged as a result of that.It is definitely an

immune problem but I am not sure you would classify it as an auto immune

disease as such.I see it more as an immune system that has been " damaged "

that has to recover back to operating in a normal healthy way.

The LDN makes so much sense to me but it is my problem that is stopping me

from tolerating it yet I need to be able to take it to overcome my

problem.So round we go again!

Unfortunately I am very used to hitting brick walls with regard to my

treatment but I have come so far and learnt so much .It is just unbelievably

frustrating watching other people respond to stuff which I cannot cope with

but I guess that is the story of my life.

Thank you to everyone who has responded to my queries.

I appreciate all the input I received and have been inspired by some of the

stories I have read.

I wish you all the best of luck for the future and hope LDN proves to be the

miracle I believe it can be for so many people.

Treveen

[Guest guest]

>

>

>

>

> Hi ,

> Thanks for your response.

> I have CFS/MCS(multilpe chemical sensitivities) but have been that way now

> for over 40 years.

> The chemical sensitivities makes it almost impossible to treat as I cannot

> tolerate the medications that would normally help solve the

> problem,including supplements,pain killers etc.

> It would appear my problems started after Epstein Barr as a child and the

> immune system has been damaged as a result of that.It is definitely an

> immune problem but I am not sure you would classify it as an auto immune

> disease as such.I see it more as an immune system that has been " damaged "

> that has to recover back to operating in a normal healthy way.

> The LDN makes so much sense to me but it is my problem that is stopping me

> from tolerating it yet I need to be able to take it to overcome my

> problem.So round we go again!

> Unfortunately I am very used to hitting brick walls with regard to my

> treatment but I have come so far and learnt so much .It is just unbelievably

> frustrating watching other people respond to stuff which I cannot cope with

> but I guess that is the story of my life.

> Thank you to everyone who has responded to my queries.

> I appreciate all the input I received and have been inspired by some of the

> stories I have read.

> I wish you all the best of luck for the future and hope LDN proves to be the

> miracle I believe it can be for so many people.

> Treveen

>

========

Treveen,

Let me make a suggestion. You need LDN in liquid form made from Pure Naltrexone

Powder(PNP)...not the 50mg naltrexone pills or the LDN capsules as they all have

fillers. The PNP has no filler. You would be able to adjust dose as you like.

Start with .25mg for 1 month and then up to .50mg for 3 months and then to .75mg

for 4 months and gradually work your way up. You may need to stay on .25mg for

6 months...whatever it takes.

[Guest guest]

Hi ,

I was already using the pure powder dissolved in water.Initially started

with caps but went to liquid/powder form when it became obvious I was having

problems and wanted to eliminate as many variables as poss.

Am still improving now I am off it - actually did some Xmas shopping today,a

huge first for a long time,a major effort but I did it.

May still resume on infinitisimal doses (probably by the dropper) but am not

prepared to resume unless it is testing good on machines like Mora,LISTEN

and kinesthiology.

At this stage it def looks like I am unable to tolerate even small doses of

the pure powder but I have not ruled out trying it again by any means,my

poor old body just needs a break to get back to where it was before I have

another go.

Thanks

Treveen