Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 In a message dated 3/16/01 6:21:58 AM, kimsak2000@... writes: << I have been having a lot of pain in my right side, and sometimes my left side. I was thinking that it was a gastro intestinal problem. I have an appointment to go to a gastro MD. I was wondering if maybe it could be from the Lyme? >> YES!!!!!! Does not HAVE to be lyme but that is where I would bet my money!!!! GET A LLMD! Need help? let me know. I can help sue in nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hi Kim, I would call my OB/GYN immediately! Do they know you have Lyme? I have to go to mine he knows I have Lyme but need a checkup too FrancineNJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Kim, Could the pain in your sides be rib pain? Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hi Rita, Its to low to be rib pain. I know what you mean though because I have rib pain to. Take care, Kim S. "AtTheLake." <AtTheLake@...> wrote: Kim, Could the pain in your sides be rib pain? RitaWelcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2003 Report Share Posted October 23, 2003 Do you mean cold like temperature? Or like you have a cold? Jan > Since my doctor has change the dosage of my medication, I have been > experiencing a strange feeling in my throat. Just every once in a > while, I get a cold feeling in my throat and then it goes away..it > only last about 3 or 4 seconds but it's rather strange. Has anyone > experience anything like that? VERY STRANGE INDEED! Beside that, I > feel fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 don't let the doc change your dosage based on TSH--just doesn't work. You might need more meds. Gracia > Since my doctor has change the dosage of my medication, I have been > experiencing a strange feeling in my throat. Just every once in a > while, I get a cold feeling in my throat and then it goes away..it > only last about 3 or 4 seconds but it's rather strange. Has anyone > experience anything like that? VERY STRANGE INDEED! Beside that, I > feel fine. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 What medication did your doctor change? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 No, just a quick cold feeling in my neck that only last a few seconds. SOUNDS STRANGE doesn't it..My temp isn't cold and I don't feel cold all over...just a quick cold feeling in my neck. > > Since my doctor has change the dosage of my medication, I have been > > experiencing a strange feeling in my throat. Just every once in a > > while, I get a cold feeling in my throat and then it goes away..it > > only last about 3 or 4 seconds but it's rather strange. Has anyone > > experience anything like that? VERY STRANGE INDEED! Beside that, > I > > feel fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 Nope, never had that. I have a strep-throat-y feeling there most of the time. Jan > No, just a quick cold feeling in my neck that only last a few > seconds. SOUNDS STRANGE doesn't it..My temp isn't cold and I don't > feel cold all over...just a quick cold feeling in my neck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Kati- To me, it sounds like I have cotton in my ear. I can hear, but the softer sounds are muffled. I wonder if it sounds the same to everyone else with C-Toma. Another thing I have noticed is that sometimes I have trouble telling where a sound is coming from. It always sounds like it is on the side where my hearing is better. Good luck with your report. le ---------- >From: kati1212002 <kati1212002@...> >cholesteatoma >Subject: I have a question? >Date: Sun, Apr 25, 2004, 12:04 PM > > Hi- > I have to do a report for one of my classes and it is going to be > on Cholesteatoma, my teacher would like me to explain how it sounds > when someone talks in my left year (the one I had C-toma in). The > problem is that I am not sure how to explain it. Could anyone help me? > > Kati > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2004 Report Share Posted May 10, 2004 > Hi everyone, I am back from my trip to Tulsa, and it was a long one > for me. I am feeling so awful, I will be glad to get to bed early > tonight. Since I got home, I am having shaking in my right hand. I > go to pick up a glass, and my hand starts shaking, has anyone ever > experienced this symptom? Thanks, Tawny Tawny, I used to have shakes in both hands after driving...I wouldn't be able to pick up a pen or do anything. It did go away after a while but it was very disconcerting when it was happening. God bless, Althea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 I've been symptom free for 1 year. I take tons of supplements and am not going to wait until it trys to come back, I am going to keep my body in fighting shape forever. I beleive this is key, you must boost the immune system. It is your first line of defense and will help you with so many things. If you keep just taking ABX then that does nothting to support your ravaged war torn body. INstead of waiting for the next attack, get pro-active now and build your body up. iamtheincredibleman wrote: > I am 27 years old right now. I got this disease when I was 22 in the > year 2000. The doctors caught mine early after about six months. They > only put me on antibiotics for two months. I still had symptoms, so I > ordered medicine online. I took medicine for about 8 months. After > that, I was fine for about 2 years. No symptoms. It all of of sudden > came back. But you know something, this time it was not as strong as > before. I started taking medicine again. I have been taking it for > about a year now, and I am almost back to being 100%. My question is > this. Is this just a never ending cycle or can I knock this stuff > completely away? Also, as I get older, is this disease going to get > worse? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 Yes, , A agree with this 100% - that is what I do, and I NEVER will go back to living the way I did before I had Lyme, by not eating right and not taking care of my body and not exercising and not having the right attitude, etc. Glen Wolfsen in New Jersey. At 09:24 PM 5/29/2005 -0700, you wrote: >I've been symptom free for 1 year. I take tons of supplements and am not >going to wait until it trys to come back, I am going to keep my body >in fighting shape forever. I beleive this is key, you must boost the >immune system. It is your first line of defense and will help you with >so many things. If you keep just taking ABX then that does nothting to >support your ravaged war torn body. INstead of waiting for the next >attack, get pro-active now and build your body up. > >iamtheincredibleman wrote: > > I am 27 years old right now. I got this disease when I was 22 in the > > year 2000. The doctors caught mine early after about six months. They > > only put me on antibiotics for two months. I still had symptoms, so I > > ordered medicine online. I took medicine for about 8 months. After > > that, I was fine for about 2 years. No symptoms. It all of of sudden > > came back. But you know something, this time it was not as strong as > > before. I started taking medicine again. I have been taking it for > > about a year now, and I am almost back to being 100%. My question is > > this. Is this just a never ending cycle or can I knock this stuff > > completely away? Also, as I get older, is this disease going to get > > worse? > > > > > >Questions and/or comments can be directed to the list owner >at -Owner > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 Hi Glenn, How are you doing? GOod I hope. It is too bad that most people have to get sick before they appreciate health. We take way to many things for granted. I work alot with people who have MS, and so much is taken from them, life becomes a real struggle. I know lyme can be that way also, we must live everyday to the fullest, and take care of the only body we have. My one friend just sold her house so she could buy all the supplements she wanted and not be worried about the cost. She is living in a motorhome at her parents house. In the last 4 months she has gone crazy with body cleanses, chelation, glyconutrients, body work, and she is eating a totally raw vegartarian diet. Her reward for all this is she is standing up from her wheel chair for the first time in 1 year and walking 20 steps. She was dx with MS, but now they say she has Lyme. She does not care what they want to call it,, she has left the main stream meds behind and is going for it with all she's got and doing great. Her attitude is really great also. Most people are not even willing to give up their donuts and coffee, let alone their house! Glen Wolfsen wrote: > Yes, , A agree with this 100% - that is what I do, and I NEVER will go > back to living the way I did before I had Lyme, by not eating right and not > taking care of my body and not exercising and not having the right > attitude, etc. Glen Wolfsen in New Jersey. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 My lyme docs have told me, the goal is remission, but it can come back with stress, illness, car wreck, etc..........The bugs are always there waiting because we have cysts of the Bb that can hatch whenever. iamtheincredibleman <tviewer45@...> wrote: I am 27 years old right now. I got this disease when I was 22 in the year 2000. The doctors caught mine early after about six months. They only put me on antibiotics for two months. I still had symptoms, so I ordered medicine online. I took medicine for about 8 months. After that, I was fine for about 2 years. No symptoms. It all of of sudden came back. But you know something, this time it was not as strong as before. I started taking medicine again. I have been taking it for about a year now, and I am almost back to being 100%. My question is this. Is this just a never ending cycle or can I knock this stuff completely away? Also, as I get older, is this disease going to get worse? Questions and/or comments can be directed to the list owner at -Owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 Your question is a good one! I do not believe anyone in the world knows the answer to that question. I am a 73 year old man who was infected in 1994. I put myself in remission by: eating no meat for one year eating no sweets for about a year taking massive amounts of vitamins and minerals losing 30 pounds by eating less exercising on a treadmill until my clothes were so wet it must have looked as if I just jumped out of the river I felt great probably in about 6 months. In 1998 I had one nuerological symptom of nearly passing out. In 1999 I began to feel faint just setting around the house-strange things begin to happen to me. In Sept of 2001 I could hardly walk on my left leg. My doctor diagnosed me with long term Lyme disease. He put me on amoxicilion for 21 days and we thought I was cured. Since that time I have learned a lot about Lyme disease. I had no nothing doctors who put me on iv Rochepin for 28 days. I found this Group and learned a lot. Learned about a LLMD, found one Had severe nuerological problems and no prescription seemed to work for me-perhaps the dose not enough. I tried the Rife machine which I like a lot-went off all prescription medicine and felt very well for 6 months-but then nuerological problems returned. Found a health care professional who had me take Biomune by Matol. This is a great product You can be ok with this possible alone. Began taking Cat's Claw (samento) and while on this product had my blood pressure go way too low. Had to have a pacemaker-found out that many Lyme patients have to have a pacemaker. Continue on with the Biomune, Samento and 2400 mg of Garlic. Forgot to say I began taking garlic (Kyolic) and experienced herxing after getting up to 800 MG. I have been doing very well on the Biomune, Samento (6 drops a day) and my garlic of 2400 mg per day. I walk for one hour each day and ride my bike for 5 miles frequently. I have started taking something new along with everything else. It is wormwood and cloves, I have hopes this may produce a cure for chronic Lyme disease. I currently take 12 capsules of cloves and 12 of wormwood. All my best wishes! Sidney North Brunswick, NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 True our doctor told us that too, guess I want to think positive, if my hubby is symptom free for several years it is better than where were a year ago. Lucher <lucher@...> wrote:My lyme docs have told me, the goal is remission, but it can come back with stress, illness, car wreck, etc..........The bugs are always there waiting because we have cysts of the Bb that can hatch whenever. iamtheincredibleman <tviewer45@...> wrote: I am 27 years old right now. I got this disease when I was 22 in the year 2000. The doctors caught mine early after about six months. They only put me on antibiotics for two months. I still had symptoms, so I ordered medicine online. I took medicine for about 8 months. After that, I was fine for about 2 years. No symptoms. It all of of sudden came back. But you know something, this time it was not as strong as before. I started taking medicine again. I have been taking it for about a year now, and I am almost back to being 100%. My question is this. Is this just a never ending cycle or can I knock this stuff completely away? Also, as I get older, is this disease going to get worse? Questions and/or comments can be directed to the list owner at -Owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi ANgel, Well I am known as the sugar Nazi at my church. The pastor calls me that because I told him it was wrong to be feeding all these sick church goers donuts and coffee on Sunday mornings. People just don't get it. I am able to work with a few, but people that are older and set in their ways are pretty hard to reach. The other problem is that 50 years ago you could eat donuts and coffee and be fine. Today with green harvesting, toxic air and water, pesticides, hormone and antibiotics in the foods,processed foods, perservatives, over vaccination, are immune systems are slowly being depleted. It will take a few more years, (like maybe 10) for people to start waking up and realizing they have to take some serious action with their diets and lifestyles if they want to survive. Back when I first started to get sick, I drank 2 cups of coffee in am, a six pak of pepsi during day, and some wine at nite, water never touched my lips. I had chips and brownies for snacks and frozen entree for dinner. I was never sick one day in my life, not even with the flu or a simple cold until I was 40. I used to make fun of sick people, thought they were whimps. I try to have patience with people who eat like that but if they don't listen I move on to someone who will, someone who I can actually help. I think for those of us who had to suffer we to get rather carzed about things that we are now able to see. GIna LymeAngl@... wrote: > In a message dated 05/30/2005 8:59:50 AM US Mountain Standard Time, > morningsunranch@... writes: > > > > I've been symptom free for 1 year. I take tons of supplements and am not > > going to wait until it trys to come back, I am going to keep my body > > in fighting shape forever. I beleive this is key, you must boost the > > immune system. It is your first line of defense and will help you with > > so many things. If you keep just taking ABX then that does nothting to > > support your ravaged war torn body. INstead of waiting for the next > > attack, get pro-active now and build your body up. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi ANgel, It is really sad when you reach out to help someone and they think you are nuts because you think food has power to heal. It is especially hard when it is someone you love. My friend with the MS/Lyme is shouting from the rooftops right now. She is in many MS forums and everyone is hearing about raw foods diet, cleanses and Glyconturients. SHe has been educating me on raw food, and now I realize it does not mean you have to eat raw brocoli and carrots every day. She makes the most interesting foods all without cooking, sometimes using a dehydrator for drying things like corn chips made with corn and carrots. Most of us do not have the time to go this far with eating healthy, but she is an inspiration to me to try a little harder. (sniff, sniff,) whats that cooking, oops, spaghetti, definatley not on the list of most healthy, but the one thing I will not give up. Tonite when I am not sleeping well I will curse it.Take care, LymeAngl@... wrote: > Hello morningsunranch@..., > > In reference to your comment: > > è My one friend just sold her house so she could buy all > è the supplements she wanted and not be worried about > è the cost. She is living in a motorhome at her parents > è house. In the last 4 months she has gone crazy with > è body cleanses, chelation, glyconutrients, body work, > è and she is eating a totally raw vegartarian diet. Her > è reward for all this is she is standing up from her wheel > è chair for the first time in 1 year and walking 20 steps. > è She was dx with MS, but now they say she has Lyme. > è She does not care what they want to call it,, she has > è left the main stream meds behind and is going for it > è with all she's got and doing great. Her attitude is really > è great also. Most people are not even willing to give up > è their donuts and coffee, let alone their house! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 At 11:14 AM 5/30/2005 -0700, you wrote: >Hi Glenn, > >How are you doing? GOod I hope. Hi Gine: I am doing MUCH better, and in a very slow and patient process, improving a little all the time. It is now basically a process of continuing with the CS (as much a day as I think I need depending on how I feel) and preventative dose of both one homeopathic and one herbal for Lyme. The Homeopathic consists of: Ledum pal. 200c; Lyme Nosode 12x, 30x, 60x; Lyme D Nosode 30x, 60x, 200x; Shark Cartilage 12x & Belladonna 12X, etc. - and the Herbal is Organis Dipsacus Sylvestis. This in combination with all raw vegetables, fruit, and rice protein, and raw almond butter or raw tabini, lots of raw almonds, B12, pure virgin(cold pressed) olive oil, apple cider vinegar, flaxseed oil and water basically. For bread it is either brown rice bread of Ezekiel bread. I also do LOTS of walking every day (no matter how I feel) and I DO NOT entertain negative thoughts and I depend totally (as much as my ego lets me) on the loving and healing energies of the Cosmos. I also try to love other people and am now getting back into playing the piano and musical theatre and giving private piano lessons, as well as continuing to write lots of poetry and working on getting more published. I am so happy to hear from YOU and ALWAYS love reading what you have to write. >It is too bad that most people have to >get sick before they appreciate health. I agree now very much with this - I know I LEARNED this quickly and want to ADVISE everyone to life fully and honor their bodies, hearts, minds and spirit - and that we are a UNITY OF THESE CENTERS AND WE SHOULD NOT DIVIDE OUR SELVES UP INTO PIECES! > We take way to many things for >granted. I work alot with people who have MS, and so much is taken from >them, life becomes a real struggle. I remember well how my wife slowly had all the meaningful things in her life taken away by MS (which my Dr. was quite sure was Lyme). > I know lyme can be that way also, we >must live everyday to the fullest, and take care of the only body we >have. My one friend just sold her house so she could buy all the >supplements she wanted and not be worried about the cost. She is living >in a motorhome at her parents house. In the last 4 months she has gone >crazy with body cleanses, chelation, glyconutrients, body work, and she >is eating a totally raw vegartarian diet. Her reward for all this is she >is standing up from her wheel chair for the first time in 1 year and >walking 20 steps. She was dx with MS, but now they say she has Lyme. She >does not care what they want to call it,, she has left the main stream >meds behind and is going for it with all she's got and doing great. Her >attitude is really great also. Most people are not even willing to give >up their donuts and coffee, let alone their house! RIGHT!!! Thank you and good health and happiness to you. Glen from New Jersey >Glen Wolfsen wrote: > > Yes, , A agree with this 100% - that is what I do, and I NEVER will go > > back to living the way I did before I had Lyme, by not eating right and not > > taking care of my body and not exercising and not having the right > > attitude, etc. Glen Wolfsen in New Jersey. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Hi Angel, Does it actually taste like spaghetti? I have been afraid to try it, not that it would be a great loss of money, just ruin the meal. My family is very hard to please and they will never forgive me for taking aways all of their favorite foods. They actually have gotten used to eating healthy now, but at first there was a lot of complaining. I will check it out. I actually slept good last nite which is weird because the last 2 times I had spaghetti I felt bad, I actually thought maybe it was the sauce not the noodles?? who knows. LymeAngl@... wrote: > Hello morningsunranch@..., > > In reference to your comment: > > è Most of us do not have the time to go this far with > è eating healthy, but she is an inspiration to me to try a > è little harder. (sniff, sniff,) whats that cooking, oops, > è spaghetti, definatley not on the list of most healthy, > è but the one thing I will not give up. Tonite when I am > è not sleeping well I will curse it.Take care, > > ********* there are many places to buy spaghetti (GLUTEN FREE) which is > very good.....you can go to www.celiac.com and find some wonderful > products..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Hi Glen, Glad to hear the steps you are taking are toward health, that is what is most important, not how fast we get there. Someone else I was just talking to is taking LEdum, she has heard good things from others about it, haven;t heard much talk about it from anyone else. One thing I wanted to ask is do you soak your almonds. I was just taught about this something about the enzymes not being released, and therefore hard to digest without soaking them. I started doing it and I like them alot better that way. That is great you are getting back into the piano and music, that can be so healing. ALso you write great poetry so keep that up, it can really bless alot of people and yourself. Sounds like overall you are better then the first time I talked with you. Be well, God BLess, Glen Wolfsen wrote: > At 11:14 AM 5/30/2005 -0700, you wrote: > >Hi Glenn, > > > >How are you doing? GOod I hope. > > Hi Gine: > I am doing MUCH better, and in a very slow and patient process, > improving a little all the time. It is now basically a process of > continuing with the CS (as much a day as I think I need depending on how I > feel) and preventative dose of both one homeopathic and one herbal for > Lyme. The Homeopathic consists of: Ledum pal. 200c; Lyme Nosode 12x, 30x, > 60x; Lyme D Nosode 30x, 60x, 200x; Shark Cartilage 12x & Belladonna 12X, > etc. - and the Herbal is Organis Dipsacus Sylvestis. This in combination > with all raw vegetables, fruit, and rice protein, and raw almond butter or > raw tabini, lots of raw almonds, B12, pure virgin(cold pressed) olive oil, > apple cider vinegar, flaxseed oil and water basically. For bread it is > either brown rice bread of Ezekiel bread. I also do LOTS of walking every > day (no matter how I feel) and I DO NOT entertain negative thoughts and I > depend totally (as much as my ego lets me) on the loving and healing > energies of the Cosmos. I also try to love other people and am now getting > back into playing the piano and musical theatre and giving private piano > lessons, as well as continuing to write lots of poetry and working on > getting more published. I am so happy to hear from YOU and ALWAYS love > reading what you have to write. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Thanks : I just call my Dr. about the almonds . . according to him if you are just eating them raw as I do, it doesn't make any difference, do it either way - BUT if you are making your own almond milk, then soak them over night to release the enzymes before making the milk. I also know Ledum has been helpful. I could also be taking the homeopathic/herbal for parasites -but I am not right now. I actually believe I am dealing mostly with protozoa/parasites now with only left over damage from Lyme. Thank you again for writing. Glen from New Jerser. At 09:50 PM 6/1/2005 -0700, you wrote: >Hi Glen, > >Glad to hear the steps you are taking are toward health, that is what >is most important, not how fast we get there. Someone else I was just >talking to is taking LEdum, she has heard good things from others about >it, haven;t heard much talk about it from anyone else. One thing I >wanted to ask is do you soak your almonds. I was just taught about this >something about the enzymes not being released, and therefore hard to >digest without soaking them. I started doing it and I like them alot >better that way. That is great you are getting back into the piano and >music, that can be so healing. ALso you write great poetry so keep that >up, it can really bless alot of people and yourself. Sounds like overall >you are better then the first time I talked with you. Be well, God >BLess, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Hi Everyone, I just read s post on which fillers to use. I noticed that she wrote her pharmacist is using pure naltrexone. What happens if the pharmacy is using an already made up naltrexone tablet? Would it not be weaker than pure naltrexone being compounded? You would be working with a tablet thats already been made up with fillers, so weight would be the same but it would contain more filler. I never did ask this question. I was more worried about having the right fillers. They did use calcium carbonate but changed to advicel when I asked. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 hello les, i gt mine by the end off the week with advcel as a filler know don't go changing untill i try it --- <pomsaregreat@...> wrote: --------------------------------- Hi Everyone, I just read s post on which fillers to use. I noticed that she wrote her pharmacist is using pure naltrexone. What happens if the pharmacy is using an already made up naltrexone tablet? Would it not be weaker than pure naltrexone being compounded? You would be working with a tablet thats already been made up with fillers, so weight would be the same but it would contain more filler. I never did ask this question. I was more worried about having the right fillers. They did use calcium carbonate but changed to advicel when I asked. Thanks, Quote Link to comment Share on other sites More sharing options...
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