Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 WOW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Oh WOW......... I hope your neuro will become an LDN advocate after witnessing this amazing improvement and I hope you continue to improve and never ever get back to your former state! Congratulations! Nola [low dose naltrexone] Six Months of LDN My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to Secondary Progressive MS in 2002. I have used A, C, and R of the ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and enough soly to float (Or pick up!) a battleship. All were mildly successful by the standards put forth by the companies who promote them, but I continued to go downhill. I became obese, confined to a wheelchair, and on oxygen when I started taking LDN. At the same time, I discontinued R. Improvement was not immediate, but I was not experiencing any episodes, and did begin to notice gradual improvement. I had already been doing light exercises, such as leg lifts,foot raises, and walking in a shallow pool; but I was able to gradually increase exercise, and I also began doing work in my workshop from my wheelchair. To speed this up, it has now been over five weeks since I've used my wheelchair, and for the last week, I have not even had to use a cane. I still do have numbness in my left leg, but I am able to walk without a limp. I had my six-month check-up with my neuro, two weeks ago and blew my functional composites away! My neuro was blown away, too.I feel better that I have in seven years. I don't know if improvement will continue or what, but I am overwhelmed by the results so far and cannot believe there is not serious and fervant research being done with this medication. Thanks, Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 Hi Bill, Welcome aboard! I am so glad you have had such a great response! They say it's a bonus to get existing symptom relief, that ldn's for stopping progression. Looks like you got lucky! I hope it continues! I wonder how much exercise had to do with your success with symptom relief? They say exercising creates endorphines also. Take Care > >> Improvement was not immediate, but I was not experiencing any > episodes, and did begin to notice gradual improvement. I had already > been doing light exercises, such as leg lifts,foot raises, and > walking in a shallow pool; but I was able to gradually increase > exercise, and I also began doing work in my workshop from my > wheelchair. To speed this up, it has now been over five weeks since > I've used my wheelchair, and for the last week, I have not even had > to use a cane. I still do have numbness in my left leg, but I am > able to walk without a limp. I had my six-month check-up with my > neuro, two weeks ago and blew my functional composites away! My > neuro was blown away, too. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 > > My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to > Secondary Progressive MS in 2002. I have used A, C, and R of the > ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and > enough soly to float (Or pick up!) a battleship. All were mildly > successful by the standards put forth by the companies who promote > them, but I continued to go downhill. I became obese, confined to a > wheelchair, and on oxygen when I started taking LDN. At the same > time, I discontinued R. > Improvement was not immediate, but I was not experiencing any > episodes, and did begin to notice gradual improvement. I had already > been doing light exercises, such as leg lifts,foot raises, and > walking in a shallow pool; but I was able to gradually increase > exercise, and I also began doing work in my workshop from my > wheelchair. To speed this up, it has now been over five weeks since > I've used my wheelchair, and for the last week, I have not even had > to use a cane. I still do have numbness in my left leg, but I am > able to walk without a limp. I had my six-month check-up with my > neuro, two weeks ago and blew my functional composites away! My > neuro was blown away, too. > I feel better that I have in seven years. > I don't know if improvement will continue or what, but I am > overwhelmed by the results so far and cannot believe there is not > serious and fervant research being done with this medication. > Thanks, Bill > ======= Bill, You sound like you took your well-being into your own hands and did the physical work needed to come out of that wheelchair...all the things I did and I too had great success except I was chronic progressive MS. Keep up the pool exercising as that is the best for your physical well-being. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 CONGRATULATIONS BILL!morrrelll <bmr323@...> wrote: My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to Secondary Progressive MS in 2002. I have used A, C, and R of the ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and enough soly to float (Or pick up!) a battleship. All were mildly successful by the standards put forth by the companies who promote them, but I continued to go downhill. I became obese, confined to a wheelchair, and on oxygen when I started taking LDN. At the same time, I discontinued R. Improvement was not immediate, but I was not experiencing any episodes, and did begin to notice gradual improvement. I had already been doing light exercises, such as leg lifts,foot raises, and walking in a shallow pool; but I was able to gradually increase exercise, and I also began doing work in my workshop from my wheelchair. To speed this up, it has now been over five weeks since I've used my wheelchair, and for the last week, I have not even had to use a cane. I still do have numbness in my left leg, but I am able to walk without a limp. I had my six-month check-up with my neuro, two weeks ago and blew my functional composites away! My neuro was blown away, too.I feel better that I have in seven years. I don't know if improvement will continue or what, but I am overwhelmed by the results so far and cannot believe there is not serious and fervant research being done with this medication. Thanks, Bill DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 Thanks, . I'm not sure how much the exercise has affected this success; I've been very careful not to overdo on the exercise, but I have very gradually increased it. Actually, too, I haven't been able to do as much or as regular water exercise since cold weather has arrived (I live in central Alabama.). I am going to start using the city's indoor pool after New Year's. I think your question and the many other questions out there beg for formal studies of LDN under different scenarios to try to see just how good this drug can be for many auto-immune disease sufferers. Thanks again, Bill > > Hi Bill, Welcome aboard! I am so glad you have had such a great > response! They say it's a bonus to get existing symptom relief, that > ldn's for stopping progression. Looks like you got lucky! I hope it > continues! I wonder how much exercise had to do with your success with > symptom relief? They say exercising creates endorphines also. > > Take Care > > > >> Improvement was not immediate, but I was not experiencing any > > episodes, and did begin to notice gradual improvement. I had already > > been doing light exercises, such as leg lifts,foot raises, and > > walking in a shallow pool; but I was able to gradually increase > > exercise, and I also began doing work in my workshop from my > > wheelchair. To speed this up, it has now been over five weeks since > > I've used my wheelchair, and for the last week, I have not even had > > to use a cane. I still do have numbness in my left leg, but I am > > able to walk without a limp. I had my six-month check-up with my > > neuro, two weeks ago and blew my functional composites away! My > > neuro was blown away, too. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 Thanks for sharing your story, Bill. Very inspiring. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Your welcome Bill. I love to hear stories like yours. It was just a thought about the exercise. They say that and chocolate raises endorphins. I read the book called up the creek with a paddle by a women who finally got her husband with progressive ms on ldn. She talked about how, when she saw Dr. Bihari, he told her if you feel run down ect..to eat a chocolate bar a day for 3 days and it would help boost the endorphins more. Sounds like a good trade to me :0) I am going to start exercising soon. I will start off slow like you did. I am in eastern Ontario so know what the cold weather is like. I agree 100% We do need studies. I see my neuro. next month and want to find out how I can spread the word more effectively. Or find out if there is something she can do to help. Take Care > Thanks, . I'm not sure how much the exercise has affected this > success; I've been very careful not to overdo on the exercise, but I > have very gradually increased it. Actually, too, I haven't been able > to do as much or as regular water exercise since cold weather has > arrived (I live in central Alabama.). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 --- In low dose naltrexone , " morrrelll " <bmr323@h...> wrote: > > My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to > Secondary Progressive MS in 2002. I have used A, C, and R of the > ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and > enough soly to float (Or pick up!) a battleship. All were mildly > successful by the standards put forth by the companies who promote > them, but I continued to go downhill. I became obese, confined to a > wheelchair, and on oxygen when I started taking LDN. At the same > time, I discontinued R. > Improvement was not immediate, but I was not experiencing any > episodes, and did begin to notice gradual improvement. I had already > been doing light exercises, such as leg lifts,foot raises, and > walking in a shallow pool; but I was able to gradually increase > exercise, and I also began doing work in my workshop from my > wheelchair. To speed this up, it has now been over five weeks since > I've used my wheelchair, and for the last week, I have not even had > to use a cane. I still do have numbness in my left leg, but I am > able to walk without a limp. I had my six-month check-up with my > neuro, two weeks ago and blew my functional composites away! My > neuro was blown away, too. > I feel better that I have in seven years. > I don't know if improvement will continue or what, but I am > overwhelmed by the results so far and cannot believe there is not > serious and fervant research being done with this medication. > Thanks, Bill > Hi Bill; What mg. are you on? I have been on 4.5mg. for 3 months with very little changes. In fact I am more fatigued at times. I posted today for the 2nd time w/questions re; my situation. Did you have any improvement at all in the first 3 months? I am in a wheelchair, and unable to walk now for over a yr. (broke leg, then cell infection 6 months after that). I am 55 yrs. and about the same progression as you describe. Your story is such an inspiration. I too wish you continued success. in Everett/Mukilteo, WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 > > > > My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to > > Secondary Progressive MS in 2002. I have used A, C, and R of the > > ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and > > enough soly to float (Or pick up!) a battleship. All were mildly > > successful by the standards put forth by the companies who promote > > them, but I continued to go downhill. I became obese, confined to a > > wheelchair, and on oxygen when I started taking LDN. At the same > > time, I discontinued R. > > Improvement was not immediate, but I was not experiencing any > > episodes, and did begin to notice gradual improvement. I had > already > > been doing light exercises, such as leg lifts,foot raises, and > > walking in a shallow pool; but I was able to gradually increase > > exercise, and I also began doing work in my workshop from my > > wheelchair. To speed this up, it has now been over five weeks since > > I've used my wheelchair, and for the last week, I have not even had > > to use a cane. I still do have numbness in my left leg, but I am > > able to walk without a limp. I had my six-month check-up with my > > neuro, two weeks ago and blew my functional composites away! My > > neuro was blown away, too. > > I feel better that I have in seven years. > > I don't know if improvement will continue or what, but I am > > overwhelmed by the results so far and cannot believe there is not > > serious and fervant research being done with this medication. > > Thanks, Bill > > > Hi Bill; > > What mg. are you on? I have been on 4.5mg. for 3 months with very > little changes. In fact I am more fatigued at times. I posted today > for the 2nd time w/questions re; my situation. Did you have any > improvement at all in the first 3 months? I am in a wheelchair, and > unable to walk now for over a yr. (broke leg, then cell infection 6 > months after that). I am 55 yrs. and about the same progression as > you describe. Your story is such an inspiration. I too wish you > continued success. > in Everett/Mukilteo, WA >Hi, and thanks for your reply. I am on 3mg, but I think 4.5 is more difficult for men, for some reason. I did not really notice any real improvement during the first three months, though there may have been some; it was after that, perhaps even after four months or so, that I began to realize I could do more and to " spread my wings " a bit, so to speak. Are you doing any types of exercises? Perhaps if you could discuss an exercise program with your neuro or therapist, that could help, too; just be mindful of not overdoing. , I am happy that my story is inspirational for you, and I wish YOU the same success. I have always been a very positive person, and feel that the challenges (including MS) that every person faces are character builders. If my condition reverts back tomorrow to it's worst point, there will still be many opportunities for meto give of myself to others. I try to begin each day with the knowledge that today is the very best day of my life and go from there. :-) Just do the best you can with what you've got....and give.;-) Love, and God Bless, Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 >, I visit many MS support groups on the internet- to get and give support, to get info on others' experiences, to learn of new treatments, and to share and care; that's how I learned about LDN. I am also talking with an affiliate of a major TV network about doing a program on MS and it's treatment (including LDN!). I have met a good many PWMS from Canada on the " net. " Perhaps you could interest a TV station in your area to do a story; and visit MS support groups on the net, too. I know you would be a great asset to any of them, and they would be to you, as well. Love, and God Bless, Bill > Your welcome Bill. I love to hear stories like yours. It was just a > thought about the exercise. They say that and chocolate raises > endorphins. I read the book called up the creek with a paddle by a > women who finally got her husband with progressive ms on ldn. She > talked about how, when she saw Dr. Bihari, he told her if you feel > run down ect..to eat a chocolate bar a day for 3 days and it would > help boost the endorphins more. Sounds like a good trade to me :0) > > I am going to start exercising soon. I will start off slow like you > did. I am in eastern Ontario so know what the cold weather is like. > > I agree 100% We do need studies. I see my neuro. next month and > want to find out how I can spread the word more effectively. Or find > out if there is something she can do to help. > > Take Care > > > Thanks, . I'm not sure how much the exercise has affected > this > > success; I've been very careful not to overdo on the exercise, but > I > > have very gradually increased it. Actually, too, I haven't been > able > > to do as much or as regular water exercise since cold weather has > > arrived (I live in central Alabama.). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Hi Bill, Maybe I have been following right behind you? Lol! I also visit support groups to learn and share. It makes me feel good to help others and it sure doesn't hurt to receive and share. I did think about ways to raise awareness for ldn. My neuro. was going to be my starting point. She has already admitted to me that yes the crab drugs are modest at best when I asked her. I think I have to let go of my anger in regards to the crab drugs. I feel that I have been purposely misguided at the expense of my health. I remember a good friend at the time warned me that I was just a guinea pig. I couldn't for the life of me think that doctors who are suppose to do no harm would prescribe these drugs knowing what they do. I had awful side effects and have to admitt I am abit apprehensive thinking what they can do longterm. I wish I could get my first neuro. interested. He is way up there with ms studies. He is currently doing one with stem cells. I think I would need more time before I could approach the media. I've only been on the ldn for about a month and abit. I am going to increase from 3mg to 4.5 mg's next month. It did help abit with fatigue and my cognitive impairment. Good luck to you with the ms program! I like to think things happen for a reason! Take care and hugs > >, I visit many MS support groups on the internet- to get and > give support, to get info on others' experiences, to learn of new > treatments, and to share and care; that's how I learned about LDN. I > am also talking with an affiliate of a major TV network about doing > a program on MS and it's treatment (including LDN!). > Quote Link to comment Share on other sites More sharing options...
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