Re: Six Months of LDN

[Guest guest]

WOW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Oh WOW.........

I hope your neuro will become an LDN advocate after witnessing this amazing improvement and I hope you continue to improve and never ever get back to your former state! Congratulations!

Nola

[low dose naltrexone] Six Months of LDN

My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to Secondary Progressive MS in 2002. I have used A, C, and R of the ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and enough soly to float (Or pick up!) a battleship. All were mildly successful by the standards put forth by the companies who promote them, but I continued to go downhill. I became obese, confined to a wheelchair, and on oxygen when I started taking LDN. At the same time, I discontinued R. Improvement was not immediate, but I was not experiencing any episodes, and did begin to notice gradual improvement. I had already been doing light exercises, such as leg lifts,foot raises, and walking in a shallow pool; but I was able to gradually increase exercise, and I also began doing work in my workshop from my wheelchair. To speed this up, it has now been over five weeks since I've used my wheelchair, and for the last week, I have not even had to use a cane. I still do have numbness in my left leg, but I am able to walk without a limp. I had my six-month check-up with my neuro, two weeks ago and blew my functional composites away! My neuro was blown away, too.I feel better that I have in seven years. I don't know if improvement will continue or what, but I am overwhelmed by the results so far and cannot believe there is not serious and fervant research being done with this medication. Thanks, Bill

[Guest guest]

Hi Bill, Welcome aboard! I am so glad you have had such a great

response! They say it's a bonus to get existing symptom relief, that

ldn's for stopping progression. Looks like you got lucky! I hope it

continues! I wonder how much exercise had to do with your success with

symptom relief? They say exercising creates endorphines also.

Take Care

>

>> Improvement was not immediate, but I was not experiencing any

> episodes, and did begin to notice gradual improvement. I had already

> been doing light exercises, such as leg lifts,foot raises, and

> walking in a shallow pool; but I was able to gradually increase

> exercise, and I also began doing work in my workshop from my

> wheelchair. To speed this up, it has now been over five weeks since

> I've used my wheelchair, and for the last week, I have not even had

> to use a cane. I still do have numbness in my left leg, but I am

> able to walk without a limp. I had my six-month check-up with my

> neuro, two weeks ago and blew my functional composites away! My

> neuro was blown away, too.

>

[Guest guest]

>

> My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to

> Secondary Progressive MS in 2002. I have used A, C, and R of the

> ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and

> enough soly to float (Or pick up!) a battleship. All were mildly

> successful by the standards put forth by the companies who promote

> them, but I continued to go downhill. I became obese, confined to a

> wheelchair, and on oxygen when I started taking LDN. At the same

> time, I discontinued R.

> Improvement was not immediate, but I was not experiencing any

> episodes, and did begin to notice gradual improvement. I had already

> been doing light exercises, such as leg lifts,foot raises, and

> walking in a shallow pool; but I was able to gradually increase

> exercise, and I also began doing work in my workshop from my

> wheelchair. To speed this up, it has now been over five weeks since

> I've used my wheelchair, and for the last week, I have not even had

> to use a cane. I still do have numbness in my left leg, but I am

> able to walk without a limp. I had my six-month check-up with my

> neuro, two weeks ago and blew my functional composites away! My

> neuro was blown away, too.

> I feel better that I have in seven years.

> I don't know if improvement will continue or what, but I am

> overwhelmed by the results so far and cannot believe there is not

> serious and fervant research being done with this medication.

> Thanks, Bill

>

=======

Bill,

You sound like you took your well-being into your own hands and did the physical

work needed to come out of that wheelchair...all the things I did and I too had

great success except I was chronic progressive MS. Keep up the pool exercising

as that is the best for your physical well-being.

[Guest guest]

CONGRATULATIONS BILL!morrrelll <bmr323@...> wrote: My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to Secondary Progressive MS in 2002. I have used A, C, and R of the ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and enough soly to float (Or pick up!) a battleship. All were mildly successful by the standards put forth by the companies who promote them, but I continued to go downhill. I became obese, confined to a wheelchair, and on oxygen when I started taking LDN. At the same time, I discontinued R. Improvement was not immediate, but I was not experiencing any episodes, and did begin to notice gradual improvement. I had already been doing light exercises, such as leg lifts,foot raises, and walking in a shallow pool; but I was able to gradually

increase exercise, and I also began doing work in my workshop from my wheelchair. To speed this up, it has now been over five weeks since I've used my wheelchair, and for the last week, I have not even had to use a cane. I still do have numbness in my left leg, but I am able to walk without a limp. I had my six-month check-up with my neuro, two weeks ago and blew my functional composites away! My neuro was blown away, too.I feel better that I have in seven years. I don't know if improvement will continue or what, but I am overwhelmed by the results so far and cannot believe there is not serious and fervant research being done with this medication. Thanks, Bill

DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

Thanks, . I'm not sure how much the exercise has affected this

success; I've been very careful not to overdo on the exercise, but I

have very gradually increased it. Actually, too, I haven't been able

to do as much or as regular water exercise since cold weather has

arrived (I live in central Alabama.). I am going to start using the

city's indoor pool after New Year's.

I think your question and the many other questions out there beg for

formal studies of LDN under different scenarios to try to see just

how good this drug can be for many auto-immune disease sufferers.

Thanks again, Bill

>

> Hi Bill, Welcome aboard! I am so glad you have had such a great

> response! They say it's a bonus to get existing symptom relief,

that

> ldn's for stopping progression. Looks like you got lucky! I hope

it

> continues! I wonder how much exercise had to do with your success

with

> symptom relief? They say exercising creates endorphines also.

>

> Take Care

> >

> >> Improvement was not immediate, but I was not experiencing any

> > episodes, and did begin to notice gradual improvement. I had

already

> > been doing light exercises, such as leg lifts,foot raises, and

> > walking in a shallow pool; but I was able to gradually increase

> > exercise, and I also began doing work in my workshop from my

> > wheelchair. To speed this up, it has now been over five weeks

since

> > I've used my wheelchair, and for the last week, I have not even

had

> > to use a cane. I still do have numbness in my left leg, but I am

> > able to walk without a limp. I had my six-month check-up with my

> > neuro, two weeks ago and blew my functional composites away! My

> > neuro was blown away, too.

> >

>

[Guest guest]

Thanks for sharing your story, Bill. Very inspiring.

[Guest guest]

Your welcome Bill. I love to hear stories like yours. It was just a

thought about the exercise. They say that and chocolate raises

endorphins. I read the book called up the creek with a paddle by a

women who finally got her husband with progressive ms on ldn. She

talked about how, when she saw Dr. Bihari, he told her if you feel

run down ect..to eat a chocolate bar a day for 3 days and it would

help boost the endorphins more. Sounds like a good trade to me :0)

I am going to start exercising soon. I will start off slow like you

did. I am in eastern Ontario so know what the cold weather is like.

I agree 100% We do need studies. I see my neuro. next month and

want to find out how I can spread the word more effectively. Or find

out if there is something she can do to help.

Take Care

> Thanks, . I'm not sure how much the exercise has affected

this

> success; I've been very careful not to overdo on the exercise, but

I

> have very gradually increased it. Actually, too, I haven't been

able

> to do as much or as regular water exercise since cold weather has

> arrived (I live in central Alabama.).

[Guest guest]

--- In low dose naltrexone , " morrrelll " <bmr323@h...>

wrote:

>

> My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed to

> Secondary Progressive MS in 2002. I have used A, C, and R of the

> ABCRs, have had six months of Cytoxan (Chemo), plasma exchange, and

> enough soly to float (Or pick up!) a battleship. All were mildly

> successful by the standards put forth by the companies who promote

> them, but I continued to go downhill. I became obese, confined to a

> wheelchair, and on oxygen when I started taking LDN. At the same

> time, I discontinued R.

> Improvement was not immediate, but I was not experiencing any

> episodes, and did begin to notice gradual improvement. I had

already

> been doing light exercises, such as leg lifts,foot raises, and

> walking in a shallow pool; but I was able to gradually increase

> exercise, and I also began doing work in my workshop from my

> wheelchair. To speed this up, it has now been over five weeks since

> I've used my wheelchair, and for the last week, I have not even had

> to use a cane. I still do have numbness in my left leg, but I am

> able to walk without a limp. I had my six-month check-up with my

> neuro, two weeks ago and blew my functional composites away! My

> neuro was blown away, too.

> I feel better that I have in seven years.

> I don't know if improvement will continue or what, but I am

> overwhelmed by the results so far and cannot believe there is not

> serious and fervant research being done with this medication.

> Thanks, Bill

>

Hi Bill;

What mg. are you on? I have been on 4.5mg. for 3 months with very

little changes. In fact I am more fatigued at times. I posted today

for the 2nd time w/questions re; my situation. Did you have any

improvement at all in the first 3 months? I am in a wheelchair, and

unable to walk now for over a yr. (broke leg, then cell infection 6

months after that). I am 55 yrs. and about the same progression as

you describe. Your story is such an inspiration. I too wish you

continued success.

in Everett/Mukilteo, WA

[Guest guest]

> >

> > My name is Bill; I'm 56, was dx'd with RRMS in 1998, and changed

to

> > Secondary Progressive MS in 2002. I have used A, C, and R of the

> > ABCRs, have had six months of Cytoxan (Chemo), plasma exchange,

and

> > enough soly to float (Or pick up!) a battleship. All were mildly

> > successful by the standards put forth by the companies who

promote

> > them, but I continued to go downhill. I became obese, confined

to a

> > wheelchair, and on oxygen when I started taking LDN. At the same

> > time, I discontinued R.

> > Improvement was not immediate, but I was not experiencing any

> > episodes, and did begin to notice gradual improvement. I had

> already

> > been doing light exercises, such as leg lifts,foot raises, and

> > walking in a shallow pool; but I was able to gradually increase

> > exercise, and I also began doing work in my workshop from my

> > wheelchair. To speed this up, it has now been over five weeks

since

> > I've used my wheelchair, and for the last week, I have not even

had

> > to use a cane. I still do have numbness in my left leg, but I am

> > able to walk without a limp. I had my six-month check-up with my

> > neuro, two weeks ago and blew my functional composites away! My

> > neuro was blown away, too.

> > I feel better that I have in seven years.

> > I don't know if improvement will continue or what, but I am

> > overwhelmed by the results so far and cannot believe there is

not

> > serious and fervant research being done with this medication.

> > Thanks, Bill

> >

> Hi Bill;

>

> What mg. are you on? I have been on 4.5mg. for 3 months with very

> little changes. In fact I am more fatigued at times. I posted

today

> for the 2nd time w/questions re; my situation. Did you have any

> improvement at all in the first 3 months? I am in a wheelchair,

and

> unable to walk now for over a yr. (broke leg, then cell infection

6

> months after that). I am 55 yrs. and about the same progression as

> you describe. Your story is such an inspiration. I too wish you

> continued success.

> in Everett/Mukilteo, WA

>Hi, and thanks for your reply. I am on 3mg, but I think 4.5

is more difficult for men, for some reason. I did not really notice

any real improvement during the first three months, though there may

have been some; it was after that, perhaps even after four months or

so, that I began to realize I could do more and to " spread my wings "

a bit, so to speak. Are you doing any types of exercises? Perhaps if

you could discuss an exercise program with your neuro or therapist,

that could help, too; just be mindful of not overdoing.

, I am happy that my story is inspirational for you, and I

wish YOU the same success. I have always been a very positive

person, and feel that the challenges (including MS) that every

person faces are character builders. If my condition reverts back

tomorrow to it's worst point, there will still be many opportunities

for meto give of myself to others. I try to begin each day with the

knowledge that today is the very best day of my life and go from

there. :-) Just do the best you can with what you've got....and

give.;-) Love, and God Bless, Bill

[Guest guest]

>, I visit many MS support groups on the internet- to get and

give support, to get info on others' experiences, to learn of new

treatments, and to share and care; that's how I learned about LDN. I

am also talking with an affiliate of a major TV network about doing

a program on MS and it's treatment (including LDN!).

I have met a good many PWMS from Canada on the " net. " Perhaps you

could interest a TV station in your area to do a story; and visit MS

support groups on the net, too. I know you would be a great asset to

any of them, and they would be to you, as well. Love, and God Bless,

Bill

> Your welcome Bill. I love to hear stories like yours. It was

just a

> thought about the exercise. They say that and chocolate raises

> endorphins. I read the book called up the creek with a paddle by

a

> women who finally got her husband with progressive ms on ldn. She

> talked about how, when she saw Dr. Bihari, he told her if you feel

> run down ect..to eat a chocolate bar a day for 3 days and it would

> help boost the endorphins more. Sounds like a good trade to me :0)

>

> I am going to start exercising soon. I will start off slow like

you

> did. I am in eastern Ontario so know what the cold weather is

like.

>

> I agree 100% We do need studies. I see my neuro. next month and

> want to find out how I can spread the word more effectively. Or

find

> out if there is something she can do to help.

>

> Take Care

>

> > Thanks, . I'm not sure how much the exercise has affected

> this

> > success; I've been very careful not to overdo on the exercise,

but

> I

> > have very gradually increased it. Actually, too, I haven't been

> able

> > to do as much or as regular water exercise since cold weather

has

> > arrived (I live in central Alabama.).

>

[Guest guest]

Hi Bill,

Maybe I have been following right behind you? Lol! I also visit

support groups to learn and share. It makes me feel good to help

others and it sure doesn't hurt to receive and share.

I did think about ways to raise awareness for ldn. My neuro. was

going to be my starting point. She has already admitted to me that

yes the crab drugs are modest at best when I asked her. I think I

have to let go of my anger in regards to the crab drugs. I feel that

I have been purposely misguided at the expense of my health. I

remember a good friend at the time warned me that I was just a guinea

pig. I couldn't for the life of me think that doctors who are

suppose to do no harm would prescribe these drugs knowing what they

do. I had awful side effects and have to admitt I am abit

apprehensive thinking what they can do longterm.

I wish I could get my first neuro. interested. He is way up there

with ms studies. He is currently doing one with stem cells.

I think I would need more time before I could approach the media.

I've only been on the ldn for about a month and abit. I am going to

increase from 3mg to 4.5 mg's next month. It did help abit with

fatigue and my cognitive impairment.

Good luck to you with the ms program! I like to think things happen

for a reason!

Take care and hugs

> >, I visit many MS support groups on the internet- to get and

> give support, to get info on others' experiences, to learn of new

> treatments, and to share and care; that's how I learned about LDN.

I

> am also talking with an affiliate of a major TV network about doing

> a program on MS and it's treatment (including LDN!).

>