Re: Is it normal for most to feel sick starting ldn

[Guest guest]

In a message dated 12/5/2005 10:16:44 AM Central Standard Time, mccarthycp@... writes:

Just wondering if it is normal to feel sick at the start on ldn. I am on day 16 and feeling quite unwell. Sort of just an all over unwellness with fatigue and stomach upset and constipation. Is this a good sign. Should I stick it out no matter what.

Thanks for your help

Cathal

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Ask yourself this; If LDN was FDA approved for whatever condition you have and on the insert in microscopic print it read; Possible side effects of LDN may include upset stomach, constipation, and fatigue. Would you continue to take it???

Honestly, I can understand why doctors shy away from prescribing LDN because some people using it just question it to death!!! It's a very individual thing, and basically we're playing guinea pigs with ourselves. No one has any definite answers. Just read the LDN website, ask pertinent questions, and then decide for yourself whether or not you feel it is worth it, but the repetition here lately gets so old!

LDN is not a magic bullet. Too many people start taking it with this attitude, and then they're disappointed when it doesn't 'fix' everything immediately. Lifestyle changes are very important. C'mon...give it a chance. Then decide for yourself.

Marcie

[Guest guest]

Me too, Cathal..almost 3 months I'm on it. I'm sticking it out for now. I hope you feel better. Wish I had some answers but seems it's a trial and error thing. Desinie dockeydoo <mccarthycp@...> wrote: Just wondering if it is normal to feel sick at the start on ldn. I am on day 16 and feeling quite unwell. Sort of just an all over unwellness with fatigue and stomach upset and constipation. Is this a good sign. Should I stick it out no matter what.Thanks for your helpCathal

Personals Single? There's someone we'd like you to meet. Lots of someones, actually. Personals

[Guest guest]

Marcie, I don't think we're expecting it to take away all our symptoms but I for one was not expecting to feel this ill on it. I'm happy you've had success with it but where else do you expect us to go with questions on it other than an LDN group? Your reply was rude and unnecessary, sorry.marciemjm@... wrote: In a message dated 12/5/2005 10:16:44 AM Central Standard Time, mccarthycp@... writes: Just wondering if it is normal to feel sick at the start on ldn. I am on day 16 and feeling quite unwell. Sort of just an all over unwellness with fatigue and stomach upset and constipation. Is this a good sign. Should I stick it out no

matter what. Thanks for your help Cathal+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Ask yourself this; If LDN was FDA approved for whatever condition you have and on the insert in microscopic print it read; Possible side effects of LDN may include upset stomach, constipation, and fatigue. Would you continue to take it??? Honestly, I can understand why doctors shy away from prescribing LDN because some people using it just question it to death!!! It's a very individual thing, and basically we're playing guinea pigs with ourselves. No one has any definite answers. Just read the LDN website, ask pertinent questions,

and then decide for yourself whether or not you feel it is worth it, but the repetition here lately gets so old! LDN is not a magic bullet. Too many people start taking it with this attitude, and then they're disappointed when it doesn't 'fix' everything immediately. Lifestyle changes are very important. C'mon...give it a chance. Then decide for yourself. Marcie

Personals Let fate take it's course directly to your email. See who's waiting for you Personals

[Guest guest]

Cathal-

I think some people need to start at a lower dose and work up to 4.5

mg. Since LDN affects your immune system, it can have health effects

early on. Have you tried lowering your dose?

Are you using a compounded form of revia? It contains dairy (and other

fillers). If you cannot tolerate the dairy, use a pharmacy that

compounds their LDN from pure naltrexone powder. Perhaps you are not

tolerating some filler ingredient. Just a thought...

hope you feel better soon,

In a message dated 12/5/2005 10:16:44 AM

Central Standard Time, mccarthycp@e... writes:

>

>

> Just wondering if it is normal to feel sick at the start on ldn. I

am on day 16 and feeling

> quite unwell. Sort of just an all over unwellness with fatigue and

stomach upset and

> constipation.

> Is this a good sign. Should I stick it out no matter what.

>

> Thanks for your help

>

> Cathal

>

> +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

>

>

>

> Ask yourself this; If LDN was FDA approved for whatever condition

you have and on the insert in microscopic print it read; Possible side

effects of LDN may include upset stomach, constipation, and fatigue.

Would you continue to take it???

>

> Honestly, I can understand why doctors shy away from prescribing LDN

because some people using it just question it to death!!! It's a very

individual thing, and basically we're playing guinea pigs with

ourselves. No one has any definite answers. Just read the LDN

website, ask pertinent questions, and then decide for yourself whether

or not you feel it is worth it, but the repetition here lately gets so

old!

>

> LDN is not a magic bullet. Too many people start taking it with this

attitude, and then they're disappointed when it doesn't 'fix'

everything immediately. Lifestyle changes are very important.

C'mon...give it a chance. Then decide for yourself.

>

> Marcie

>

>

[Guest guest]

Hi

My name is and I have been viewing this site and others re LDN

from across the Pond>My own GP says he will prescribe LDN(knew nothing about

it ) but wanted me to discuss it with my neurologist first. I have an

appointment in January and am basically getting as much info as possible

about it(have already printed out Dr Bob Lawrence's stuff)

From all the stuff I have gone through over and over again it would appear

that the dosage preferred is between 3 and 4.5mgs but that people do have

different experiences and trial between 1-6 mgs. It would appear you have to

give the dose a trial of at least a month before either increasing or

decreasing the dose to suit your needs and comfort. I agree with what

said that you may be having a problem with the filler so please look into

that. From what I have read and hopefully understand about LDN I would not

take 25mg (6mgs max)

Just a little about me. Diagnosed 1991 with chronic progressive MS (PPMS)

and the disease has been progressing slowly since that time. I am hoping

that the LDN will stop the progression of the disease(any symptom relief

will be a bonus)I am just really at the beginning of my journey but am

encouraged by the + LDN postings. Hope this was of some help.

All the best

Newcastle ENGLAND

[low dose naltrexone] Is it normal for most to feel sick starting ldn

Just wondering if it is normal to feel sick at the start on ldn. I am on day

16 and feeling

quite unwell. Sort of just an all over unwellness with fatigue and stomach

upset and

constipation.

Is this a good sign. Should I stick it out no matter what.

Thanks for your help

Cathal

[Guest guest]

To Desinie and Cathal,

I had the same problem and had to eventually stop after some 6 weeks or so.I

explored all options of different fillers,liquid,doses etc and probably

persevered beyond common sense due to my desperation to find a solution to

my problem.It was great reading about so many people's success with LDN and

I was devastated to have to stop so I understand your concerns.At this stage

I am glad I hung in there for so long because I can now accept(very sadly) I

cannot tolerate it.

I am not suggesting you give up on it,try all different possibilities etc

but I just wanted you to hear my story so you would realise you are not the

only ones.Hopefully you might be lucky and your symptoms may settle,I hope

so and wish you all the best.

I agree with your asking for advice as this can be a very lonely road when

there is nowhere to turn for support.

Good luck with your decisions.

Treveen

>From: Desinie <teaser1216@...>

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: Re: [low dose naltrexone] Is it normal for most to feel sick

>starting ldn

>Date: Mon, 5 Dec 2005 08:39:10 -0800 (PST)

>

>Me too, Cathal..almost 3 months I'm on it. I'm sticking it out for now. I

>hope you feel better. Wish I had some answers but seems it's a trial and

>error thing.

> Desinie

> dockeydoo <mccarthycp@...> wrote:

> Just wondering if it is normal to feel sick at the start on ldn. I am on

>day 16 and feeling

>quite unwell. Sort of just an all over unwellness with fatigue and stomach

>upset and

>constipation.

>Is this a good sign. Should I stick it out no matter what.

>

>Thanks for your help

>

>Cathal

>

>

>

>

>

>

>

[Guest guest]

Hi Treveen, My name is Vicki and I have been on the LDN for about a month now and I called the Pharm. in New York and they and going to try me on a new filler, I have been really sick to my stomach and very tired I wake up tired. I don't know how long I should stick it out? Any body have any help. Dr.Bihari said to smoke pot maybe for the stomach upset? Treveen Brown <treveen@...> wrote: To Desinie and Cathal,I had the same problem and had to eventually stop after some 6 weeks or so.I explored all options of different fillers,liquid,doses etc and probably persevered beyond common sense due to my desperation to find a solution to my problem.It was great reading about so many people's success with LDN and I was devastated to have to stop so I understand your concerns.At this stage I am

glad I hung in there for so long because I can now accept(very sadly) I cannot tolerate it.I am not suggesting you give up on it,try all different possibilities etc but I just wanted you to hear my story so you would realise you are not the only ones.Hopefully you might be lucky and your symptoms may settle,I hope so and wish you all the best.I agree with your asking for advice as this can be a very lonely road when there is nowhere to turn for support.Good luck with your decisions.Treveen>From: Desinie <teaser1216@...>>Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] Is it normal for most to feel sick >starting ldn>Date: Mon, 5 Dec 2005 08:39:10 -0800 (PST)>>Me too, Cathal..almost 3 months I'm on it. I'm sticking it out for now. I >hope you feel better. Wish I had some answers but seems it's a

trial and >error thing.> Desinie> dockeydoo <mccarthycp@...> wrote:> Just wondering if it is normal to feel sick at the start on ldn. I am on >day 16 and feeling>quite unwell. Sort of just an all over unwellness with fatigue and stomach >upset and>constipation.>Is this a good sign. Should I stick it out no matter what.>>Thanks for your help>>Cathal>>>>>>>

[Guest guest]

Ouch > > Ask yourself this; If LDN was FDA approved for whatever condition you have > and on the insert in microscopic print it read; Possible side effects of LDN may > include upset stomach, constipation, and fatigue. Would you continue to take > it??? > > Honestly, I can understand why doctors shy away from prescribing LDN because > some people using it just question it to death!!! It's a very individual > thing, and basically we're playing guinea pigs with ourselves. No one has any > definite answers. Just read the LDN website, ask pertinent questions, and then > decide for yourself whether or not you feel it is worth it, but the repetition > here lately gets so old!> > LDN is not a magic bullet. Too many people start taking it with this > attitude, and then they're disappointed when it doesn't 'fix' everything immediately. > Lifestyle changes are very important. C'mon...give it a chance. Then decide > for yourself.> > Marcie>

[Guest guest]

Hi ,

Welcome aboard! I am fairly new here myself. I am currently taking

3mg. I will go up to 4.5 in january. Best of luck!

Take Care

> Hi

> My name is and I have been viewing this site and others re

LDN

> from across the Pond>My own GP says he will prescribe LDN(knew

nothing about

> it ) but wanted me to discuss it with my neurologist first. I have an

> appointment in January and am basically getting as much info as

possible

> about it

[Guest guest]

Ok--as a newbie, I am certainly grateful for the repetition. If not for the FAQs, what else would be discussed here? <pomsaregreat@...> wrote: Ouch > > Ask yourself this; If LDN was FDA approved for whatever condition you have > and on the insert in microscopic print it read; Possible side effects of LDN may > include upset stomach, constipation, and fatigue. Would you continue to take > it??? > > Honestly, I can understand why doctors shy away from prescribing LDN because > some people using it just question it to death!!! It's a very individual > thing, and basically we're playing guinea pigs with ourselves. No one has any >

definite answers. Just read the LDN website, ask pertinent questions, and then > decide for yourself whether or not you feel it is worth it, but the repetition > here lately gets so old!> > LDN is not a magic bullet. Too many people start taking it with this > attitude, and then they're disappointed when it doesn't 'fix' everything immediately. > Lifestyle changes are very important. C'mon...give it a chance. Then decide > for yourself.> > Marcie>

Find Great Deals on Gifts at

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[Guest guest]

Don't worry and everyone else. Repetition is good. In fact even being on the site for over a year, it still helps to remind me of things that I have forgotten. If I feel I have heard too much for a while I just take a break from the site. Ask away, that is what we are here for. Thank goodness you found the site, and thank goodness I found the site for my husband. Without the site and everyone's help I don't think I would have ever gotten my husband started.

Hang in there

Aletha

Re: [low dose naltrexone] Re: Is it normal for most to feel sick starting ldn

Ok--as a newbie, I am certainly grateful for the repetition. If not for the FAQs, what else would be discussed here? <pomsaregreat@...> wrote: Ouch > > Ask yourself this; If LDN was FDA approved for whatever condition you have > and on the insert in microscopic print it read; Possible side effects of LDN may > include upset stomach, constipation, and fatigue. Would you continue to take > it??? > > Honestly, I can understand why doctors shy away from prescribing LDN because > some people using it just question it to death!!! It's a very individual > thing, and basically we're playing guinea pigs with ourselves. No one has any > definite answers. Just read the LDN website, ask pertinent questions, and then > decide for yourself whether or not you feel it is worth it, but the repetition > here lately gets so old!> > LDN is not a magic bullet. Too many people start taking it with this > attitude, and then they're disappointed when it doesn't 'fix' everything immediately. > Lifestyle changes are very important. C'mon...give it a chance. Then decide > for yourself.> > Marcie>

Find Great Deals on Gifts at

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[Guest guest]

Marcie,

I'm sorry, but it is this attitude that made me (and many doctors, I

would assume) skeptical about ldn. I understand your feelings that

everyone should give ldn a chance. However, side effects are

important whether a medication is approved for a condition or not.

It is an individual choice whether the side effects are worth going

through or not.

I'm glad ldn works for you. And I hope it works for many others!

However, criticism of people with different opinions than yours

doesn't help the movement for ldn.

My main point is that one SHOULD " question it to death " . Just as we

should any medication or homeopathic treatment we are undertaking.

Questioning isn't ignorance, it's intellegence.

Cath

>

> Ask yourself this; If LDN was FDA approved for whatever condition

you have

> and on the insert in microscopic print it read; Possible side

effects of LDN may

> include upset stomach, constipation, and fatigue. Would you

continue to take

> it???

>

> Honestly, I can understand why doctors shy away from prescribing

LDN because

> some people using it just question it to death!!! It's a very

individual

> thing, and basically we're playing guinea pigs with ourselves. No

one has any

> definite answers. Just read the LDN website, ask pertinent

questions, and then

> decide for yourself whether or not you feel it is worth it, but

the repetition

> here lately gets so old!

>

> LDN is not a magic bullet. Too many people start taking it with

this

> attitude, and then they're disappointed when it doesn't 'fix'

everything immediately.

> Lifestyle changes are very important. C'mon...give it a chance.

Then decide

> for yourself.

>

> Marcie

>

[Guest guest]

, Thank you for your post..Marcie really made me angry responding the way she did. How are you doing on the LDN? Desinie <bbddcat@...> wrote: Marcie,I'm sorry, but it is this attitude that made me (and many doctors, I would assume) skeptical about ldn. I understand your feelings that everyone should give ldn a chance. However, side effects are important whether a medication is approved for a condition or not. It is an individual choice whether the side effects are worth going through or not.I'm glad ldn works for you. And I hope it works for many others! However, criticism of people with different opinions than yours doesn't help the movement for ldn. My main

point is that one SHOULD "question it to death". Just as we should any medication or homeopathic treatment we are undertaking. Questioning isn't ignorance, it's intellegence.Cath> > Ask yourself this; If LDN was FDA approved for whatever condition you have > and on the insert in microscopic print it read; Possible side effects of LDN may > include upset stomach, constipation, and fatigue. Would you continue to take > it??? > > Honestly, I can understand why doctors shy away from prescribing LDN because > some people using it just question it to death!!! It's a very individual > thing, and basically we're playing guinea pigs with ourselves. No one has any > definite answers. Just read the LDN website, ask pertinent questions, and then > decide for yourself whether or not you feel it is worth it, but the

repetition > here lately gets so old!> > LDN is not a magic bullet. Too many people start taking it with this > attitude, and then they're disappointed when it doesn't 'fix' everything immediately. > Lifestyle changes are very important. C'mon...give it a chance. Then decide > for yourself.> > Marcie>

DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

Hi Vicki,

Not sure I can advise you re how long to hang in with it- that is really a

personal decision according to the severity of the symptoms you are

experiencing.I would certainly recommend AK muscle testing with a

kinesthiologist if poss to help you determine whether or not you can still

handle it and also would suggest eliminating as many variables like

fillers,etc.As for smoking pot - I suspect it would only complicate the

issue but that is up to you!

I can certainly relate to the acute nausea and fatigue.I initially welcomed

this as I thought it meant things were happening which may well have been

the case but it finally became too extreme for me to continue.

Good luck

>From: Telsha Finlayson <gottogetmore@...>

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: Re: [low dose naltrexone] Is it normal for most to feel sick

>starting ldn

>Date: Mon, 5 Dec 2005 15:54:44 -0800 (PST)

>

>Hi Treveen,

> My name is Vicki and I have been on the LDN for about a month now and I

>called the Pharm. in New York and they and going to try me on a new filler,

>I have been really sick to my stomach and very tired I wake up tired. I

>don't know how long I should stick it out? Any body have any help.

>Dr.Bihari said to smoke pot maybe for the stomach upset?

>

>

>Treveen Brown <treveen@...> wrote:

> To Desinie and Cathal,

>I had the same problem and had to eventually stop after some 6 weeks or

>so.I

>explored all options of different fillers,liquid,doses etc and probably

>persevered beyond common sense due to my desperation to find a solution to

>my problem.It was great reading about so many people's success with LDN and

>I was devastated to have to stop so I understand your concerns.At this

>stage

>I am glad I hung in there for so long because I can now accept(very sadly)

>I

>cannot tolerate it.

>I am not suggesting you give up on it,try all different possibilities etc

>but I just wanted you to hear my story so you would realise you are not

>the

>only ones.Hopefully you might be lucky and your symptoms may settle,I hope

>so and wish you all the best.

>I agree with your asking for advice as this can be a very lonely road when

>there is nowhere to turn for support.

>Good luck with your decisions.

>Treveen

>

>

> >From: Desinie <teaser1216@...>

> >Reply-low dose naltrexone

> >low dose naltrexone

> >Subject: Re: [low dose naltrexone] Is it normal for most to feel sick

> >starting ldn

> >Date: Mon, 5 Dec 2005 08:39:10 -0800 (PST)

> >

> >Me too, Cathal..almost 3 months I'm on it. I'm sticking it out for now. I

> >hope you feel better. Wish I had some answers but seems it's a trial and

> >error thing.

> > Desinie

> > dockeydoo <mccarthycp@...> wrote:

> > Just wondering if it is normal to feel sick at the start on ldn. I am

>on

> >day 16 and feeling

> >quite unwell. Sort of just an all over unwellness with fatigue and

>stomach

> >upset and

> >constipation.

> >Is this a good sign. Should I stick it out no matter what.

> >

> >Thanks for your help

> >

> >Cathal

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

In a message dated 12/5/2005 10:17:31 PM Central Standard Time, kitefest5@... writes:

Ok--as a newbie, I am certainly grateful for the repetition. If not for the FAQs, what else would be discussed here?

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

I understand being new and having questions that aren't answered on the LDN website. It's the things that are answered on the website that are asked over and over. We've lost several good people for this reason. Anybody remember , Kim, Joan and Lara? They used to contribute so much. Now nothing. Haven't heard from Bruce in a while. We've lost the real helpful stuff. I'm signing off too. Bren and Kiki, I'll keep in touch privately. This is like beating one's head against a wall.

Marcie

[Guest guest]

Hi Aletha! Big hugs to you! I am not worried. I realize the majority of people, don't judge others reactions to what they are feeling. We are all so different when it comes to our perception of things. What may bother some may not concern others and vice, versa.. Unless I have walked in that individual's shoes I don't judge. Add into the mix illness and you can sometimes get a short fuse.I know I need repetition. Darn ms cognitive problems make me forget .Take Care --- >> Don't worry and everyone else. Repetition is good. In fact even being on the site for over a year, it still helps to remind me of things that I have forgotten.

[Guest guest]

Desinie,

Thank you for asking!

I have not yet started the ldn. I will be seeing my doctor on the

23rd, and hopefully I can start it then. I wanted to make sure I

went into trying this treatment knowing as much as possible, hence

why I became a member! I am in the early stages of ALS and so far

there hasn't been huge success using ldn treatment as there has been

for MS, but I am definitely looking forward to giving it a try.

Maybe I'll be the one it helps!

--- In low dose naltrexone , Desinie <teaser1216@y...>

wrote:

>

> ,

> Thank you for your post..Marcie really made me angry responding

the way she did. How are you doing on the LDN?

> Desinie

[Guest guest]

Honestly, I wish I could say I'm doing great. I do feel a big

increase in energy, which is a huge plus for me. I also have

noticed a sense of general well-being. On the downside, however, I

have noticed cramping in my arms (I have been diagnosed with ALS,

and haven't had too much trouble in the upper body yet), period

irregularity, and constipation. I will continue the ldn for now,

but I do believe that side effects are important for one to look

at. I do as many things naturally as I can, however, it is not

always curing my problems. (Such as constipation.) I think any

medication requires the person taking it to be sure that they can

tolerate those side effects. And I do know it is to prevent

exacerbation...not to fix current issues.

This is probably way more than you wanted to know...but for the time

being, I will continue the ldn. I don't see any other viable

treatment options for me right now, and I feel confident that it is

at least worth a try. I just hope in the future people who question

the medication as being right for them are not denegrated for doing

so.

Best Wishes!

Cath

[Guest guest]

Marcie,

I am so sorry you feel that way. However, even going back to

previously discussed posts and the ldn website, there are many

questions that I think one would like to discuss. I'm sorry you

feel this to be repetitive. For example, I do not have MS, rather

ALS, and most questions are geared towards MS.

I also wanted to clarify my earlier post. I am all for the ldn. I

feel more than comfortable to educate everyone I know about it! As

I said, I am continuing to take it and can't see a point at this

time in which I will stop. However, some people may not be as

comfortable with the side effects, and will stop the treatment.

I think it is very important here (I admit to only being a member

for a few months), that one can ask questions, and even at times be

frustrated that the ldn doesn't work for them like it does for

others. We all need that information and education, I believe. And

to feel comfortable with the decision we choose.

Thank goodness ldn was discovered to help like it does!

my best,

Cath

>> +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

> I understand being new and having questions that aren't answered

on the LDN

> website. It's the things that are answered on the website that

are asked over

> and over. We've lost several good people for this reason.

Anybody remember

> , Kim, Joan and Lara? They used to contribute so much. Now

nothing.

> Haven't heard from Bruce in a while. We've lost the real helpful

stuff. I'm

> signing off too. Bren and Kiki, I'll keep in touch privately.

This is like

> beating one's head against a wall.

>

> Marcie

>

[Guest guest]

I wish you were doing great also :0( Could this upper arm cramps be a

side effect of the ldn? If people get leg cramps or an increase in

spasm then could it not be feasible?

I agree about questioning a medication. I am also from the

metoschool. If someone else has experianced something similiar I feel

more at ease ;o)

Hugs

>

> Honestly, I wish I could say I'm doing great. I do feel a big

> increase in energy, which is a huge plus for me. I also have

> noticed a sense of general well-being. On the downside, however, I

> have noticed cramping in my arms

[Guest guest]

Hi - re constipation. Try warm water or coffee enemas.

They work wonders.

Sue

Hi

>

> Honestly, I wish I could say I'm doing great. I do feel a big

> increase in energy, which is a huge plus for me. I also have

> noticed a sense of general well-being. On the downside, however,

I

> have noticed cramping in my arms (I have been diagnosed with ALS,

> and haven't had too much trouble in the upper body yet), period

> irregularity, and constipation. I will continue the ldn for now,

> but I do believe that side effects are important for one to look

> at. I do as many things naturally as I can, however, it is not

> always curing my problems. (Such as constipation.) I think any

> medication requires the person taking it to be sure that they can

> tolerate those side effects. And I do know it is to prevent

> exacerbation...not to fix current issues.

>

> This is probably way more than you wanted to know...but for the

time

> being, I will continue the ldn. I don't see any other viable

> treatment options for me right now, and I feel confident that it

is

> at least worth a try. I just hope in the future people who

question

> the medication as being right for them are not denegrated for

doing

> so.

>

> Best Wishes!

>

> Cath

>

[Guest guest]

That is what I'm most curious about. Is it possible the ldn is

causing some arm cramps? I've read a lot about leg cramps, but not

anything regarding the arms (that I can recall).

Cath

--- In low dose naltrexone , " " <pomsaregreat@y...>

wrote:

>

> I wish you were doing great also :0( Could this upper arm cramps be

a

> side effect of the ldn? If people get leg cramps or an increase in

> spasm then could it not be feasible?

>

>

[Guest guest]

Hey Cath,

Maybe the soap under the cover trick will work for arm cramps too. It

sounds so strange, but many people have said that it works. I can't

remember which kind of soap to use.

Aletha

[low dose naltrexone] Re: Is it normal for most to feel sick starting

ldn

> That is what I'm most curious about. Is it possible the ldn is

> causing some arm cramps? I've read a lot about leg cramps, but not

> anything regarding the arms (that I can recall).

>

> Cath

>

>

>>

>> I wish you were doing great also :0( Could this upper arm cramps be

> a

>> side effect of the ldn? If people get leg cramps or an increase in

>> spasm then could it not be feasible?

>>

>>

>

>

>

>

>

>

>

>

[Guest guest]

I decided to do an experiment. For the last two nights i've put a bar of Ivory soap in the bed.I hafe horrible leg cramps aalong with spasticity......let's see if thishelps.

Nola

[low dose naltrexone] Re: Is it normal for most to feel sick starting ldn> That is what I'm most curious about. Is it possible the ldn is> causing some arm cramps? I've read a lot about leg cramps, but not> anything regarding the arms (that I can recall).>> Cath>> >>>> I wish you were doing great also :0( Could this upper arm cramps be> a>> side effect of the ldn? If people get leg cramps or an increase in>> spasm then could it not be feasible?>>>>>>>>>>>>

[Guest guest]

Hi Cath,

I think it is important to keep asking questions. Even for me being on the

site over a year now, hearing something again is a great reminder about

things. That is what we are here for. Keep asking away.

Aletha

[low dose naltrexone] Re: Is it normal for most to feel sick starting

ldn

> Marcie,

>

> I am so sorry you feel that way. However, even going back to

> previously discussed posts and the ldn website, there are many

> questions that I think one would like to discuss. I'm sorry you

> feel this to be repetitive. For example, I do not have MS, rather

> ALS, and most questions are geared towards MS.

>

> I also wanted to clarify my earlier post. I am all for the ldn. I

> feel more than comfortable to educate everyone I know about it! As

> I said, I am continuing to take it and can't see a point at this

> time in which I will stop. However, some people may not be as

> comfortable with the side effects, and will stop the treatment.

>

> I think it is very important here (I admit to only being a member

> for a few months), that one can ask questions, and even at times be

> frustrated that the ldn doesn't work for them like it does for

> others. We all need that information and education, I believe. And

> to feel comfortable with the decision we choose.

>

> Thank goodness ldn was discovered to help like it does!

>

> my best,

>

> Cath

>

>

>

>>> +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

>> I understand being new and having questions that aren't answered

> on the LDN

>> website. It's the things that are answered on the website that

> are asked over

>> and over. We've lost several good people for this reason.

> Anybody remember

>> , Kim, Joan and Lara? They used to contribute so much. Now

> nothing.

>> Haven't heard from Bruce in a while. We've lost the real helpful

> stuff. I'm

>> signing off too. Bren and Kiki, I'll keep in touch privately.

> This is like

>> beating one's head against a wall.

>>

>> Marcie

>>

>

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