Re: Re: Gastroparesis & Chiari 1

[Guest guest]

I posted that pressure on the brainstem from an ACM COULD cause this. As you

know, the vagus nerve is the first cranial nerve to be damaged. The vagus

controls intestinal motility. As an RN, it makes perfect sense to me. What's

more, many people with ACM also suffer from autonomic failure. This can also

seriously affect motility.

I've also been around since '00. Numerous docs have mentioned this possibility,

including one chiari expert. Docs do not necessarily know more than us who read

and have been around. Assuming this can lead to big disappointment.

Sent from my iPod

>

>

> Hi,

> I'm not sure who posted the e-mails concerning gastroparesis, but I've been

tested for this by two different

> GI doctors. I had a two hour motility test done in New Orleans which showed

slow motility and it was

> thought that I had gastroparesis. I then had a four hour motility test done at

Wake Forest University Hospital,

> in Winston-Salem, NC by Dr. Koch who is the top -- best Gastroparesis

expert in the United States.

> The test showed that I did not have gastroparesis. I do not have diabetes

either.

>

> To the person who stated they have Gastroparesis: What type of tests have you

had done?

>

> A number of things can cause motility disorders. A vagus nerve problem being

one of them, and diabetes is another one. Still,

> there are other things that can cause it too. I've never heard that Chiari 1

Malformations can cause gastroparesis.

> Where is this literature at? I do have a motility disorder,

food/medications/fluids do not go down my throat

> properly. I have antegrade and retrograde swallowing disorder proved by barium

swallow. Have you had the balloon

> test done? It is where a sensor is placed at the top of your stomach and a

balloon is introduced and pressures

> are tested. I think it might be called Monometry testing.

>

> Anyway, not sure who wrote the original post, but I would definitely get

tested for this by an expert like Dr.

> Koch. Just like patients who go to the Chiari Institute for their

Chiari related problems, Dr.

> Koch has tons of patients who visit him from all over the United

States too.

>

> As for the other person who was upset about the possibility of Chiari 1

Malformation being the cause of gastroparesis, I would

> not go into any office telling doctors a thing or two - stating gastroparesis

can be caused by Chiari 1 if there

> is no real literature supporting this.

>

> I also have a problem where food empties slowly out of my stomach, and my

intestines do not work properly, but I do not have a gastroparesis diagnosis as

of yet. A Four Hour Motility test is considered the best test, not a Two Hour

Motility test. If you

> have not had a Four Hour Motility test, it is still possible that you may not

have gastroparesis.

>

> If you are wondering who I am, I've been a member of all of the Chiari related

boards since 2003. I used

> to post a heck of a lot and I used to help a lot of members of the boards.

However, since my spine surgery in 2006, and my other illnesses that started

occurring around the spring of 2007, I have not posted very much.

>

> Take care,

>

>

>