Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 Obviously, you have informed yourself well. Keep in mind that the main reason for trying LDN is to stop/slow the MS progression. Although only anectdotal proof, it is better odds than the scientific proof. If you get symptom improvement, that's icing on the cake! Start at 4.5mg and go from there, up or down. Only you can know. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 pllcmj, It does seem that some do not have success with LDN, however most do. My husband only had one side effect and that was increased numbness and tingling after a few days of being on 4.5mg. We were told to reduce the dose to 3.0mg (as most men seem to do best on 3.0) and that worked like a charm. He has been on LDN now for over a year and he lost his fatigue, he has a better feeling of well being, and he is back to doing 1 to 2 sports a day. Finding the right dosage and perhaps supplementing with an MS diet and proper supplements is very helpful to working together with LDN and your immune system. I will send you a " welcome e-mail with the things that my husband is doing, with hopes that that would help. LDN is worth working through to see if you can get good results with it. But it is true that not everyone has the same results. It is well worth the try though. Aletha [low dose naltrexone] Is LDN worth the effort > > >>I have just got my prescription for LDN TODAY and am preparing to send >> it to a pharmacist. I am concerned. The messages I have just read are >> quite negative. I am looking mainly on side effects eg. vivid dream, >> lack of sleep, fatigued and constipation. I am not on crab drugs been >> dx with ms for 14 months and it is very active. >> I sleep around 6 hours a day now could this get worse. >> I have constipation now due to MS but have been working on this with >> natural remidies going OK.I understand I may compound this problem >> I don't dream this could be a positive >> My MAIN reason for looking at LDN is that I read that it can give you >> energy. Now I am reading that it can zap your energy. Is this fatigue >> happenning becuse your body is getting used to the new endorphin level. >> >> Can some long timers answer some of these questions have you had these >> symptoms are they still prevelant. >> >> I am going to try LDN even after the above. Your thoughts on the >> number of mg please (i have read 1,1.5,2.5,3.5,4.5,6 and 25).I have >> been prescribed with 4.5 mg this is what I am thinking of starting >> with. The tablets use an acidolplus filler which may help with >> constipation. >> >> >> >> >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 I stopped using Copaxone and had no trouble at all, going full-time on LDN capsules 5 months ago, but I haven't noticed any improvement or stabilization on it. I just ordered Revia tablets to mix my own liquid to give that a try, but if I feel after a few months of that that it's not doing anything in me, I'll go back to Copaxone. I know I've deteriorated on LDN, sadly... Rae Fw: [low dose naltrexone] Is LDN worth the effort >Date: Tue, 6 Dec 2005 08:09:55 -0700 > >I have been on LDN 5 1/2 months now. I understand your concern.It >always seems that the negative voices can speak louder than positive >ones. Not being troubled much by symptoms, I am no poster child for >symptom relief from LDN. I had been on Copaxone for a year. > >I had one relapse while on Copaxone and the daily injections took a >mental toll. On LDN, I have thoroughly enjoyed the frequent and vivid dreams. >Also, >my hair and fingernails are growing faster than before, though >truthfully, I did not measure this so I cannot say for certain. One or >two times I believe that LDN has contributed to wakefulness at night, >but I have experienced no fatigue that I can attribute to LDN. I take >between 4.5 and 5 mg / night (liquid method) and am thrilled with many >aspects, not least the cost. (I will pay $10 copay for 90 50mg pills - >a 2.5 year supply) > >I am so grateful to have come across this group and this drug. Not >everyone experiences it the same way, but everyone should know about it >and at least consider using it. There is no doubt in my mind that for >some people, LDN is a miracle. > > >www.nathankennard.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 it has been proven to me throughout the years that those with a chronic condition place alot of faith in places like the Mayo clinic and not enough faith in their own intuitive intelligence mixed in with some very strong anecdotal info. when you start an " unapproved drug for ms " people generally jump to conclusions be it positive or negative. there is too much evidence on LDN for it not to work for the majority. it is orchestrating a very unregulated immune system for those of us with ms be it an overactive immune system or a suppressed one depending on your school of thought. the cautious way i approached it and i'm in no way saying i am right but i started out the first month on 1.5 and increased to 3.0 and have remained at that dose with an occassional day of skipping so my body does not get use to it and if it is viral the virus could figure out a way to outsmart the LDN. hope you are still with me. constipation-plenty of magnesium. it is safe and won't interfere with meds. divide doses and don't complicate your regimen with exotic herbal combos for right now. Nausea-use ginger. once again-it is safe. As far as dreams, they are a sign of a healthy immune system. They will become quite normal after a few days or so. Lack of sleep- it went away after two days for me but then again, there is magnesium- it induces sleep . The only thing you should fear is not trying this, The odds are in your favor. It is much much safer than any drug your doctor will give you. I am a holistic practitioner here in Florida. Hace had ms for 12 years now, my lesions hace been gone for 3 years and I work out 6 days a week and do approximately 30 massages and carry the massage table. Did LDN work for me????? I combined it with diet, positive energy and many other variables but there is no doubt in my mind, I would be in a much worse place today if I had gone traditional. I am a blessed person who thinks for herself. Lesions just don't disappear. God helps people more when they are proactive. I have not written in many months as I am so busy with my practice, but I hope this story might inspire someeone as every work is true. I was terrified to try LDN. I am very cautious but so glad I made that decision. Blessings, Kathy [low dose naltrexone] Is LDN worth the effort >I have just got my prescription for LDN TODAY and am preparing to send > it to a pharmacist. I am concerned. The messages I have just read are > quite negative. I am looking mainly on side effects eg. vivid dream, > lack of sleep, fatigued and constipation. I am not on crab drugs been > dx with ms for 14 months and it is very active. > I sleep around 6 hours a day now could this get worse. > I have constipation now due to MS but have been working on this with > natural remidies going OK.I understand I may compound this problem > I don't dream this could be a positive > My MAIN reason for looking at LDN is that I read that it can give you > energy. Now I am reading that it can zap your energy. Is this fatigue > happenning becuse your body is getting used to the new endorphin level. > > Can some long timers answer some of these questions have you had these > symptoms are they still prevelant. > > I am going to try LDN even after the above. Your thoughts on the > number of mg please (i have read 1,1.5,2.5,3.5,4.5,6 and 25).I have > been prescribed with 4.5 mg this is what I am thinking of starting > with. The tablets use an acidolplus filler which may help with > constipation. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 I take LDN, though not for MS. The first week on LDN I took melatonin to help me sleep. Magnesium oxide is quite effective for constipation. > > it has been proven to me throughout the years that those with a chronic > condition place alot of faith in places like the Mayo clinic and not enough > faith in their own intuitive intelligence mixed in with some very strong > anecdotal info. when you start an " unapproved drug for ms " people generally > jump to conclusions be it positive or negative. there is too much evidence > on LDN for it not to work for the majority. it is orchestrating a very > unregulated immune system for those of us with ms be it an overactive immune > system or a suppressed one depending on your school of thought. the cautious > way i approached it and i'm in no way saying i am right but i started out > the first month on 1.5 and increased to 3.0 and have remained at that dose > with an occassional day of skipping so my body does not get use to it and if > it is viral the virus could figure out a way to outsmart the LDN. hope you > are still with me. constipation-plenty of magnesium. it is safe and won't > interfere with meds. divide doses and don't complicate your regimen with > exotic herbal combos for right now. Nausea-use ginger. once again-it is > safe. As far as dreams, they are a sign of a healthy immune system. They > will become quite normal after a few days or so. Lack of sleep- it went away > after two days for me but then again, there is magnesium- it induces sleep . > The only thing you should fear is not trying this, The odds are in your > favor. It is much much safer than any drug your doctor will give you. I am a > holistic practitioner here in Florida. Hace had ms for 12 years now, my > lesions hace been gone for 3 years and I work out 6 days a week and do > approximately 30 massages and carry the massage table. Did LDN work for > me????? I combined it with diet, positive energy and many other variables > but there is no doubt in my mind, I would be in a much worse place today if > I had gone traditional. I am a blessed person who thinks for herself. > Lesions just don't disappear. God helps people more when they are proactive. > I have not written in many months as I am so busy with my practice, but I > hope this story might inspire someeone as every work is true. I was > terrified to try LDN. I am very cautious but so glad I made that decision. > Blessings, Kathy > [low dose naltrexone] Is LDN worth the effort > > > >I have just got my prescription for LDN TODAY and am preparing to send > > it to a pharmacist. I am concerned. The messages I have just read are > > quite negative. I am looking mainly on side effects eg. vivid dream, > > lack of sleep, fatigued and constipation. I am not on crab drugs been > > dx with ms for 14 months and it is very active. > > I sleep around 6 hours a day now could this get worse. > > I have constipation now due to MS but have been working on this with > > natural remidies going OK.I understand I may compound this problem > > I don't dream this could be a positive > > My MAIN reason for looking at LDN is that I read that it can give you > > energy. Now I am reading that it can zap your energy. Is this fatigue > > happenning becuse your body is getting used to the new endorphin level. > > > > Can some long timers answer some of these questions have you had these > > symptoms are they still prevelant. > > > > I am going to try LDN even after the above. Your thoughts on the > > number of mg please (i have read 1,1.5,2.5,3.5,4.5,6 and 25).I have > > been prescribed with 4.5 mg this is what I am thinking of starting > > with. The tablets use an acidolplus filler which may help with > > constipation. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 Hi , I went off copaxone after being on it a short while due to side effects. I also went off avonex about a year after starting it due to side effects and had no problem. I just stopped it. I have never heard of anyone having a problem going off a crab drug. I do remember my neuro. saying if I had an exacerbation within a few weeks after stopping the avonex, it would be purely coincidental. If you have some concerns maybe call your neuro. Take Care > Have you or anybody here come off Copaxone and if so, how did you do it? > For example, did you slowly ease off? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 Me too! Mine are intersting, NOT nightmares.And my sleep is not disturbed. I sleep great! Nola [low dose naltrexone] Is LDN worth the effort>I have just got my prescription for LDN TODAY and am preparing to send> it to a pharmacist. I am concerned. The messages I have just read are> quite negative. I am looking mainly on side effects eg. vivid dream,> lack of sleep, fatigued and constipation. I am not on crab drugs been> dx with ms for 14 months and it is very active.> I sleep around 6 hours a day now could this get worse.> I have constipation now due to MS but have been working on this with> natural remidies going OK.I understand I may compound this problem> I don't dream this could be a positive> My MAIN reason for looking at LDN is that I read that it can give you> energy. Now I am reading that it can zap your energy. Is this fatigue> happenning becuse your body is getting used to the new endorphin level.>> Can some long timers answer some of these questions have you had these> symptoms are they still prevelant.>> I am going to try LDN even after the above. Your thoughts on the> number of mg please (i have read 1,1.5,2.5,3.5,4.5,6 and 25).I have> been prescribed with 4.5 mg this is what I am thinking of starting> with. The tablets use an acidolplus filler which may help with> constipation.>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2005 Report Share Posted December 7, 2005 > > Hello and Everybody, > > Have you or anybody here come off Copaxone and if so, how did you do it? > For example, did you slowly ease off? I have been on it for about 5 years, > but now that I have been on LDN for a few months, am seriously considering > coming off the Copaxone but am a bit scared. My biggest problems are lack > of balance (couldn't walk a straight line to save my life) and spasticity in > my legs. I have not noticed any improvements since taking the LDN, but if > it has stopped the progression of MS, then it's worth its weight in gold! I > just ordered GABA and MSM online to help with the spasticity too. > > Anyways, back to the Copaxone. Please let me know if any of you have come > off of it, how you did it and how it went. > > Thanks for your help! > > -- I used Copaxone for three years and stopped after I filled my LDN prescription. No negative reactions. Been on LDN since March 2005. It's worked so much better than Avonex, Novantrone, Copaxone. Artie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2005 Report Share Posted December 7, 2005 LDN is absolutely worth it. The insomnia and vivid dreams do not last forever. For some a few days, for other a few weeks. Constipation did not become an issue for me for year after beginning LDN and there are ways to deal with it. We take LDN to prevent MS from progressing. I have had very little symptom relief, but I'm hooked for life... Quote Link to comment Share on other sites More sharing options...
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