Re: Is it normal for most to feel sick starting ldn?

[Guest guest]

, I feel compelled to respond to your e-mail to Marcie, even though

I know she can certainly stand up for herself! I think you're

misunderstanding. No one's saying side effects aren't worth considering and

that doing our own research isn't important.

I've been part of this group on and off for two years now and one of the

things I have noticed is that a number of people fail to actually DO the

research. If you (that's a generic " you " ) read the information Aletha sends

from Dr. Lawrence in the welcome packet and you read the the official LDN

site--www.ldninfo.org--information about side effects is clearly presented.

Dr. Lawrence, in particular, goes into quite a bit of detail about the

possibility of flare-ups of old and/or temporary symptoms when starting LDN.

It seems that many people who are new to LDN are expecting miracles. I

understand that sometimes people are feeling desperate--MS can be

devastating. But the primary reason to take LDN is to prevent disease

progression. If you also experience symptom relief, you're one of the lucky

ones. Of course, everyone has to evaluate their own situations and make

their own decisions. A great many of us have had phone consultations with

Dr. Bihari because of questions like these.

[Guest guest]

Can I ask something here? Not pointing fingers or trying to make

anyone uncomfortable. I'm asking this for myself with no agenda or

ulterior motive. What exactly is this group for? I'm fairly new so

maybe I am expecting more of a group or too little or? Is this a

group where regulars meet with no interuptions? Or is it a group to

discuss what you have learned at the read only LDN sight? Is this a

support group or is it used to show others how many are on LDN? Or

is it an add on to payed serices? Meaning those that payed for

consults, get the added benefit of this group?

Again I don't mean any disrespect. I just want to get an idea of how

things work here. That way I am less likely to upset anyone.

Take Care and Thank you

ps, I also wanted to ask what detail Dr. Lawrence goes into? What I

read was kinda vague. Meaning it didn't go into detail it just

listed symptoms as a whole. I'm wondering if I missed something.

I'm really curious about this all over numb feeling. It's really

weird. I did read as much as I could but may have missed something.

>

> , I feel compelled to respond to your e-mail to Marcie,

even though

> I know she can certainly stand up for herself! I think you're

> misunderstanding. No one's saying side effects aren't worth

considering and

> that doing our own research isn't important.

>

> I've been part of this group on and off for two years now and one

of the

> things I have noticed is that a number of people fail to actually

DO the

> research. If you (that's a generic " you " ) read the information

Aletha sends

> from Dr. Lawrence in the welcome packet and you read the the

official LDN

> site--www.ldninfo.org--information about side effects is clearly

presented.

> Dr. Lawrence, in particular, goes into quite a bit of detail about

the

> possibility of flare-ups of old and/or temporary symptoms when

starting LDN.

>

> It seems that many people who are new to LDN are expecting

miracles. I

> understand that sometimes people are feeling desperate--MS can be

> devastating. But the primary reason to take LDN is to prevent

disease

> progression. If you also experience symptom relief, you're one of

the lucky

> ones. Of course, everyone has to evaluate their own situations and

make

> their own decisions. A great many of us have had phone

consultations with

> Dr. Bihari because of questions like these.

>

>

>

[Guest guest]

I appreciate your feedback, . However, I don't feel I said

anything that one would feel the need to stand up for. I was

stating my opinion, just as others do.

I guess to me the willingness and ability to deal with side effects

and such is a very individual thing that each person needs to

decide. I certainly feel I have done extensive reading and research

here and at other sites regarding ldn, looking at side effects,

anticipated results, and antecdotal evidence. This is so important

to me as one of my closest friends is currently on ldn, and I am

wanting to start it myself for my illness.

I don't think it's a matter of people not being aware of the

possible side effects from the information made available at the

website and in the welcome packet. It's that the side effects one

experiences (if any) are different from person to person. I would

be very surprised if anyone who is currently taking ldn or is

thinking of doing so hasn't looked at those things as carefully as I

have.

I just think it is important that everyone's feelings are respected

regarding their concerns. One can read the information and still

want to ask other people currently on ldn what their experiences

are. I would imagine many people cannot afford a consultation with

Dr. Bihari to ask these questions...I know I certainly can't.

I think that has generally everyone has been respectful, and I did

not mean to imply otherwise. I apologize if my comment was

considered " out of line " .

Sincerely,

[Guest guest]

Thank you for your very thoughtful message

Aletha

[low dose naltrexone] Re: Is it normal for most to feel sick starting

ldn?

>I appreciate your feedback, . However, I don't feel I said

> anything that one would feel the need to stand up for. I was

> stating my opinion, just as others do.

>

> I guess to me the willingness and ability to deal with side effects

> and such is a very individual thing that each person needs to

> decide. I certainly feel I have done extensive reading and research

> here and at other sites regarding ldn, looking at side effects,

> anticipated results, and antecdotal evidence. This is so important

> to me as one of my closest friends is currently on ldn, and I am

> wanting to start it myself for my illness.

>

> I don't think it's a matter of people not being aware of the

> possible side effects from the information made available at the

> website and in the welcome packet. It's that the side effects one

> experiences (if any) are different from person to person. I would

> be very surprised if anyone who is currently taking ldn or is

> thinking of doing so hasn't looked at those things as carefully as I

> have.

>

> I just think it is important that everyone's feelings are respected

> regarding their concerns. One can read the information and still

> want to ask other people currently on ldn what their experiences

> are. I would imagine many people cannot afford a consultation with

> Dr. Bihari to ask these questions...I know I certainly can't.

>

> I think that has generally everyone has been respectful, and I did

> not mean to imply otherwise. I apologize if my comment was

> considered " out of line " .

>

> Sincerely,

>

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