Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Connie My Mom was one of the ones who could not take seroquel. Her hallucinations got worse. From the beginning she would hallucinate after taking the meds. It had no beneficial effects for her. I really don't remember what they put her on after the seroquel. Its been too long ago. But I do remember Seroquel because of all the problems it caused. Jacqui in So Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 My mom, too, was put on Seroquel for aggitation and it was at its lowest dose. When we took her off it completely -- she 'woke up' even more. I'm a firm believer that mom was one of those 50% who could handle none of the anti-psychotics regardless to the small dosage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Here's the suggested dosage of Seroquel for those w/ LBD: Starting dose: 25 mg qhs Suggested Titrated Schedule: Increase in 25 mg, increments q3days (every 3 days) Typical therapeautic Dosage: 25 mg qhs (?? - don't know what 'qhs' means) - 100 mg qam (every AM) / 400 mg qpm (every PM) This was found here: http://www.lewybodydementia.org/Boevelink.php (scroll to the bottom and click the link w/in the sentence that reads - Click here to view, download or print the article: DLB- BoeveContinuum04.pdf * Please include the Permission/Copyright page with all printed copies.) The document is large (33 pages) -- the above info is found on page 16 -- under Quetiapine (the other name for Seroquel) Hope this info helps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Dad was on Rispiridol, which is in the same class of meds as Seroquel. Diane > > Connie > > My Mom was one of the ones who could not take seroquel. Her hallucinations > got worse. From the beginning she would hallucinate after taking the meds. It > had no beneficial effects for her. > > I really don't remember what they put her on after the seroquel. Its been > too long ago. But I do remember Seroquel because of all the problems it caused. > > Jacqui in So Florida > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 wrote: >Here's the suggested dosage of Seroquel for those w/ LBD: > >Starting dose: 25 mg qhs >Suggested Titrated Schedule: Increase in 25 mg, increments q3days >(every 3 days) >Typical therapeautic Dosage: 25 mg qhs (?? - don't know what 'qhs' >means) - 100 mg qam (every AM) / 400 mg qpm (every PM) > > q. = every h.s. = bedtime Mom started out on 25 mg once a day (at bedtime). The doctor increased it (without telling me) to 25 mg twice a day, morning and bedtime. It left her very drowsy and lethargic, so I requested that we go back to 25 mg at bedtime. He reduced it to 37.5 mg at bedtime and the drowsiness is much improved. Seroquel has been great for Mom in greatly diminishing her hallucinations and paranoia. Exelon has worked wonders in making her more alert, increasing her word finding ability and improving her short term memory. She is so much more like the Mom of old...although I must say that with these improvements, she chafes even more at being in the nursing home. There's up and down sides to everything. jacquie (from Puget Sound) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 qhs means taken at bedtime hugs, sharon m ---- jacqui wrote: wrote: >Here's the suggested dosage of Seroquel for those w/ LBD: > >Starting dose: 25 mg qhs >Suggested Titrated Schedule: Increase in 25 mg, increments q3days >(every 3 days) >Typical therapeautic Dosage: 25 mg qhs (?? - don't know what 'qhs' >means) - 100 mg qam (every AM) / 400 mg qpm (every PM) > > q. = every h.s. = bedtime Mom started out on 25 mg once a day (at bedtime). The doctor increased it (without telling me) to 25 mg twice a day, morning and bedtime. It left her very drowsy and lethargic, so I requested that we go back to 25 mg at bedtime. He reduced it to 37.5 mg at bedtime and the drowsiness is much improved. Seroquel has been great for Mom in greatly diminishing her hallucinations and paranoia. Exelon has worked wonders in making her more alert, increasing her word finding ability and improving her short term memory. She is so much more like the Mom of old...although I must say that with these improvements, she chafes even more at being in the nursing home. There's up and down sides to everything. jacquie (from Puget Sound) -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 qhs--q=every HS-hour of sleep --------------------------------- Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 That's interesting... why can't they just write EHoS J/K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Seroquel seems to be the " preferred " atypical in LBD and doesn't have as many extrapyramidal side effects as some of the other choices. Extrapyramidal side effects are primarily those of movement, which would be really bad in people with PD-like disorders. All of the atypicals are potent drugs; lots of GPs and internists think they're all the same, which is sooo not the case. An experienced prescriber is key to success with any of these agents. The same advice as always applies; start low, go slow. If your LO is experiencing symptoms of psychosis, Seroquel is one of a number of reasonable choices. I wouldn't worry too much - if it doesn't work well for him, there are other choices, and he probably won't be significantly harmed. Do watch out for drug/drug and drug/food interactions. Seroquel is metabolized in the liver, and there are foods, like the infamous grapefruit juice, that can substantially increase the concentration of Seroquel in the blood. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Nothing like following up to oneself... Something to consider; some clinicians feel that the psychostimulants work quite well at reducing the hallucinations, which is completely 180 degrees away from what you would *think*, but I can attest that it works. Dr. Boeve has written about this, as have other researchers. It's certainly an option that should be on the table. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 cathy, check with teh council of aging adn the elders affairs offices, they have alot of governemnt funded programs that your mom may be eleigilbe for, including caregivers, they should be in your blue pages, government pages of your phone book, good luck and hugs, sharon a-m ---- james candy wrote: Thank you, I am passing on this info to my mom. Are you saying that my mom could get a health aide come to their home and medicare would pay for it? Kathy -- I am daugher of Leonard, diagnosed May 2004, probably had lbd since 1993,.Dad had a serious fall in 7/05 causing him to hav hip surgery .After that he developed aspiration pneumonia 7/05 with pulmonary embolyis, which he almost died from. He had a 2nd bout of aspiration pneumonia and uti 8/05. He died when his blood pressure fluctuations started dropping without coming back up on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2007 Report Share Posted March 10, 2007 Kathy, Medicare won't pay for much, But there are a lot of programs that are paid for through grants. When I had Mom in daycare, I was quite surprised when they asked what Mom could afford to pay. And they just took my word for it. I didn't have to go through a lot of paper work or anything. And one day while I had her there, they said they had a new shower installed and a new shower person. Did I want Mom to get a shower while she was at day care! Did I ever. When I asked what the charges were, they said nothing. It was all taken care of through the grant. I laughed and said I hope you can get her in the shower. They had the neatest shower person. And she had one every day she was there. And it was such a relief for me as it took me hours to get her showered and dressed. And my shower was down a flight of stairs and she was having a harder and harder time climbing the stairs. The point being, they do have a lot of programs and the hardest part is taking the time and energy to find them. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Re: Re: Re: seroquel cathy, check with teh council of aging adn the elders affairs offices, they have alot of governemnt funded programs that your mom may be eleigilbe for, including caregivers, they should be in your blue pages, government pages of your phone book, good luck and hugs, sharon a-m ---- james candy wrote: Thank you, I am passing on this info to my mom. Are you saying that my mom could get a health aide come to their home and medicare would pay for it? Kathy -- I am daugher of Leonard, diagnosed May 2004, probably had lbd since 1993,.Dad had a serious fall in 7/05 causing him to hav hip surgery .After that he developed aspiration pneumonia 7/05 with pulmonary embolyis, which he almost died from. He had a 2nd bout of aspiration pneumonia and uti 8/05. He died when his blood pressure fluctuations started dropping without coming back up on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 Kathy, I am in Ohio and as long as we had a " skilled " care, ie. Nurse, PT(in Mom's case) seeing her per the doctors orders, Medicare paid for the aide. As long as it does not fall into the " custodial care " . You may want to check out their website, Medicare.org I am sure it will give you the info you need, or ask one of the visiting companies, ie. Physician's Choice, Visiting Nurses Association, etc. I would think your doctor's office could lend a hand here. The company, Physician's Choice, gave me more info than the doctor's office. Good luck and if I can be of further assistance, please don't hesitate to ask. Oh, I almost forgot... Also I learned that if you do have physical therapy(which was wonderful for Mom, reminded her to walk upright, and gave her exercises she could do in her apartment to keep her leg strength) that Medicare pays for this service upfront, so make sure you get all your visits you are entitled to, if you miss one, add it at the end(here it is 10 visits per order). james candy wrote: Thank you, I am passing on this info to my mom. Are you saying that my mom could get a health aide come to their home and medicare would pay for it? Kathy --------------------------------- Be a PS3 game guru. Get your game face on with the latest PS3 news and previews at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
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