Re: Diatribe of a two year user by Reg

[Guest guest]

Hi, Reg --I'm wondering from reading some of the ldn postings ( I can't

read them all!), what are crab drugs? Are the injectable drugs (avonex,

copaxone,rebif, etc.) for ms considered crab drugs, and what does

" crab " mean?And also, I thought I'd just toss this in--my neurologist

totally poo-pooed ldn, said she knew about it , but none of her

patients found it effective, it wasn't any good. . . think I need to

find a new neurologist! (for other reasons, as well).

Thanks so much

Eliza

On Dec 8, 2005, at 10:33 AM, Reg Kreil wrote:

> Hi there Hyper Hans and everyone else

> I have been reading all the posts (except for when people don't trim

> off the

> excess as said before when you get the digest reading the same thing

> over

> and over is a drag.) and I am one of the very happy LDN users that

> doesn't

> get up at all most nights,depending on how much I have had to drink

> before

> bed of course.

> I have been on three mgs for over two years now and while I am no

> " poster

> child " for LDN I have very few bad days and am not loosing ground at all

> compared to those without the benefits of LDN.

> My nueropathic pain has never come back and I have not ever felt the

> need to

> self inject,probably much to the dismay of the MS society here,and

> being a

> mentor for this said society I have been (not so quietly promoting the

> benefits of this regimin)kind of against their will.

> I rankled a few people at the last meeting by asking a rep from the

> society

> why we are not researching this drugs actions on how MS is being

> helped by

> this very cheap(at least around here) drug.

> There was a mumbled " well you gotta be carefull with the long term

> effects

> of " alternative " treatments,and he went on to another question and

> ignored

> me from then on... I saw a lot of promtional papers and products from

> Teva

> nueroscience (Rebif) so I knew who I was fighting here.

> What made me mad was that the first thing this person who is supposed

> to be

> their P.R. spokesman said was " We are working at trying to put

> ourselves out

> of business " meaning the M.S. society, And he said this with a big

> smile on

> his face like we were supposed to believe it.How many times have I

> heard

> this before?

> To get back to the suggestion that we have to watch out for the long

> term

> effects well what are the long term effects of the injectable crab

> drugs?

> I think they sound pretty dire to me,fluelike symptoms,taking massive

> amounts of tylenol or such before the shot just to help with

> this,injection

> site cell death,and suicidal tendancys, plus possible kidney problems

> or

> liver failure and now maybe a tendancy toward osteoporosis? Lets see

> maybe a

> little sleeplessness,and a few wild dreams ain't that bad Oh sure

> there has

> not been any tests done and probably the results, in the event of a

> test

> being done, will only be inconclusive and need to be redone but

> except for

> a very few postings stating that even the smallest amount of

> naltrexone is

> causing big problems there has been very little bad press.

> Maybe the people with those problems should use only the crab drugs as

> they

> were those that these have been designed for.

> Now I never meant to rile anyone I just had to vent.

> Thanks for being such a compassionate group

> Reg

>

>

>

>

>

>

>

[Guest guest]

ABCR = same letters as CRAB

copaxone, rebif, avonex, betaseron

Some people say they're on a CARB-free diet when they stop taking them

CRAB

CARB

ABCR

all the same

Re: [low dose naltrexone] Diatribe of a two year user by Reg

Hi, Reg --I'm wondering from reading some of the ldn postings ( I can't read them all!), what are crab drugs? Are the injectable drugs (avonex, copaxone,rebif, etc.) for ms considered crab drugs, and what does "crab" mean?And also, I thought I'd just toss this in--my neurologist totally poo-pooed ldn, said she knew about it , but none of her patients found it effective, it wasn't any good. . . think I need to find a new neurologist! (for other reasons, as well).

[Guest guest]

Thanks for the info, Larry!

Eliza

On Dec 9, 2005, at 6:04 PM, LarryGC wrote:

> ABCR = same letters as CRAB

>  

> copaxone, rebif, avonex, betaseron

>  

> Some people say they're on a CARB-free diet when they stop taking them

>  

> CRAB

> CARB

> ABCR

> all the same

>  

> Re: [low dose naltrexone] Diatribe of a two year user by Reg

>

> Hi, Reg --I'm wondering from reading some of the ldn postings ( I can't

> read them all!), what are crab drugs? Are the injectable drugs (avonex,

> copaxone,rebif, etc.) for ms considered crab drugs, and what does

> " crab " mean?And also, I thought I'd just toss this in--my neurologist

> totally poo-pooed ldn, said she knew about it , but none of her

> patients found it effective, it wasn't any good. . . think I need to

> find a new neurologist! (for other reasons, as well).

>

>

>

>

>