Re: LDN and Epstein Barr virus

[Guest guest]

Hi Pat,

You have done the right thing...taking things into your own hands

There is a link between Epstein-Barr and MS. Most likely it is a " Trigger "

that commences MS.

With that in mind it would be smart to take LDN. Go to

www.copingandprevailing.com If you cannot afford to pay for the book send

me your mailing address and I'll send it to you.

Sorry about your recent loss.

Regards,

Tom

[low dose naltrexone] LDN and Epstein Barr virus

> Has anyone heard of LDN helping Epstein barr virus?

>

> I have that the chronic active form.

>

> Or myeloproliferative disorders, I may have that also.

>

> I started taking LDN 3 nights ago, I feel so much better.

> I am also waiting for a verdict on MS.

>

> I had some of this around from my husband who died 2 months ago, so

> since no doctor will commit to exactly what is wrong with me, I

> decided to take matters into my own hands.

>

> This has been going on far too long, I have been searching for

> answers for over 16 years, and undergoing MS, and other tests for a

> year now. I have many many lesions, but no " O " bands, I dare not go

> into all my abnormal tests, I don't have time to type it right now.

>

> Or go into all the disorders I have.

> Pat

>

>

>

>

>

>

>

>

[Guest guest]

Tom, I don't mean to be inpatient, but I don't want to wait for a

book, I have been trying to be patient for over 16 years while I

have gotten the run around. Really I'm not mad, ,I just hate

waiting, and waiting. I would like answers.

((())) Pat

--- In low dose naltrexone , " tom bayuk " <tbayuk@c...>

wrote:

>

> Hi Pat,

> You have done the right thing...taking things into your own hands

>

> There is a link between Epstein-Barr and MS. Most likely it is

a " Trigger "

> that commences MS.

>

> With that in mind it would be smart to take LDN. Go to

> www.copingandprevailing.com If you cannot afford to pay for the

book send

> me your mailing address and I'll send it to you.

>

> Sorry about your recent loss.

> Regards,

> Tom

>

> [low dose naltrexone] LDN and Epstein Barr virus

>

>

> > Has anyone heard of LDN helping Epstein barr virus?

> >

> > I have that the chronic active form.

> >

> > Or myeloproliferative disorders, I may have that also.

> >

> > I started taking LDN 3 nights ago, I feel so much better.

> > I am also waiting for a verdict on MS.

> >

> > I had some of this around from my husband who died 2 months ago,

so

> > since no doctor will commit to exactly what is wrong with me, I

> > decided to take matters into my own hands.

> >

> > This has been going on far too long, I have been searching for

> > answers for over 16 years, and undergoing MS, and other tests

for a

> > year now. I have many many lesions, but no " O " bands, I dare not

go

> > into all my abnormal tests, I don't have time to type it right

now.

> >

> > Or go into all the disorders I have.

> > Pat

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

>

> Tom, I don't mean to be inpatient, but I don't want to wait for a

> book, I have been trying to be patient for over 16 years while I

> have gotten the run around. Really I'm not mad, ,I just hate

> waiting, and waiting. I would like answers.

> ((())) Pat

--

Pat,

I can understand your frustration. Why don't you look for new doctors?

Maybe he/she would take your health concerns in a different direction.

If you're already with MS-like symptoms and everything else has been

ruled out then I don't see why you're not officially diagnosed as

having MS.

Artie

LDN user since March 2005

[Guest guest]

> >

> > Hi Pat,

> > You have done the right thing...taking things into your own hands

> >

> > There is a link between Epstein-Barr and MS. Most likely it is

> a " Trigger "

> > that commences MS.

> >

> > With that in mind it would be smart to take LDN. Go to

> > www.copingandprevailing.com If you cannot afford to pay for the

> book send

> > me your mailing address and I'll send it to you.

> >

> > Sorry about your recent loss.

> > Regards,

> > Tom

> >

> > [low dose naltrexone] LDN and Epstein Barr virus

> >

> >

> > > Has anyone heard of LDN helping Epstein barr virus?

> > >

> > > I have that the chronic active form.

> > >

> > > Or myeloproliferative disorders, I may have that also.

> > >

> > > I started taking LDN 3 nights ago, I feel so much better.

> > > I am also waiting for a verdict on MS.

> > >

> > > I had some of this around from my husband who died 2 months ago,

> so

> > > since no doctor will commit to exactly what is wrong with me, I

> > > decided to take matters into my own hands.

> > >

> > > This has been going on far too long, I have been searching for

> > > answers for over 16 years, and undergoing MS, and other tests

> for a

> > > year now. I have many many lesions, but no " O " bands, I dare not

> go

> > > into all my abnormal tests, I don't have time to type it right

> now.

> > >

> > > Or go into all the disorders I have.

> > > Pat

========

Pat,

If E.B. is considered autoimmune then LDN will work on it. Since you are having

good results on the LDN then stick with it.

[Guest guest]

My cousin had Epstine Bar as a child, I had mono at 18. The symptoms and lesions on the brain and spine were enough for my Kaiser Neuro to diagnose without a spinal tap.

I assume that LDN has stopped my MS from progressing and that any current mobility issues I have are a result of inadequate exercise; partly due to having a job where I sit for 8-12 hours a day.

-

[Guest guest]

I would be curious as to why you don't have a diagnoses of ms

with " many lesions " ? It seems that lesions are the clincher for a

diagnoses. They should base diagnoses on symptoms but many neuro's

need to see that scarring before they commit.

I had mono when I was younger with scarlet fever. Not sure of the

relationship between epstein barr and mono. I had heard they were the

same but forgot.

Thats great that the ldn is making you feel better. I'm not sure about

how effective LDN is for ebstein barr. Is it not viral?

Take Care

> Tom, I don't mean to be inpatient, but I don't want to wait for a

> book, I have been trying to be patient for over 16 years while I

> have gotten the run around. Really I'm not mad, ,I just hate

> waiting, and waiting. I would like answers.

>

[Guest guest]

>

> I would be curious as to why you don't have a diagnoses of ms

> with " many lesions " ? It seems that lesions are the clincher for a

> diagnoses. They should base diagnoses on symptoms but many neuro's

> need to see that scarring before they commit.

>

> I had mono when I was younger with scarlet fever. Not sure of the

> relationship between epstein barr and mono. I had heard they were the

> same but forgot.

>

> Thats great that the ldn is making you feel better. I'm not sure about

> how effective LDN is for ebstein barr. Is it not viral?

>

> Take Care

========

Other diseases can cause lesions in the brain, not just MS. MS is supposed to

be diagnosed by a combination of clinical findings & other diagnostic

procedures...like, what the doc has you do in his office and tests he performs

on you in the office, Evoked Potentials, Symptoms, you must have had two

separate exacerbations in 2 different areas, MRI, spinal tap, etc...

[Guest guest]

I had a spinal, high MBP, high IgG CSF serum, no " O " bands, (each

neuro , 3of them has said they rely on the " O " bands)

Abnormal ABR, abnormal SSEP, abnormal EMG, NORMAL VEP, But all these

tests were done by a traveleing tech, in a storage room, with a lap

top with a broken screen, he pulled out a few antiquated leeds form

a cardboard box,stuck 4-5 of them on my head, gave me a broken piece

of black plastic and told me to hold it over one eye. The ABR was

done at one sound level only, all four tests took less than a hour.

and that was including set up time and check out time. I wonder how

accurate they were? I felt like I was in a back room abortion

clinic, with the old chairs and equiptment stacked around.

First MRI multiple rounded and oval hyperintensities, in the deep

white matter and both cerebral hemispheres, and on the 3rd and 4th

lateral ventricals.

Second MRI, the ventrical lesions were gone, but other new lesions

were seen. Showing progression of a demyelinating brain disease.

Third MRI no change, except one frontal lobe lesion very slightly

reduced, no inhancement, but I had been on nasal steriods for 6 days

prior, don't know if that would effect it or not.

3rd MRI of brain, thorasic, and partial c-spine, with and without

contrast took 24 minutes.

1st one took 1 hour and 45 minutes(brain MRI and MRA)W/WO contrast.

2nd took 1 hour and 45minutes of brain and c-spine W/WO contrast.

Some how that 3rd MRI length doesnt seem right.

Two trips to ER in 4 months once for scotomas, one for loss of

feeling from waist down.

1st neuro said the only thing that constatutes an attack is total

loss of vision in at least one eye, or inability to walk. DX fibro

2nd neuro no " O " bands no MS, don't need to come back, you have fibro

3rd neuro DX fibro, chronic fatuige, chronic active epstein bar, and

migranes, and a demyleinating brain disease. I am still with him, he

knows I don't buy fibro, or migraines. He says we will talk on the

12th and see about treatment. ????treatment for what? He says we

will talk about that then.

That is a brief discription of it. They all what those " O "

bands,they all say I am too old to get MS, Im 53, but I have been

going to doctors for over 16 years trying to find out what is wrong,

they say fibro, stress, depression and give me a script for

antidepressants. This used to come and go but got closer and closer

to gether, since Feb. I no longer goes away,and has gotten much

worse.

Symptoms? all of them, except being unable to walk and going blind,

although I have lost parts of my vision, and now have probably

permanent vision loss in my left eye, I have had doubled vision

since april and eye pain.

Treatments? Provigal for fatuige, and Trazadone for sleep. That's it.

So I started LDN on my own 12-17-05 but my PCP will precribe at my 1-

23-06 appt. I just happened to have some from my husband, so I am

using it now. The doc's don't know yet.

Well that's my novel.

Pat

> >

> > I would be curious as to why you don't have a diagnoses of ms

> > with " many lesions " ? It seems that lesions are the clincher for

a

> > diagnoses. They should base diagnoses on symptoms but many

neuro's

> > need to see that scarring before they commit.

> >

> > I had mono when I was younger with scarlet fever. Not sure of

the

> > relationship between epstein barr and mono. I had heard they

were the

> > same but forgot.

> >

> > Thats great that the ldn is making you feel better. I'm not

sure about

> > how effective LDN is for ebstein barr. Is it not viral?

> >

> > Take Care

> ========

>

> Other diseases can cause lesions in the brain, not just MS. MS is

supposed to be diagnosed by a combination of clinical findings &

other diagnostic procedures...like, what the doc has you do in his

office and tests he performs on you in the office, Evoked

Potentials, Symptoms, you must have had two separate exacerbations

in 2 different areas, MRI, spinal tap, etc...

>

[Guest guest]

Yes I realize other diseases show lesions. ALS is one. Neuro's claim

that ms lesions present themselves in a unique shape and region in the

brain.

Actually they are phasing out the old diagnostic criteria. Many

neuro's feel symptoms are enough. Doctors are being trained to

recognize ms by symptoms alone. MRI's are not infallible nor are

spinal taps. Evoked potientials can be caused by things other than ms.

--- In low dose naltrexone , " Bren " <TwisterAlley2@w...>

wrote:

>

> Other diseases can cause lesions in the brain, not just MS. MS is

supposed to be diagnosed by a combination of clinical findings & other

diagnostic procedures...like, what the doc has you do in his office and

tests he performs on you in the office, Evoked Potentials, Symptoms,

you must have had two separate exacerbations in 2 different areas, MRI,

spinal tap, etc...

>

[Guest guest]

I'm sure you will find that ALS (and PLS) don't have lesions at all.

They are diseases diagnosed primarily on symptoms and by eliminating

other diseases with similar symptoms which do have specific tests.

There are no specific tests for ALS, though things like EMGs etc are

used to help contribute to a diagnosis.

wrote:

> Yes I realize other diseases show lesions. ALS is one.