Re: Novantrone for MS - please help [OT]/

[Guest guest]

Why have you decided to do Novantrone? Is LDN not halting your disease

progression? Also, how long have you been on LDN?

[Guest guest]

Thank you for writing, . It is not I, but my best friend, that has MS. She is trying to get LDN from her doc, but has not been pushing hard enough (in my opinion). Why she has decided to do this is because, again in my opinion, of the mindset of ours in this country that drugs and doctors are gods. Yest she just told me she is going the LDN and glyco route the day before! Funny (NOT) thing is that I believe her neuro is open to LDN!! Victor.Bren <TwisterAlley2@...> wrote: Why have you decided to do Novantrone? Is LDN not halting your disease progression? Also, how long have you been on LDN? __________________________________________________

[Guest guest]

, what LDN dosage are you on? KIKI

[Guest guest]

Hi Bren... I'm still taking naltrexone for now, but it is making me very stiff...but after today's gyn appointment I don't know if I want to take the Novantrone..my gyn doctor gave me a brochure for me to read and look up on the internet... he told me after I read about it, and if I have any questions he will sit down and talk to me about it ...this is the website he told me to go to www.glycoscience.org I'm leaning torched this ins tead of the chemo.. Bren <TwisterAlley2@...> wrote: Why have you decided to do Novantrone? Is LDN not halting your disease progression? Also, how long have you been on LDN? __________________________________________________

[Guest guest]

Hi Bren... I'm still taking naltrexone for now, but it is making me very stiff...but after today's gyn appointment I don't know if I want to take the Novantrone..my gyn doctor gave me a brochure for me to read and look up on the internet... he told me after I read about it, and if I have any questions he will sit down and talk to me about it ...this is the website he told me to go to www.glycoscience.org I'm leaning torched this ins tead of the chemo.. Bren <TwisterAlley2@...> wrote: Why have you decided to do Novantrone? Is LDN not halting your disease progression? Also, how long have you been on LDN? __________________________________________________

[Guest guest]

, PLEASE write Dr. Lawrence @ bob.lawrence@... and let him know that you are planning on trying this drug - and ask him what he knows about it and thinks about it. PLEASE? Just tell him that you got his e-mail from the LDN group. I'd suggest in the subject line to write something along the lines of "MS and Novantrone - thinking of trying." He will write you back. Victor. Sims <vjsims63066@...> wrote: I decided after I read the information my gyn doctor gave me today im thinking of trying that med he said he already have 1 patient with MS on it and she is doing great..she

has little to no tingling feeling left... tf <luxtf@...> wrote: Hi Hmm,I also do wonder about what will come next.Willhave a doc visit in jan.Somewhat I hope Tysabri orsomething else becomes available,as I wouldn't liketoo much to go back on CRAB's.That's been one of the reasons to try LDN;I'm afraidthis is not for me cause of spasticity,intestinal painetc.I felt a lot better after I had stopprd takingit,though it had been 1.5 mg only.Regs,Tom--- Sims <vjsims63066@...> wrote:> Reg, Tom> > Im going to start Novantrone next month, now that> you are finished with your treatments of> Novantrone!! I wonder what are you taking now? Are> you

taking LDN?Thanks in advance for any information> you can give!!> > > __________________________________________________

[Guest guest]

Hi again , I'd also suggest you ask Dr. Lawrence (see other post from me) about glycos. He is very excited about this. I have investigated these to the hilt, and also just finished reading "Sugars That Heal" I feel this is the answer for many people. The only thing about them is that they often take a few months to feel changes, as it is not a drug with immediate effects like we are used to in the Western culture. My friend is just now starting these for her MS. I'm excited!!! One comment: NO drug has EVER reversed MS - but glycos have! Novantrone will NOT reverse MS - even stated on their own website. May kill you though. All food for thought . . . Victor. Sims <vjsims63066@...> wrote: Hi Bren... I'm still taking naltrexone for now, but it is making me very stiff...but after today's gyn appointment I don't know if I want to take the Novantrone..my gyn doctor gave me a brochure for me to read and look up on the internet... he told me after I read about it, and if I have any questions he will sit down and talk to me about it ...this is the website he told me to go to www.glycoscience.org I'm leaning torched this ins tead of the chemo.. Bren <TwisterAlley2@...> wrote: Why have you decided to do Novantrone? Is LDN not halting your disease progression? Also, how long have you

been on LDN? __________________________________________________

[Guest guest]

I agree. Very scary drug and very toxic.

Re: [low dose naltrexone] Novantrone for MS - please help [OT]/

,

PLEASE write Dr. Lawrence @ bob.lawrence@... and let him know that you are planning on trying this drug - and ask him what he knows about it and thinks about it.

PLEASE?

Just tell him that you got his e-mail from the LDN group. I'd suggest in the subject line to write something along the lines of "MS and Novantrone - thinking of trying." He will write you back.

Victor.

Sims <vjsims63066@...> wrote:

I decided after I read the information my gyn doctor gave me today im thinking of trying that med he said he already have 1 patient with MS on it and she is doing great..she has little to no tingling feeling left...

tf <luxtf@...> wrote:

Hi Hmm,I also do wonder about what will come next.Willhave a doc visit in jan.Somewhat I hope Tysabri orsomething else becomes available,as I wouldn't liketoo much to go back on CRAB's.That's been one of the reasons to try LDN;I'm afraidthis is not for me cause of spasticity,intestinal painetc.I felt a lot better after I had stopprd takingit,though it had been 1.5 mg only.Regs,Tom--- Sims <vjsims63066@...> wrote:> Reg, Tom> > Im going to start Novantrone next month, now that> you are finished with your treatments of> Novantrone!! I wonder what are you taking now? Are> you taking LDN?Thanks in advance for any information> you can give!!> > > __________________________________________________

[Guest guest]

, why don't you try skipping a day of LDN and see if you are still stiff. If you are, it is not the LDN. If you are not, start with 1.5mgs for 10 days and then build to 2mgs for 10 days and so on and see where the stiffness begins.

Too much Stiffness is the key to too much LDN for MSers. When Dr. B put me on 6mgs, he said if I was stiff, to go back to 4.5. Two yrs later it made me stiff and now I am back on 4.5mgs.

****If you are taking liquid, alot of us found it to be more potent so 3mgs liquid may work like 4.5 capsule. It does for me. Worth a try. Happy Holidays Kiki

[Guest guest]

Hello Victor, I didn't get this information from the email group...I had a Gyn doctors appointment yesterday and he gave me the website to goto and read up on..and if I have any queswtions about it he want me to come back in and he will explain it to me..I think when I told him I was getting ready to start chemo he decided to tell me about this med, I guess cause he knows chemo is bad for a person...but when I make the appointmnet with him and talk with him about it I will let y ou guys know what he said... Victor Mohyla <vmohyla@...> wrote: , PLEASE write Dr. Lawrence @ bob.lawrence@... and let him know that you are

planning on trying this drug - and ask him what he knows about it and thinks about it. PLEASE? Just tell him that you got his e-mail from the LDN group. I'd suggest in the subject line to write something along the lines of "MS and Novantrone - thinking of trying." He will write you back. Victor. Sims <vjsims63066@...> wrote: I decided after I read the information my gyn doctor gave me today im thinking of trying that med he said he already have 1 patient with MS on it and she is doing great..she has little to no tingling feeling left... tf <luxtf@...> wrote: Hi Hmm,I also do wonder about what will come next.Willhave a doc visit in jan.Somewhat I hope Tysabri orsomething else becomes available,as I wouldn't liketoo much to go back on CRAB's.That's been one of the reasons to try LDN;I'm afraidthis is not for me cause of spasticity,intestinal painetc.I felt a lot better after I had stopprd takingit,though it had been 1.5 mg only.Regs,Tom--- Sims <vjsims63066@...> wrote:> Reg, Tom> > Im going to start Novantrone next month, now that> you are finished with your treatments of> Novantrone!! I wonder what are you taking now? Are> you taking LDN?Thanks in advance for any information> you can give!!> > > __________________________________________________Do

You ?Tired of spam? has the best spam protection around http://mail. __________________________________________________

[Guest guest]

KIKI, I was on 3.0mg and now I'm on 2.5mg and it is still making me very stiff : (noclue915@... wrote: , what LDN dosage are you on? KIKI __________________________________________________

[Guest guest]

Yes Mykittypaws, Thats why I am leaning torched the med that my Gyn doctor is tell me about cause it is all natural, the name of the brochure he gave me was Sugars That Heal (Glyconutrients) you can also go to www.glycoscience.org and read up on it.. I think it have something to do with Stem Cells but it is in pill form and he did tell me that it cost about $100 per monh...I figure if its going to help me I and willing to pay that amount per month....he also told me well he ead it out of his doctor's book about anot her doctor wife has Lupus and she was on that med he is telling me about...she no longer have Lupus symtoms... mykittypaws <mykittypaws@...> wrote: I agree. Very scary drug and very toxic. Re: [low dose naltrexone] Novantrone for MS - please help [OT]/ , PLEASE write Dr.

Lawrence @ bob.lawrence@... and let him know that you are planning on trying this drug - and ask him what he knows about it and thinks about it. PLEASE? Just tell him that you got his e-mail from the LDN group. I'd suggest in the subject line to write something along the lines of "MS and Novantrone - thinking of trying." He will write you back. Victor. Sims <vjsims63066@...> wrote: I decided after I read the information my gyn doctor gave me today im thinking of trying that med he said he already have 1 patient with MS on it and she is doing great..she has little to no tingling feeling left... tf <luxtf@...> wrote: Hi Hmm,I also do wonder about what will come next.Willhave a doc visit in jan.Somewhat I hope Tysabri orsomething else becomes available,as I wouldn't liketoo much to go back on CRAB's.That's been one of the reasons to try LDN;I'm afraidthis is not for me cause of spasticity,intestinal painetc.I felt a lot better after I had stopprd takingit,though it had been 1.5 mg only.Regs,Tom--- Sims <vjsims63066@...> wrote:> Reg, Tom> > Im going to start Novantrone next month, now that> you are finished with your treatments of> Novantrone!! I wonder what are you taking now? Are> you taking LDN?Thanks in advance for any information> you can

give!!> > > __________________________________________________

[Guest guest]

Hi again Victor : ) I just read your second email post ...so u r saying that your friend is startiong on the sugars that heal med? Victor Mohyla <vmohyla@...> wrote: Hi again , I'd also suggest you ask Dr. Lawrence (see other post from me) about glycos. He is very excited about this. I have investigated these to the hilt, and also just finished reading "Sugars That Heal" I feel this is the answer for many people. The only thing about them is that they often take a few months to feel changes, as it is not a drug with immediate effects like we are used to in the Western culture. My friend is just now starting

these for her MS. I'm excited!!! One comment: NO drug has EVER reversed MS - but glycos have! Novantrone will NOT reverse MS - even stated on their own website. May kill you though. All food for thought . . . Victor. Sims <vjsims63066@...> wrote: Hi Bren... I'm still taking naltrexone for now, but it is making me very stiff...but after today's gyn appointment I don't know if I want to take the Novantrone..my gyn doctor gave me a brochure for me to read and look up on the internet... he told me after I read about it, and if I have any questions he will sit down and talk to me about it ...this is the website he told me to go to www.glycoscience.org I'm

leaning torched this ins tead of the chemo.. Bren <TwisterAlley2@...> wrote: Why have you decided to do Novantrone? Is LDN not halting your disease progression? Also, how long have you been on LDN? __________________________________________________

[Guest guest]

, It is not a med - it is naturally occurring sugars from plants. BTW - I have read the book also. Regarding stem cells, it helps your body to generate numerous more stem cells than you are now, which is necessary for you to get better. Victor. Sims <vjsims63066@...> wrote: Yes Mykittypaws, Thats why I am leaning torched the med that my Gyn doctor is tell me about cause it is all natural, the name of the brochure he gave me was Sugars That Heal (Glyconutrients) you can also go to www.glycoscience.org and read up on it.. I think it have something to do with Stem Cells but it is in pill form and he did tell me that

it cost about $100 per monh...I figure if its going to help me I and willing to pay that amount per month....he also told me well he ead it out of his doctor's book about anot her doctor wife has Lupus and she was on that med he is telling me about...she no longer have Lupus symtoms... mykittypaws <mykittypaws@...> wrote: I agree. Very scary drug and very toxic. Re: [low dose naltrexone] Novantrone for MS - please help [OT]/ , PLEASE write Dr. Lawrence @ bob.lawrence@... and let him know that you are planning on trying this drug - and ask him what he knows about it and thinks about it. PLEASE? Just tell him that you got his e-mail from the LDN group. I'd suggest in the subject line to write something along the lines of "MS and Novantrone - thinking of

trying." He will write you back. Victor. Sims <vjsims63066@...> wrote: I decided after I read the information my gyn doctor gave me today im thinking of trying that med he said he already have 1 patient with MS on it and she is doing great..she has little to no tingling feeling left... tf <luxtf@...> wrote: Hi Hmm,I also do wonder about what will come next.Willhave a doc visit in jan.Somewhat I hope Tysabri orsomething else becomes available,as I wouldn't liketoo much to go back on CRAB's.That's been one of the reasons to try LDN;I'm

afraidthis is not for me cause of spasticity,intestinal painetc.I felt a lot better after I had stopprd takingit,though it had been 1.5 mg only.Regs,Tom--- Sims <vjsims63066@...> wrote:> Reg, Tom> > Im going to start Novantrone next month, now that> you are finished with your treatments of> Novantrone!! I wonder what are you taking now? Are> you taking LDN?Thanks in advance for any information> you can give!!> > > __________________________________________________

[Guest guest]

Ok Thanks for the information Victor, that is what my doctor told me yesterday also that is the reason for my illness is because I am lacking a certain sugar... Victor Mohyla <vmohyla@...> wrote: , It is not a med - it is naturally occurring sugars from plants. BTW - I have read the book also. Regarding stem cells, it helps your body to generate numerous more stem cells than you are now, which is necessary for you to get better. Victor. Sims <vjsims63066@...> wrote: Yes Mykittypaws, Thats why I am

leaning torched the med that my Gyn doctor is tell me about cause it is all natural, the name of the brochure he gave me was Sugars That Heal (Glyconutrients) you can also go to www.glycoscience.org and read up on it.. I think it have something to do with Stem Cells but it is in pill form and he did tell me that it cost about $100 per monh...I figure if its going to help me I and willing to pay that amount per month....he also told me well he ead it out of his doctor's book about anot her doctor wife has Lupus and she was on that med he is telling me about...she no longer have Lupus symtoms... mykittypaws <mykittypaws@...> wrote: I agree. Very scary drug and very toxic. Re: [low dose naltrexone] Novantrone for MS - please help [OT]/ , PLEASE write Dr. Lawrence @ bob.lawrence@... and let him know that you are planning on trying this drug - and ask him what he knows about it and thinks about it. PLEASE? Just tell him that you got his e-mail from the LDN group. I'd suggest in the subject line to write something along the lines of "MS and Novantrone - thinking of trying." He will write you back. Victor. Sims <vjsims63066@...> wrote: I decided after I read the information my gyn doctor gave me today im thinking of trying that med he said he already have 1 patient with MS on it and she is doing great..she has little to no tingling feeling left... tf <luxtf@...> wrote: Hi Hmm,I also do wonder about what will come next.Willhave a doc visit in jan.Somewhat I hope Tysabri orsomething else becomes available,as I wouldn't liketoo much to go back on CRAB's.That's been one of the reasons to try LDN;I'm afraidthis is not for me cause of spasticity,intestinal painetc.I felt a lot better after I had stopprd takingit,though it had been 1.5 mg only.Regs,Tom--- Sims <vjsims63066@...> wrote:> Reg, Tom> > Im going to start Novantrone next month, now that> you are finished with your treatments of> Novantrone!! I wonder what are you taking now? Are> you taking LDN?Thanks in advance for any information> you can

give!!> > > __________________________________________________

[Guest guest]

Yes. And I just wrote you - it's not a med, it's sugar. Not foreign to your body like any medication is. "Sugars that Heal" is not a med or sugar, it is just the name of a book - one the numerous books written on the subject of the 8 essential sugars that you body needs for all of your cells to communicate properly so that your body works right. Victor. Sims <vjsims63066@...> wrote: Hi again Victor : ) I just read your second email post ...so u r saying that your friend is startiong on the sugars that heal med? Victor Mohyla <vmohyla@...> wrote: Hi again , I'd also suggest you ask Dr. Lawrence (see other post from me) about glycos. He is very excited about this. I have investigated these to the hilt, and also just finished reading "Sugars That Heal" I feel this is the answer for many people. The only thing about them is that they often take a few months to feel changes, as it is not a drug with immediate effects like we are used to in the Western culture. My friend is just now starting these for her MS. I'm excited!!! One comment: NO drug has EVER reversed MS - but glycos have! Novantrone will NOT reverse MS - even stated on their own website. May kill you though. All food for thought . . . Victor. Sims

<vjsims63066@...> wrote: Hi Bren... I'm still taking naltrexone for now, but it is making me very stiff...but after today's gyn appointment I don't know if I want to take the Novantrone..my gyn doctor gave me a brochure for me to read and look up on the internet... he told me after I read about it, and if I have any questions he will sit down and talk to me about it ...this is the website he told me to go to www.glycoscience.org I'm leaning torched this ins tead of the chemo.. Bren <TwisterAlley2@...> wrote: Why have you decided to do Novantrone? Is LDN not halting your

disease progression? Also, how long have you been on LDN? __________________________________________________

[Guest guest]

Ok!! before I decide on anything I am going o get more information on it but I know I don't want to take chemo with all the side effects it causes.. Victor Mohyla <vmohyla@...> wrote: Yes. And I just wrote you - it's not a med, it's sugar. Not foreign to your body like any medication is. "Sugars that Heal" is not a med or sugar, it is just the name of a book - one the numerous books written on the subject of the 8 essential sugars that you body needs for all of your cells to communicate properly so that your body works right. Victor. Sims <vjsims63066@...> wrote: Hi again Victor : ) I just read your second email post ...so u r saying that your friend is startiong on the sugars that heal med? Victor Mohyla <vmohyla@...> wrote: Hi again , I'd also suggest you ask Dr. Lawrence (see other post from me) about glycos. He is very excited about this. I have investigated these to the hilt, and also just finished reading "Sugars That Heal" I feel this is the answer for many people. The only thing about them is that they often take a few months to feel changes, as it is not a drug with immediate effects like we are used to in the Western culture. My friend is just now starting these for her MS. I'm excited!!! One comment: NO drug has EVER reversed MS - but glycos have! Novantrone will NOT reverse MS - even stated on their own website. May kill you though. All food for thought . . . Victor. Sims <vjsims63066@...> wrote: Hi Bren... I'm still taking naltrexone for now, but it is making me very stiff...but after today's gyn appointment I don't know if I want to take the Novantrone..my gyn doctor gave me a brochure for me to read and look up on the internet... he told me after I read about it, and if I have any questions he will sit down and talk to me about it ...this is the website he told me to go to www.glycoscience.org I'm leaning torched this ins tead of the chemo.. Bren <TwisterAlley2@...> wrote: Why have you decided to do Novantrone? Is LDN not halting your disease progression? Also, how long have you been on LDN? __________________________________________________

[Guest guest]

Good luck to you, . Victor. Sims <vjsims63066@...> wrote: Ok!! before I decide on anything I am going o get more information on it but I know I don't want to take chemo with all the side effects it causes.. Victor Mohyla <vmohyla@...> wrote: Yes. And I just wrote you - it's not a med, it's sugar. Not foreign to your body like any medication is. "Sugars that Heal" is not a med or sugar, it is just the name of a book - one the numerous books written on the subject of the 8 essential sugars that you body needs for all of your cells to communicate

properly so that your body works right. Victor. Sims <vjsims63066@...> wrote: Hi again Victor : ) I just read your second email post ...so u r saying that your friend is startiong on the sugars that heal med? Victor Mohyla <vmohyla@...> wrote: Hi again , I'd also suggest you ask Dr. Lawrence (see other post from me) about glycos. He is very excited about this. I have investigated these to the hilt, and also just finished reading "Sugars That Heal" I feel this is

the answer for many people. The only thing about them is that they often take a few months to feel changes, as it is not a drug with immediate effects like we are used to in the Western culture. My friend is just now starting these for her MS. I'm excited!!! One comment: NO drug has EVER reversed MS - but glycos have! Novantrone will NOT reverse MS - even stated on their own website. May kill you though. All food for thought . . . Victor. Sims <vjsims63066@...> wrote: Hi Bren... I'm still taking naltrexone for now, but it is making me very stiff...but after today's gyn appointment I don't know if I want to take the Novantrone..my gyn

doctor gave me a brochure for me to read and look up on the internet... he told me after I read about it, and if I have any questions he will sit down and talk to me about it ...this is the website he told me to go to www.glycoscience.org I'm leaning torched this ins tead of the chemo.. Bren <TwisterAlley2@...> wrote: Why have you decided to do Novantrone? Is LDN not halting your disease progression? Also, how long have you been on LDN? __________________________________________________

[Guest guest]

Come off the LDN for 5 to 6 days...if you are still stiff after that length of

time, it is not the LDN. If the stiffness fades then try and get LDN at 1.75mg

and stay there for 6 months and then try 2.0mg. Some had their stiffness

improve when they started liquid LDN that is made from pure naltrexone powder

with no fillers.

[Guest guest]

OK Bren, Thank you for the information...I'm going to see what the other doctor has to tell me about the other med first and see how that goes!! Bren <TwisterAlley2@...> wrote: Come off the LDN for 5 to 6 days...if you are still stiff after that length of time, it is not the LDN. If the stiffness fades then try and get LDN at 1.75mg and stay there for 6 months and then try 2.0mg. Some had their stiffness improve when they started liquid LDN that is made from pure naltrexone powder with no fillers.

DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

OK Bren, Thank you for the information...I'm going to see what the other doctor has to tell me about the other med first and see how that goes!! Bren <TwisterAlley2@...> wrote: Come off the LDN for 5 to 6 days...if you are still stiff after that length of time, it is not the LDN. If the stiffness fades then try and get LDN at 1.75mg and stay there for 6 months and then try 2.0mg. Some had their stiffness improve when they started liquid LDN that is made from pure naltrexone powder with no fillers.

for Good - Make a difference this year.

[Guest guest]

, I think that Kiki is giving you excellent advice about LDN.