Re: Other Autoimmune Diseases

[Guest guest]

Hi ,

I have known my family to have quite a few autoimmune diseases. I don't

think there was a pattern seen until I developed autoimmune problems. Mother

had pernicious anemia, rheumatoid arthritis, GERD, and Dad had psoriasis and

ALS. There is a question about the ALS being autoimmune but I've heard it

possibly is. Also, my brother has psoriasis. Some other members of our

family had hereditary problems but I don't really know what all was

autoimmune in nature. I think the tendency to acquire autoimmune problems

does run in the family.

Anita T

[Guest guest]

Isn't diabetes autoimmune? that is in my family a whole bunch, Lynn

Buyhemp@... wrote:

> From: Buyhemp@...

>

> Hi ,

>

> I have known my family to have quite a few autoimmune diseases. I don't

> think there was a pattern seen until I developed autoimmune problems. Mother

> had pernicious anemia, rheumatoid arthritis, GERD, and Dad had psoriasis and

> ALS. There is a question about the ALS being autoimmune but I've heard it

> possibly is. Also, my brother has psoriasis. Some other members of our

> family had hereditary problems but I don't really know what all was

> autoimmune in nature. I think the tendency to acquire autoimmune problems

> does run in the family.

>

> Anita T

>

> ---------------------------

[Guest guest]

YES, I DO BELIEVE DIABETES IS CONSIDERED AUTOIMMUNE.

DIANA

[Guest guest]

Lynn,

Yes, diabetes is autoimmune.

Roxanne

[Guest guest]

Hi Pam,

Before I forget! Good luck at your neuro's. I have problems with

memory at times!

I dunno but I was very angry when I sat down and really looked over

the trials with avonex. There weren't very many people in the trial

that got it fda approved. 271 at the end. Plus it doesn't follow

those who did not respond well to it. I was frustrated when my

neuro. agreed that the crabs were modest at best. I thought why

didn't you say that in the beginning.

The avonex gave me heavy periods. It also messed with my dental

health. Low grade temps. and flu like side effects 2 days a week.

On it a year and still got flu like symptoms. Hair loss and

depression and finally suicidal ideation that I never had. That put

a stop to my avonex use. I doubt very much that my symptoms were

documented. I know biogen is not publishing my symptoms or findings.

My periods are back to normal as is my dental health, hair,

depression and suicidal ideation. I feel like screaming from the top

of a high building to others to be careful but I know some do respond

to these crab drugs.

My eyebrows are normal. My family doc. periodically checks my

thyroid function. He did last month as he was trying to get to the

bottom of my chronic low grade temps.

Hidradenitis suppurativa is a disease of the aprocrine sweat bearing

glands. It causes painful lesions that don't respond to antibiotics,

prednisone or other. It's not uncommon and actually occurs with

every 1 in 300. There is no cure and it is thought to be linked to

insulin resistance and pcos.

I had heard of ldn a few years back but had forgotten about it. Just

recently an online friend with ms started it and claimed it changed

her life. So I aproached my neuro. who gave me a script. The one

thing that sets it apart from other medications that claim to relieve

everything is the profit factor. Near as I can see no one is making

profit by sales of it. I actually based my decision on the success

my friend had and talking with my neuro. who felt it wouldn't harm

me. Oh and also I had an awful reaction to the copaxone and was

trying to get into a study with antegren (tysbri) but had trouble

with the iv. We all know how that turned out. Soooooo compared to

what I had gone through anything ldn could do paled in comparrison.

Take Care Pam and good luck! Yayyyyy I remembered! Lol!

> Hi :

>

> I took Avonex for a time but it was what actually

> innitiated/aggravated my Graves disease as well as thrust me into a

> false menopause (actually documented). When I stopped the medicine

> my periods returned to normal but my thyroid was never the same.

> Hair loss and brittle fingernails are a symptom of an overactive

> thyroid as well. How are your eyebrows? Thinning eyebrows are a

> dead give away to a thyroid connection. May want to have it

checked

> out. It's a blood test. I am not familiar with hidradentis

> suppurativa, what is it?

>

>