Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 In a message dated 1/4/05 10:39:28 PM Eastern Standard Time, writes: > It is not exactly the same as the way the diet is described in Dr. > Atkins New Diet Revolution. It is tweaked a bit here and there but it > is much easier than the Ketogenic Diet to implement. You would need a > doctor onboard to help but it could be a pediatrician. Someone is > needed to monitor for cholestrol, as well as a few other possible > side effects. The good news is that though not all of the children in > the study are completley seizure free about 99% have seen a reduction > in seizures. There will be an article coming out in the online > magazine at epilepsy.com. My son will be finishing his part in the > study this Thursday. He has been seizure free for 5 months. > > > > . .. >>> and all With the fats that Charlie gets, his cholesterol ratio is less than 3.0, with 3.0 being optimum and 5.0 the high end of OK.. Olive oil lowers the 'bad' cholesterol. Recent reports also document the value of fish oil and flaxseed oil in the cardiac game. Do these fats and coconut oil play a role in the diet? mjh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2005 Report Share Posted November 24, 2005 Kiki, thank you so much for your words of wisdom. My neuro said nothing about rebif and LDN contradicting one another. He just told me no problem to take both, and that the LDN won't hurt anything. Based on what you said, I will most likely start on the LDN for a while first without the rebif, and then if everything goes o.k., I will ask him if I can postpone using the rebif for a while. How does that sound. Thanks. --- low dose naltrexone wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Very happy to hear you finally found a doctor to diagnose your son. I found a couple of things interesting about what your doctor has told you. First, that prednisone is completely harmless. Our doctors at the University of Chicago did not feel that way. I suggest you do some research of your own about the potential adverse effects of prednisone. It's a steroid! In fact, our doctors told us to ONLY use it in the event that a fever was coming on at the onset of a birthday, special event, etc. Second, one of the problems with prednisone is that it can bring the episodes on more frequently. We found after our first use, another episode occurred within a week. (That was the last of the prednisone for us.) I'm sorry to tell you this but I think it would be remiss for you to go on believing that prednisone is a safe drug. I strongly recommend you check into tonsillectomy. I know it sounds ridiculous that it could cure a child of but it has. Depending on your doctor, the opinion will vary. Our first doctor at Children's Memorial said no way it's a cure. Our doctors at the U of Chicago said there were studies that showed children have been cured by this relatively benign procedure. (There are studies on the internet if you google and tonsillectomy that you can read about.) We also had an ENT that was familiar with and said that the studies were showing favorable results. We went ahead with it (scared to death of the prospect of having to use prednisone on our child). Our son had monthly fevers from age 1 to 6. Since his tonsillectomy, he has been fever free now for five months. It has changed our lives, and most importantly his. It seems like a miracle!!! Good luck to you and your family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 My doctor advised the same thing with the Prednisone. It is great if a fever comes while on your 2 week vacation to Tahiti but not every fever. 's fevers are only 2-3 days and every 40 something days right now, though. I would probably give it to him more often if they came every 2 weeks. Good luck. , Mom to 3 with --- Chiavola <tomjenc99@...> wrote: > Very happy to hear you finally found a doctor to > diagnose your son. I found a couple of things > interesting about what your doctor has told you. > First, that prednisone is completely harmless. Our > doctors at the University of Chicago did not feel > that way. I suggest you do some research of your > own about the potential adverse effects of > prednisone. It's a steroid! In fact, our doctors > told us to ONLY use it in the event that a fever was > coming on at the onset of a birthday, special event, > etc. Second, one of the problems with prednisone is > that it can bring the episodes on more frequently. > We found after our first use, another episode > occurred within a week. (That was the last of the > prednisone for us.) I'm sorry to tell you this but > I think it would be remiss for you to go on > believing that prednisone is a safe drug. > > I strongly recommend you check into tonsillectomy. > I know it sounds ridiculous that it could cure a > child of but it has. Depending on your > doctor, the opinion will vary. Our first doctor at > Children's Memorial said no way it's a cure. Our > doctors at the U of Chicago said there were studies > that showed children have been cured by this > relatively benign procedure. (There are studies on > the internet if you google and tonsillectomy > that you can read about.) We also had an ENT that > was familiar with and said that the studies > were showing favorable results. We went ahead with > it (scared to death of the prospect of having to use > prednisone on our child). Our son had monthly > fevers from age 1 to 6. Since his tonsillectomy, he > has been fever free now for five months. It has > changed our lives, and most importantly his. It > seems like a miracle!!! > > Good luck to you and your family. > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I would not advise a tonsillectomy unless the genetic disorders have been ruled out! Yes, there are possible side effects from prednisone. The genetic periodic fever disorders (I'm really not sure about ) can also result in secondary diseases due to the body constantly being thrown into a state of inflammation! One of these secondary diseases can result in kidney failure. Tylenol and Ibuprofen aren't without side effects, especially when being given as frequently as many of our kids need to take them. Before started on prednisone there were at least six days a month that he didn't eat. As with all medications you have to weigh the benefits against the possible side effects. Ellyn Mom of possibly (5), Alyssa(8), and Kate(3) Philadelphia, PA Chiavola <tomjenc99@...> Sent by: 03/08/2006 10:23 AM Please respond to cc: Subject: Re: Digest Number 1717 Very happy to hear you finally found a doctor to diagnose your son. I found a couple of things interesting about what your doctor has told you. First, that prednisone is completely harmless. Our doctors at the University of Chicago did not feel that way. I suggest you do some research of your own about the potential adverse effects of prednisone. It's a steroid! In fact, our doctors told us to ONLY use it in the event that a fever was coming on at the onset of a birthday, special event, etc. Second, one of the problems with prednisone is that it can bring the episodes on more frequently. We found after our first use, another episode occurred within a week. (That was the last of the prednisone for us.) I'm sorry to tell you this but I think it would be remiss for you to go on believing that prednisone is a safe drug. I strongly recommend you check into tonsillectomy. I know it sounds ridiculous that it could cure a child of but it has. Depending on your doctor, the opinion will vary. Our first doctor at Children's Memorial said no way it's a cure. Our doctors at the U of Chicago said there were studies that showed children have been cured by this relatively benign procedure. (There are studies on the internet if you google and tonsillectomy that you can read about.) We also had an ENT that was familiar with and said that the studies were showing favorable results. We went ahead with it (scared to death of the prospect of having to use prednisone on our child). Our son had monthly fevers from age 1 to 6. Since his tonsillectomy, he has been fever free now for five months. It has changed our lives, and most importantly his. It seems like a miracle!!! Good luck to you and your family. Quote Link to comment Share on other sites More sharing options...
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