too much or not enough??

[Guest guest]

Am I taking too much or not enough LDN?

My history: I am a 40-yr-old female. In Dec 2003 I had optic neuritis (ON) in my left eye…treated with steroids. MRI showed a few lesions. Spinal tap was negative. Living in land USA at the time. In April 2004 I moved to UK. In May 2005 I started to feel numbness in my feet, it crept up my legs. NHS diagnosed me with MS after MRI showed lots of lesions. No spinal tap done.

I started liquid LDN (Revia from medsmex.com in distilled water) on 10/1/05. I went through some symptoms in reverse order when I started LDN (I was expecting that “ghosting”), but otherwise I felt better. Stiffness did go away somewhat, l’hermittes went away, walking and balance were better (still couldn’t dart back and forth or turn a lot in the kitchen), dizziness went away (except when I turned a lot in the kitchen), ‘spaceyness’ was better.

From 10/1, I started at 1.5mg and worked my way up to 3.0mg. Also at that time I started taking supplements in preparation for my 11/24 mercury amalgam removal Potassium citrate, selenium, zinc, Vit C 1000mg). I was at 3.0mg for a little over 2 weeks, and then on 10/27 I moved up to 3.5mg.

On 11/3, my R ON was worse and I couldn’t close that eye by itself. Also the R side of my face, the muscles aren’t working well…I can’t squint or smile and my R eye keeps tearing. I stopped all supplements except my multivitamin, and it does seem to be getting a little better…I can close the R eye by itself, and I can do half a smile. Is this an allergic reaction? Or possible new symptom (and I’m in the middle of an exacerbation)?

I am without doctor supervision or guidance on the LDN. (In fact, the NHS neuro told me he couldn’t follow my case if I did LDN…my choices with him were CRAB drugs. Basically, I was told I’d be dismissed as a patient.) My question is this: Am I taking too much or not enough LDN? Women are supposed to be at 4.5mg, but people with spasticity are supposed to be at 3.0mg. Should I back it down (i.e. to 2.5 or 3.0mg??) or should I bump it up (i.e. keep working toward 4.5mg, but slower)?

Any opinions or advice would bw most appreciated. And thanks!!