Re Am I taking too much or not enough LDN?

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We live in the UK and my wife takes LDN for MS and we had more trouble getting the dose right for LDN than any one else we know, unfortunately even the doctors who do know how to do LDN use trial and error.It sounds as though you are coming to the conclusion that 3Mg is right for you. If you are interested in doing anything about the medical politics bit, the department of health says that any doctor in the UK can prescribe LDN on the NHS for MS, we get ours on a private prescription from our NHS GP because our local health authority will not fund LDN. The reason your Neurologist will not allow LDN may be that he is in the pay of a drug company at least that is what our government says. If you look on the House of Commons web site you will find a report called 'The Influence of the Pharmaceutical Industry' (5.4.05) amongst many other damming criticisms it contains a comment that the term Key Opinion Leader is interchangeable with In the Pocket of the Drug Industry. So if your Neuro is a Key Opinion Leader then according to HM GOV he is in the pockets of the drug industry, if not he may be just following one who is. If you wish to pursue the issue with your MP then contact me privately and I will let you have some copy letters to help you decide what to ask.

Dave

Message: 12 Date: Mon, 7 Nov 2005 10:07:59 +0000 (GMT) From: TROY & KAREN HULLANDER <hullander@...>Subject: too much or not enough??Am I taking too much or not enough LDN? My history: I am a 40-yr-old female. In Dec 2003 I had optic neuritis (ON) in my left eye.treated with steroids. MRI showed a few lesions. Spinal tap was negative. Living in land USA at the time. In April 2004 I moved to UK. In May 2005 I started to feel numbness in my feet, it crept up my legs. NHS diagnosed me with MS after MRI showed lots of lesions. No spinal tap done. I started liquid LDN (Revia from medsmex.com in distilled water) on 10/1/05. I went through some symptoms in reverse order when I started LDN (I was expecting that "ghosting"), but otherwise I felt better. Stiffness did go away somewhat, l'hermittes went away, walking and balance were better (still couldn't dart back and forth or turn a lot in the kitchen), dizziness went away (except when I turned a lot in the kitchen), 'spaceyness' was better. From 10/1, I started at 1.5mg and worked my way up to 3.0mg. Also at that time I started taking supplements in preparation for my 11/24 mercury amalgam removal Potassium citrate, selenium, zinc, Vit C 1000mg). I was at 3.0mg for a little over 2 weeks, and then on 10/27 I moved up to 3.5mg. On 11/3, my R ON was worse and I couldn't close that eye by itself. Also the R side of my face, the muscles aren't working well.I can't squint or smile and my R eye keeps tearing. I stopped all supplements except my multivitamin, and it does seem to be getting a little better.I can close the R eye by itself, and I can do half a smile. Is this an allergic reaction? Or possible new symptom (and I'm in the middle of an exacerbation)? I am without doctor supervision or guidance on the LDN. (In fact, the NHS neuro told me he couldn't follow my case if I did LDN.my choices with him were CRAB drugs. Basically, I was told I'd be dismissed as a patient.) My question is this: Am I taking too much or not enough LDN? Women are supposed to be at 4.5mg, but people with spasticity are supposed to be at 3.0mg. Should I back it down (i.e. to 2.5 or 3.0mg??) or should I bump it up (i.e. keep working toward 4.5mg, but slower)? Any opinions or advice would bw most appreciated. And thanks!! [This message contained attachments]