Initial months on LDN & symptom increases

[Guest guest]

I started taking 3mg of Ldn on September 9th and so far I can't say I feel any better. Last month I had an increase in the burning pain in my legs for which my low dose of Neurontin (100 mg 4x/day) had to be increased( to 300 mg 3-4x/day). The burning nerve pain has since abated to where I'm back to just having it in my feet occassionally which is the norm for me. I've also had more muscle spasms than normal for me and occassional tingling in my legs and a strange numbish weak feeling in my left hip ( my weaker leg) when walking and just a feeling of generally feeling unwell. I've found out recently my potassium level was low so I don't know what if any of the symptoms could be caused by that. I'm taking a potassium supplement for 10 days then must get bloodwork drawn again. I feel somewhat better overall since being on the potassium supplements but the sensory symptoms remain . I'm hesitant to want to try 4.5 mg as of yet. A former co-worker of mine, who has MS also, called me the other day and when I asked her how long it took for her to start noticing improvements in the way she felt on LDN she said it took her a good 9 months before she noticed improvements. She said she would never go without it now. So I plan to stick with it to give it a fair trial. I'm also on Copaxone and a bunch of vitamins. For you long time LDN users: Your thoughts on my experiences thus far? Thanks in advance for any advice you may have. Desinie

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