Re: Greetings from new member

[Guest guest]

this might be the one chance in my life to actually have a normal hormone balance.Thanks!Katy

Katy:

I would be interested to know what you would consider "normal" hormone balance? According to what most of us have found out on Wiley; her ideas of normal levels are very, high even for the "young" women she purports to try to mimic.

My 35 year old daughter had a E level of 250 and a P level of 5 by serum testing. Problem is what do these higher doses of hormones do to your system as they build up over time and your exposure is multiplied?

Sammie

[Guest guest]

Hi Katy -- this group is for the Wiley Protocol refugees I'm

afraid! We have all switched off Wiley because we are a group of

sensitive individuals who reacted to the high dosing. So no, there

is no one on this group who was successfully on Wiley for a year or

more.

> Hello, everyone,

> My name is Katy Widger, I'm new to the group. I live in Edgewood,

NM,

> and my doctor is in Santa Fe. I got to this site because she

> recommended it to me for support. I've been on the Wiley protocol

> since January, and am doing great, feeling wonderful, and have

none of

> the problems or issues I've read about so far. My P level is

right on

> the money, but E is low, so my doc increased my E dose by one

line,

> and have started putting it on my inner arms. When I first read

the

> stories on the site, I became very concerned because of all

> the " horror " stories, especially about excess P.

> What I would like to know from the group is: Are there women out

> there who have been on the TS Wiley Protocol for a year or more

who

> are doing well and have finally balanced their hormones,and are

> planning on continuing? Or is everyone having major problems, as

> the " stories " section indicates?

> I am concerned about staying on this indefinitely (I am 51 and

can't

> see myself doing this at 70!) This seems to working wonderfully

for

> me right now, but, as one woman put it in her story, I don't want

to

> trade one set of problems for another. My reasons for starting on

> this was because of severe menopausal symptoms (I have always had

> terrible hormone balance problems,with all the attendant

symptoms). I

> am DES exposed and have never been pregnant,nor had " balanced "

> hormones in my entire life,

> and I felt like (and so did my doctor, who recommened this to me)

that

> this might be the one chance in my life to actually have a normal

> hormone balance.

> Thanks!

> Katy

[Guest guest]

> In a message dated 8/11/2005 3:10:38 PM US Mountain Standard Time,

> kjwidger@y... writes:

> this might be the one chance in my life to actually have a normal

> hormone balance.

> Thanks!

> Katy

> Katy:

> I would be interested to know what you would consider " normal "

hormone

> balance? According to what most of us have found out on Wiley;

her ideas of

> normal levels are very, high even for the " young " women she

purports to try to

> mimic.

> My 35 year old daughter had a E level of 250 and a P level of 5

by serum

> testing. Problem is what do these higher doses of hormones do to

your system as they build up over time and your exposure is

multiplied?

> Sammie

Thanks for the reply, Sammie.

Well, my concern is that the hormone dosages are indeed too high

and that they will build up, in time, and cause me the same sorts of

problems I am reading about occuring in other women. I had assumed,

wrongly, I now know, that the protocol and dosages Wiley recommended

in her book were studied and approved by the two " real "

scientists/doctors who co-wrote the book with her. From reading the

interview with the other doctor (Formby?)on this site, I now

realize that I was wrong in that assumption, and I feel deceived and

almost tricked into participating in this " experiment. " I

was " experimented " upon once in my life, with the DES given to my

mother when she was pregnant with me, with devastating results for

both my mother and myself.

I think that a " normal " hormone balance is probably different for

every woman, but one that would give a pre-menopausal woman a

regular cycle with a 5-7 day period, with regular sleep cycles and

few, if any, of the symptoms we have come to call PMS. I don't have

a clue what a normal hormone balance would be for a menopausal

woman, or for myself. I have suffered from severe PMS symptoms and

irregular cycles all my life and as I approached and entered

menopause, they became even more intolerable. I had never considered

any type of hormone replacement because of the known ill effects

and my DES exposure, and just " suffered through " , doing all I could

nutritionally to ease my symptoms. My doctor is the one who

recommended Wiley's book and suggested the treatment. And the

hormones have, at this point, completely eliminated my symptoms. I

feel better than I have felt in years. But I am now asking myself,

at what price?

So, I am seeking information so that I can educate myself and decide

what course to take at this point. Any help or advice is greatly

appreciated. I really don't know where to go for good information,

and that is why I came to this Group.

Thank you!

Katy

[Guest guest]

,

thanks for the candor. I don't think my doctor realized that this

would be an " anti " wiley site when she told me about it.

But it seems to me from a cursory reading of the messages that most

women here are certainly experimenting with some kinds of hormones.

I've read messages about DHEA, HGH and something called " maca " , and

it seems to me that even if they don't like Wiley, they are doing

something!

Question: What were the effects of getting off the Wiley protocol

and did you do it " cold turkey " or gradually?

Katy

> > Hello, everyone,

> > My name is Katy Widger, I'm new to the group. I live in

Edgewood,

> NM,

> > and my doctor is in Santa Fe. I got to this site because she

> > recommended it to me for support. I've been on the Wiley

protocol

> > since January, and am doing great, feeling wonderful, and have

> none of

> > the problems or issues I've read about so far. My P level is

> right on

> > the money, but E is low, so my doc increased my E dose by one

> line,

> > and have started putting it on my inner arms. When I first read

> the

> > stories on the site, I became very concerned because of all

> > the " horror " stories, especially about excess P.

> > What I would like to know from the group is: Are there women

out

> > there who have been on the TS Wiley Protocol for a year or more

> who

> > are doing well and have finally balanced their hormones,and are

> > planning on continuing? Or is everyone having major problems,

as

> > the " stories " section indicates?

> > I am concerned about staying on this indefinitely (I am 51 and

> can't

> > see myself doing this at 70!) This seems to working wonderfully

> for

> > me right now, but, as one woman put it in her story, I don't

want

> to

> > trade one set of problems for another. My reasons for starting

on

> > this was because of severe menopausal symptoms (I have always

had

> > terrible hormone balance problems,with all the attendant

> symptoms). I

> > am DES exposed and have never been pregnant,nor had " balanced "

> > hormones in my entire life,

> > and I felt like (and so did my doctor, who recommened this to

me)

> that

> > this might be the one chance in my life to actually have a

normal

> > hormone balance.

> > Thanks!

> > Katy

[Guest guest]

Oh Lord -- read the archives of this group and you'll see all the

trouble people had. If you ever decide to go off Wiley, then this

website is just one of many of " natural " hormone therapy. I didn't

go off cold turkey. I continued taking hormones but gradually

tapered down. I was only on Wiley for one month though. This is a

very informative group so do your research!

Good Luck !

> > > Hello, everyone,

> > > My name is Katy Widger, I'm new to the group. I live in

> Edgewood,

> > NM,

> > > and my doctor is in Santa Fe. I got to this site because she

> > > recommended it to me for support. I've been on the Wiley

> protocol

> > > since January, and am doing great, feeling wonderful, and have

> > none of

> > > the problems or issues I've read about so far. My P level is

> > right on

> > > the money, but E is low, so my doc increased my E dose by one

> > line,

> > > and have started putting it on my inner arms. When I first

read

> > the

> > > stories on the site, I became very concerned because of all

> > > the " horror " stories, especially about excess P.

> > > What I would like to know from the group is: Are there women

> out

> > > there who have been on the TS Wiley Protocol for a year or

more

> > who

> > > are doing well and have finally balanced their hormones,and

are

> > > planning on continuing? Or is everyone having major problems,

> as

> > > the " stories " section indicates?

> > > I am concerned about staying on this indefinitely (I am 51 and

> > can't

> > > see myself doing this at 70!) This seems to working

wonderfully

> > for

> > > me right now, but, as one woman put it in her story, I don't

> want

> > to

> > > trade one set of problems for another. My reasons for

starting

> on

> > > this was because of severe menopausal symptoms (I have always

> had

> > > terrible hormone balance problems,with all the attendant

> > symptoms). I

> > > am DES exposed and have never been pregnant,nor had " balanced "

> > > hormones in my entire life,

> > > and I felt like (and so did my doctor, who recommened this to

> me)

> > that

> > > this might be the one chance in my life to actually have a

> normal

> > > hormone balance.

> > > Thanks!

> > > Katy

[Guest guest]

Hi Katy,

I was on the Wiley protocol for 4 months and it has been 4 months now that I have been trying to lower my hormones to a place that feels more stable. I am still not there yet. It is not easy at all to come down from the high dose Wiley protocol if for some reason it does not work out for you.

Wiley's comment on this was that women were not supposed to stop the high dose hormones. And if they do, it is not going to be easy at all and it would feel like menopause hit them like a brick wall. Not her exact words, but I think that basically covers it.

Had I known all that before I started I would have thought about it ten times....and I would seriously question your doctor's statement that the Wiley protocol is your ONE chance to get your hormones right. On what basis is she saying that? Remember there is no evidence whatsoever what this protocol does to a woman in the long run. We do now know what it does to quite a few women in the short run, unfortunately.

The stories you have read on Rhythmic Living are from women who care about their bodies, who are intelligent, wise, and who want to feel well. Wiley has made us out as being neurotic women, who have nothing else to do but sit at our computers (she doesn't believe in computers, believes in cell phones though - she thinks computers harm us) and send emails all day. Do not believe that for one minute.

All we want, just like you, to feel well and healthy and find guidance and support from other women, who have direct experience with hormones! We still believe hormones have changed our lives for the better and we are fully aware that what works well for one person may not work for the next one. We are all deliciously different! We respect and support that.

I encourage you to be well-informed. There are surely differences of opinions on how to do hormones the "right way". I encourage you to find out all the pros and cons before you jump on board of any hormone replacement therapy and then make YOUR OWN decision.

Take good care!

Madeleen

kjwidger wrote:

,thanks for the candor. I don't think my doctor realized that this would be an "anti" wiley site when she told me about it.But it seems to me from a cursory reading of the messages that most women here are certainly experimenting with some kinds of hormones.I've read messages about DHEA, HGH and something called "maca", and it seems to me that even if they don't like Wiley, they are doing something!Question: What were the effects of getting off the Wiley protocol and did you do it "cold turkey" or gradually?Katy> > Hello, everyone,> > My name is Katy Widger, I'm new to the group. I live in Edgewood, > NM, > > and my doctor is in Santa Fe. I got to this site because she > > recommended it to me for support. I've been on the Wiley protocol > > since January, and am doing great, feeling wonderful, and have > none of > > the problems or issues I've read about so far. My P level is > right on > > the money, but E is low, so my doc increased my E dose by one > line, > > and have started putting it on my inner arms. When I first read > the > > stories on the site,

I became very concerned because of all > > the "horror" stories, especially about excess P. > > What I would like to know from the group is: Are there women out > > there who have been on the TS Wiley Protocol for a year or more > who > > are doing well and have finally balanced their hormones,and are > > planning on continuing? Or is everyone having major problems, as > > the "stories" section indicates?> > I am concerned about staying on this indefinitely (I am 51 and > can't > > see myself doing this at 70!) This seems to working wonderfully > for > > me right now, but, as one woman put it in her story, I don't want > to > > trade one set of problems for another. My reasons for starting on > > this was because of severe menopausal symptoms (I have always had > > terrible hormone

balance problems,with all the attendant > symptoms). I > > am DES exposed and have never been pregnant,nor had "balanced" > > hormones in my entire life,> > and I felt like (and so did my doctor, who recommened this to me) > that > > this might be the one chance in my life to actually have a normal > > hormone balance.> > Thanks!> > Katy__________________________________________________

[Guest guest]

Madeleen,

I couldn't have said it better!!!!!!!Very well said and the sentiment of many of us, I imagine. Thanks for your voice.

Re: Re: Greetings from new member

Hi Katy,

I was on the Wiley protocol for 4 months and it has been 4 months now that I have been trying to lower my hormones to a place that feels more stable. I am still not there yet. It is not easy at all to come down from the high dose Wiley protocol if for some reason it does not work out for you.

Wiley's comment on this was that women were not supposed to stop the high dose hormones. And if they do, it is not going to be easy at all and it would feel like menopause hit them like a brick wall. Not her exact words, but I think that basically covers it.

Had I known all that before I started I would have thought about it ten times....and I would seriously question your doctor's statement that the Wiley protocol is your ONE chance to get your hormones right. On what basis is she saying that? Remember there is no evidence whatsoever what this protocol does to a woman in the long run. We do now know what it does to quite a few women in the short run, unfortunately.

The stories you have read on Rhythmic Living are from women who care about their bodies, who are intelligent, wise, and who want to feel well. Wiley has made us out as being neurotic women, who have nothing else to do but sit at our computers (she doesn't believe in computers, believes in cell phones though - she thinks computers harm us) and send emails all day. Do not believe that for one minute.

All we want, just like you, to feel well and healthy and find guidance and support from other women, who have direct experience with hormones! We still believe hormones have changed our lives for the better and we are fully aware that what works well for one person may not work for the next one. We are all deliciously different! We respect and support that.

I encourage you to be well-informed. There are surely differences of opinions on how to do hormones the "right way". I encourage you to find out all the pros and cons before you jump on board of any hormone replacement therapy and then make YOUR OWN decision.

Take good care!

Madeleen

kjwidger wrote:

,thanks for the candor. I don't think my doctor realized that this would be an "anti" wiley site when she told me about it.But it seems to me from a cursory reading of the messages that most women here are certainly experimenting with some kinds of hormones.I've read messages about DHEA, HGH and something called "maca", and it seems to me that even if they don't like Wiley, they are doing something!Question: What were the effects of getting off the Wiley protocol and did you do it "cold turkey" or gradually?Katy> > Hello, everyone,> > My name is Katy Widger, I'm new to the group. I live in Edgewood, > NM, > > and my doctor is in Santa Fe. I got to this site because she > > recommended it to me for support. I've been on the Wiley protocol > > since January, and am doing great, feeling wonderful, and have > none of > > the problems or issues I've read about so far. My P level is > right on > > the money, but E is low, so my doc increased my E dose by one > line, > > and have started putting it on my inner arms. When I first read > the > > stories on the site, I became very concerned because of all > > the "horror" stories, especially about excess P. > > What I would like to know from the group is: Are there women out > > there who have been on the TS Wiley Protocol for a year or more > who > > are doing well and have finally balanced their hormones,and are > > planning on continuing? Or is everyone having major problems, as > > the "stories" section indicates?> > I am concerned about staying on this indefinitely (I am 51 and > can't > > see myself doing this at 70!) This seems to working wonderfully > for > > me right now, but, as one woman put it in her story, I don't want > to > > trade one set of problems for another. My reasons for starting on > > this was because of severe menopausal symptoms (I have always had > > terrible hormone balance problems,with all the attendant > symptoms). I > > am DES exposed and have never been pregnant,nor had "balanced" > > hormones in my entire life,> > and I felt like (and so did my doctor, who recommened this to me) > that > > this might be the one chance in my life to actually have a normal > > hormone balance.> > Thanks!> > Katy

__________________________________________________

[Guest guest]

Madeleen and Group,

I have been on the Wiley Protocol since January 05, well, maybe not

exactly the WP, because I have been using the hormones from SY

Pharmacy. And prior to reading the book, SLM, I had no real

knowledge of any type of natural hormone replacement, except maybe

the Lee over the counter P cream, which I had been trying with

good results. I have had no negative response to the doses I have

been on, to date. Only very positive reversals of some difficult

symptoms. But now, reading all the negative results others have

had, I don't know what to think. I will continue to research

options, but since it's apparently so hard to " come down " , I'm not

inclined to quit the hormones until I have reason to do so.

And, to clarify, I was the one who wondered if the WP would be my

one chance to get my hormones balanced, but my doctor did agree with

me on that. She is on the WP herself, and has her mother on it,

too. So, she's in this with me, too. I realized from the beginning

that this would be an " experiment " , and like you, if I had known a

few more things about it, might have given it much more thought than

I did (I gave it many months of consideration before agreeing to try

it.) I think I sort of feel like someone who might have gotten

herself inadvertently addicted to a dangerous drug, and has no way

of easily getting off it. And doesn't really want to, because it

feels so good.

Katy

> > > Hello, everyone,

> > > My name is Katy Widger, I'm new to the group. I live in

> Edgewood,

> > NM,

> > > and my doctor is in Santa Fe. I got to this site because she

> > > recommended it to me for support. I've been on the Wiley

> protocol

> > > since January, and am doing great, feeling wonderful, and have

> > none of

> > > the problems or issues I've read about so far. My P level is

> > right on

> > > the money, but E is low, so my doc increased my E dose by one

> > line,

> > > and have started putting it on my inner arms. When I first

read

> > the

> > > stories on the site, I became very concerned because of all

> > > the " horror " stories, especially about excess P.

> > > What I would like to know from the group is: Are there women

> out

> > > there who have been on the TS Wiley Protocol for a year or

more

> > who

> > > are doing well and have finally balanced their hormones,and

are

> > > planning on continuing? Or is everyone having major problems,

> as

> > > the " stories " section indicates?

> > > I am concerned about staying on this indefinitely (I am 51 and

> > can't

> > > see myself doing this at 70!) This seems to working

wonderfully

> > for

> > > me right now, but, as one woman put it in her story, I don't

> want

> > to

> > > trade one set of problems for another. My reasons for

starting

> on

> > > this was because of severe menopausal symptoms (I have always

> had

> > > terrible hormone balance problems,with all the attendant

> > symptoms). I

> > > am DES exposed and have never been pregnant,nor had " balanced "

> > > hormones in my entire life,

> > > and I felt like (and so did my doctor, who recommened this to

> me)

> > that

> > > this might be the one chance in my life to actually have a

> normal

> > > hormone balance.

> > > Thanks!

> > > Katy

>

>

>

>

>

>

>

> click here for our webpage http://rhythmicliving.com/

>

> **The group conversation is informational in nature and is not

intended as medical advice.**

>

>

>

>

[Guest guest]

kathy,

It might not be as bad as you fear to cut it down. Many of us have

successfully. We had some very bad periods getting the progesterone

out but it is working all in all.

I would be very careful how you much you cut the estrogen down and not

go too low fast if you decide to drop the WP protocol. I learned from

experience I could not do that at all. I needed the estrogen to keep

the progesteron symptoms from overwelming me. There are other women on

this list that this was even more critical for. In fact some really

had to add tons of E as the P subsided.

Then it begins to level off and I think you will just know when this

is happening and how much to drop your E down.

I was on WP from last Novemeber until around April when I decided it

was insane and started trying to figure out how to get off. A few

others in this group also decided that around the same time. It might

be useful to use the calendar feature on the bottom of the homepage of

this site and go back through the posts for that month. You could look

at Laurel's (mirkalina), mine (lyn122) and 's (nuimom). I know

there were a few other women also trying to get off around then but

can't recall who else.....I think was too (astrodiana).

And then just keep asking questions here. You'll get help.

Take care,

Lynn

> > > > Hello, everyone,

> > > > My name is Katy Widger, I'm new to the group. I live in

> > Edgewood,

> > > NM,

> > > > and my doctor is in Santa Fe. I got to this site because she

> > > > recommended it to me for support. I've been on the Wiley

> > protocol

> > > > since January, and am doing great, feeling wonderful, and have

> > > none of

> > > > the problems or issues I've read about so far. My P level is

> > > right on

> > > > the money, but E is low, so my doc increased my E dose by one

> > > line,

> > > > and have started putting it on my inner arms. When I first

> read

> > > the

> > > > stories on the site, I became very concerned because of all

> > > > the " horror " stories, especially about excess P.

> > > > What I would like to know from the group is: Are there women

> > out

> > > > there who have been on the TS Wiley Protocol for a year or

> more

> > > who

> > > > are doing well and have finally balanced their hormones,and

> are

> > > > planning on continuing? Or is everyone having major problems,

> > as

> > > > the " stories " section indicates?

> > > > I am concerned about staying on this indefinitely (I am 51 and

> > > can't

> > > > see myself doing this at 70!) This seems to working

> wonderfully

> > > for

> > > > me right now, but, as one woman put it in her story, I don't

> > want

> > > to

> > > > trade one set of problems for another. My reasons for

> starting

> > on

> > > > this was because of severe menopausal symptoms (I have always

> > had

> > > > terrible hormone balance problems,with all the attendant

> > > symptoms). I

> > > > am DES exposed and have never been pregnant,nor had " balanced "

> > > > hormones in my entire life,

> > > > and I felt like (and so did my doctor, who recommened this to

> > me)

> > > that

> > > > this might be the one chance in my life to actually have a

> > normal

> > > > hormone balance.

> > > > Thanks!

> > > > Katy

> >

> >

> >

> >

> >

> >

> >

> > click here for our webpage http://rhythmicliving.com/

> >

> > **The group conversation is informational in nature and is not

> intended as medical advice.**

> >

> >

> >

> >