Guest guest Posted October 22, 2006 Report Share Posted October 22, 2006 Hello, first post here. Here are some notes about our situation: * My 68-year-old mother was diagnosed with LBD on 10/11. She has been having obvious symptoms for about 3 years, was tested by psychologist 2 years ago, sent back to 'family doctor' for a prescription for Effexor for depression. Ball was then dropped. (argh. Who wouldn't feel depressed with these horrible symptoms?!) * Found new neurologist & new psychologist 3 weeks ago which resulted in [hopefully] a proper diagnosis. * As soon as my father told me dx over the phone, I rushed to Google " LBD " . Hadn't heard of it before, but now feel like some kind of expert. * We had follow-up with the neurologist this week and he gave her Exelon. * My maternal grandmother died with Alzheimer's. * My paternal grandmother exhibits all of the main LBD symptoms quite strongly, but her doctors are disinterested and will only say " dementia " . It took me 1 hour of Internet research to realize that my paternal grandmother has LBD and that they've made her irreversibly worse with certain meds. We're determined that this won't happen to my mother. I've been reading everything you all have been sharing over the past 10 days and I very much appreciate your willingness to do so. ~Mae Quote Link to comment Share on other sites More sharing options...
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