Re: LDN definitely stopped working

[Guest guest]

Joanna,Where do you get your LDN? Has it always been from the same place?

[Guest guest]

Joanna,

I'm sure someone will have good advice for you. I am truly sorry for what you are going through. I know the exact feeling that you are describing. I walked until I lierally couldn't stand and take a step.

I imagine you are in a state of desperation. I know I was. Try to remember that nothing, not LDN or any of the traditional treatments out there can undo what has been done in a few months. The nerve damage that you are experiencing has, most likely, been occurring for years. It is just now manifesting. Stick with the LDN. It's your best bet.

I know that is not a lot of consolation, and again, I am sorry for what you are going through, but try to be clear about what is happening. When I got to the point that I couldn't walk, I could think more clearly. I know that sounds weird, but it's true.

Hang in there!

Marcie

[Guest guest]

>

> Joanna,Where do you get your LDN? Has it always been from the same place?

>

--------

Yes, where do you get your LDN filled? Could be you have gotten a bad mix of

LDN.

[Guest guest]

Hi Joanna.

I think that we had a conversation in the past. Unfortunatly, I can't

find it. I think you mentioned you also had some other problems, too.

Could you please post some more details?

In case it helps: I thought for a while that LDN stopped working for

me, too. However, last three months I had a terrible (full anti-Swank)

diet, too much anxiety and not any exercise at all. Under other

circumstances this combination would be enough to send me to hospital

for IV steroids.

A couple of days ago I felt really bad. I thought that LDN stopped

working. But...

I had some capsules of DL-Phaenylalanine (DLP) in my cupboard. I used

to take them when I started LDN but they made me feel sick. I had

nothing to loose, so I took one and, to my surprise, a couple of hours

later the symptoms started fading away. The following morning I woke

up nearly symptom free and I still feel great. I will take one per day

for a month.

DLP is the raw material for endorphins and some neurotransmitters. It

is essential for the correct function of the spinal cord. Try to get

some. 500 mg in the morning is enough, but 500 mg more in the

afternoon is even better. You may have run out of raw materials for

endorphins and neurotransmitters. LDNers need them more than anybody else.

Please correct me if I am wrong. I am no scientist. I would also like

to have the experience of the group members with DLP.

Keep in touch on how you are doing.

Best wishes,

Stavros

[Guest guest]

Joanna, I get my LDN from Irmat also. What did happen to me is that I have been on 6mgs as per Dr. Bihari for 2 yrs. and the past month I had to call him because I was dragging around and very stiff. I took my husbands 4,5 and snapped out of it until my new script for the lower dose came. This happened to me last year also. After a month on the lower dose,I had trouble sleeping, and this was my clue I needed to go back up again.. You may need to go back down for awhile. Try it for a couple of days and see how you feel at 3mgs. Kiki

[Guest guest]

>

> Joanna,Where do you get your LDN? Has it always been from the same

place?

>

i should have said all this in the message. i get it from park irmat

in NYC, they use naltrexone powder, and the filler is lactose. for the

first 2 months life was good again. thanks for responding

joanna

[Guest guest]

>

> Hi Joanna.

>

> I think that we had a conversation in the past. Unfortunatly, I

can't

> find it. I think you mentioned you also had some other problems,

too.

> Could you please post some more details?

>

> In case it helps: I thought for a while that LDN stopped working

for

> me, too. However, last three months I had a terrible (full anti-

Swank)

> diet, too much anxiety and not any exercise at all. Under other

> circumstances this combination would be enough to send me to

hospital

> for IV steroids.

>

> A couple of days ago I felt really bad. I thought that LDN stopped

> working. But...

>

> I had some capsules of DL-Phaenylalanine (DLP) in my cupboard. I

used

> to take them when I started LDN but they made me feel sick. I had

> nothing to loose, so I took one and, to my surprise, a couple of

hours

> later the symptoms started fading away. The following morning I

woke

> up nearly symptom free and I still feel great. I will take one per

day

> for a month.

>

> DLP is the raw material for endorphins and some neurotransmitters.

It

> is essential for the correct function of the spinal cord. Try to

get

> some. 500 mg in the morning is enough, but 500 mg more in the

> afternoon is even better. You may have run out of raw materials for

> endorphins and neurotransmitters. LDNers need them more than

anybody else.

>

> Please correct me if I am wrong. I am no scientist. I would also

like

> to have the experience of the group members with DLP.

>

> Keep in touch on how you are doing.

>

> Best wishes,

> Stavros

>

i have anxiety attacks and kidney stones. sounds like a good book

title lol. no other problems.i will try to get the dl-

phenalalan.... why do you think it made you feel sick? i have this

totally inappropriate fear of nausea and vomiting, so if it happens

to me, i might just choose progression over a side effect like that.

stupid i know, but i continue every day to fight these inappropriate

feelings, and maybe one day it won't bother me.

to the rest of the list: just wondering if anyone has done any

family research and come accross the name patterson in scotland. the

one i found had MS and was a DR. but there was no name for it then.

he had four daughters and each moved abroad to entirely different

countries. australia, notth america, canada, and i am not sure of

the fourth. if i could find his decendants, and if this disease is

present, what would work for me might work for them. i know this is

a bit off topic, but i feel it is very important, but i won't

continue this subject. email me privately if you want to talk about

this.

thank you everyone for your replies.

joanna