Re: Intro

[Guest guest]

I just wanted to take a minute to say welcome! Thanks for the insights you have

already given.

BUtifulGrace

fresabird wrote:

I just wanted to introduce myself. I am a KO (thanks for the abrieviation

list!) of a ubp/ap

mother. I have been NC for 13 years. When I was being treated for PTSD in the

early 90's,

my psychiatrist said that he thought my mother was " bpd at best " . I was wanting

to know

if I could " catch " whatever made her so horrible, and he assured me I couldn't,

so I let it

drop. At the time both he and my therapist had tried to find someone with a

background

like me, or even a book, but were unsucessful. I recently was searching the web

and

stumbled across the Nook while googling an author. And I now found these lists.

Being

able to talk about my mother without shading the truth based on how much I think

the

person I am talking to can handle, or cringing inside waiting for the inevitable

statement

about how I reallly should call her, or realizing that if I say my mother is

crazy I will be

assumed to be also, has been great. I wouldn't wish my nada (love that one) on

anyone,

but it is very validating to not only know that I am not the only one, but to

actually " meet "

real people like me.

I look forward to meeting you all. I read through a few older posts and found

the

handwriting discussion very interesting. It looks like I have a lot in common

with some of

you. My handwriting is horrible, and I can't spell worth a flip. I'm so glad

computers came

a long in time for the last few years of college! Spell check and printers -

lifesavers for

me.

fresabird

Problems? Ask our friendly List Manager for help at @....

SEND HER ANY POSTS THAT CONCERN YOU; DO NOT Respond ON THE GROUP.

To order the KO bible " Stop Walking on Eggshells, " call 888-35-SHELL

() for your copy. We also refer to “Understanding the Borderline

Mother” (Lawson) and “Surviving the Borderline Parent,” (Roth) which you can

find at any bookstore. Welcome to the WTO community!

From Randi Kreger, Owner BPDCentral, WTO Online Community and author SWOE and

the SWOE Workbook.

[Guest guest]

Hello Mae, and welcome on board to a list that no one wants but needs badly.

It is a List of help, support, and a lot of love.

Thank you for expressing yourself about your Mother's situation. You will do

alright since you already know to seek knowledge and understanding. A lot of

that will come through reading other about caregiver's situations.

I had an experience similar to you with your mother and medication. A

Neurologist prescribed a medication that nearly killed him. I am sure you read

my

story just a few days ago.

There are many on here that have remained after their LO passed away, that

can relate some real eye openers about what we newer caregivers are facing.

The knowledge they are sharing in having personally experienced it, is of more

value than many medically hygienic words that have been sterilized so well

that they don't really convey what a knowing caregiver can relay.

I'm not saying not to read the Medical work. By all means do. I did, and do,

read it.

But it sinks in better after I see experiences that bring the Medical words

to some understanding. I read medical works quite a lot. Merck's Medical

for one, that is printed for Doctors, not the lay-person, as is done on

the computer.

So I do understand many words, and terms, but it comes across as words with

no feeling. Knowing caregivers put the feeling into those words.

Once again, welcome, and stay happy,

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

In a message dated 10/22/2006 6:44:05 AM Central Daylight Time,

chocmae@... writes:

Hello, first post here. Here are some notes about our situation:

* My 68-year-old mother was diagnosed with LBD on 10/11. She has

been having obvious symptoms for about 3 years, was tested by

psychologist 2 years ago, sent back to 'family doctor' for a

prescription for Effexor for depression. Ball was then dropped. (argh.

Who wouldn't feel depressed with these horrible symptoms?!)

* Found new neurologist & new psychologist 3 weeks ago which resulted

in [hopefully] a proper diagnosis.

* As soon as my father told me dx over the phone, I rushed to Google

" LBD " . Hadn't heard of it before, but now feel like some kind of

expert.

* We had follow-up with the neurologist this week and he gave her

Exelon.

* My maternal grandmother died with Alzheimer's.

* My paternal grandmother exhibits all of the main LBD symptoms quite

strongly, but her doctors are disinterested and will only say

" dementia " . It took me 1 hour of Internet research to realize that my

paternal grandmother has LBD and that they've made her irreversibly

worse with certain meds. We're determined that this won't happen to my

mother.

I've been reading everything you all have been sharing over the past 10

days and I very much appreciate your willingness to do so.

~Mae

[Guest guest]

Mae

I am sorry you had to find us but glad you did. This is the best support

group you will ever find. Not only for the info on LBD but for the support you

get when you get overwhelmed. You can rant, rave, cry and laugh with this

group and no body will ever think bad of you. Yes I said laugh. There are times

when a situation has humor in it. Please feel free to post anytime of day or

night. More than likely someone will be on line and will be able to help you

or listen to you.

We will laugh with you, cry with you, and pray with you as is needed. So

WELCOME.

Cyber Hugs to you and your family

Jacqui in So Florida

[Guest guest]

Mae -- welcome to the boards... the place noone wants to be, but

grateful anyway...

Be sure to check out our Links section:

http://health.groups.yahoo.com/group/LBDcaregivers/links

There's tons of useful information there...

My mom's story (although it needs to be updated) is in the Files

section:

http://health.groups.yahoo.com/group/LBDcaregivers/files/

Within folder:

MEMBER PROFILES

Share Your Story

And there's a list of books recommended in the Database section:

http://health.groups.yahoo.com/group/LBDcaregivers/database

PS -- my situation was similar as mom's neurologist said to his

Harvard students, " Doctor thinks she has LBD. "

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/2006 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid decline from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/2005); in a NH since

11/2005. From 4/2006 was on antidepressant Celexa, 20mg (still teary,

but not as weepy); from 4/21/06 was on Exelon (a/o 6/28/06 began

following the suggested dosage for LBD); as of 7/1 went on ALA (200

mg) and B1. Since mid-July 2006 mom was once again engaged in

conversations and we shared laughs during every visit (NARANJA!). Mom

became my Guardian Angel on Sept. 30th, 2006 -- she had seizures that

last day -- not sure if it was LBD related or something to do w/

kidney failure or UTIs... May mumsie rest in peace... " Shall we

dance? One, two, three and? On a bright cloud of music shall we fly?

One, two, three and? "

Visit the LBDCaregivers board on the web:

http://groups.yahoo.com/group/LBDcaregivers/

(See files, suggested links, databases, photos of members, and search

previous posts)

[Guest guest]

Mae,

Welcome. If you have been reading for the last 10 days, I hope you have found

the " Links " and all the work has done there.

I am one of the monitors as well as , so if you have problems, one of

us should be able to help.

There are a lot of good caregivers here, with tons of experience.

As you can see by my signature, Mom died 4 years ago. But she couldn't take

drugs. She has High BL P pills and thyroid pills. During her last year or so I

had her on an antianxiety pill. But it was a fraction of the pill 2 or 4 times

a day. She did fine with that. THe rest of the time I just worked with the

dementia. SHe didn't have a lot of the Parkinson sypmtoms so we were lucky

there. But the two drugs from the PD and LBD don't work together anyway.

Hugs, and welcome,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

[Guest guest]

Welcome Mae,

I am fairly new to the group also. I am the caretaker of my 79 yo

Mom with LBD. It has become the high point of my day to communicate

with my " friends " online in this group. I know you will feel the

same way. Welcome!!!

As far as the Ativan, I see it has already been answered quite

clearly for you.

Again, welcome and we wish we didn't have to meet like this, but it's

the best place to be under these circumstances.

My best,

Carol Incognito

>

> Hello, first post here. Here are some notes about our situation:

>

> * My 68-year-old mother was diagnosed with LBD on 10/11. She

has

> been having obvious symptoms for about 3 years, was tested by

> psychologist 2 years ago, sent back to 'family doctor' for a

> prescription for Effexor for depression. Ball was then dropped.

(argh.

> Who wouldn't feel depressed with these horrible symptoms?!)

> * Found new neurologist & new psychologist 3 weeks ago which

resulted

> in [hopefully] a proper diagnosis.

> * As soon as my father told me dx over the phone, I rushed to

Google

> " LBD " . Hadn't heard of it before, but now feel like some kind of

> expert.

> * We had follow-up with the neurologist this week and he gave

her

> Exelon.

>

>

> * My maternal grandmother died with Alzheimer's.

> * My paternal grandmother exhibits all of the main LBD symptoms

quite

> strongly, but her doctors are disinterested and will only say

> " dementia " . It took me 1 hour of Internet research to realize that

my

> paternal grandmother has LBD and that they've made her irreversibly

> worse with certain meds. We're determined that this won't happen

to my

> mother.

>

> I've been reading everything you all have been sharing over the

past 10

> days and I very much appreciate your willingness to do so.

>

> ~Mae

>

>

>

>

>

>

[Guest guest]

Welcome Mae.

I'm so sorry you have had to seek us out but happy that you have

found us. You will find a lot of support here from everyone.

Leah

>

> Hello, first post here. Here are some notes about our situation:

>

> * My 68-year-old mother was diagnosed with LBD on 10/11. She

has

> been having obvious symptoms for about 3 years, was tested by

> psychologist 2 years ago, sent back to 'family doctor' for a

> prescription for Effexor for depression. Ball was then dropped.

(argh.

> Who wouldn't feel depressed with these horrible symptoms?!)

> * Found new neurologist & new psychologist 3 weeks ago which

resulted

> in [hopefully] a proper diagnosis.

> * As soon as my father told me dx over the phone, I rushed to

Google

> " LBD " . Hadn't heard of it before, but now feel like some kind of

> expert.

> * We had follow-up with the neurologist this week and he gave

her

> Exelon.

>

>

> * My maternal grandmother died with Alzheimer's.

> * My paternal grandmother exhibits all of the main LBD

symptoms quite

> strongly, but her doctors are disinterested and will only say

> " dementia " . It took me 1 hour of Internet research to realize

that my

> paternal grandmother has LBD and that they've made her irreversibly

> worse with certain meds. We're determined that this won't happen

to my

> mother.

>

> I've been reading everything you all have been sharing over the

past 10

> days and I very much appreciate your willingness to do so.

>

> ~Mae

>

>

>

>

>

>

[Guest guest]

mae,

welcome to our family and i am sorry i am a little late but i havent been able

to do my emails for a few days. after reading many have already told you quite

a bit, so i wont add very much,

first of all welcome to our family, although i am sorry you had to look us up.

we are here for you and there is almost always someone responding to emails 24

hours a day as our membership is scattered not only over north america but the

world too, italy , australia, newqzealand just to name a few. feel free to vent,

cry, scream, share funniers, ask questions, laugh whatever you need to do to

help you on the rollercoaster ride of lbd.

HOWEVER, there is one rule that you should learn first,

in order to be a good caregiver, you have to take good care of yourself first.

because i you dont, it will catch up iwht you , then who is going to take care

of your lo ( loved one(

if you read back thru the posts, i was hosp last year for 5 weeks before my

father died for a double kidney infectoon, intestinal blockage and then a staff

infection. i have health issues anyway but overrode my little warning devices

and also jacqui from puget sound had the awful flesh eating baceteria that she

was very very ill for months. so take it from those of us thickheaded ones that

learned it the hard way,

hugs, sharon m

---- chocmae wrote:

Hello, first post here. Here are some notes about our situation:

* My 68-year-old mother was diagnosed with LBD on 10/11. She has

been having obvious symptoms for about 3 years, was tested by

psychologist 2 years ago, sent back to 'family doctor' for a

prescription for Effexor for depression. Ball was then dropped. (argh.

Who wouldn't feel depressed with these horrible symptoms?!)

* Found new neurologist & new psychologist 3 weeks ago which resulted

in [hopefully] a proper diagnosis.

* As soon as my father told me dx over the phone, I rushed to Google

" LBD " . Hadn't heard of it before, but now feel like some kind of

expert.

* We had follow-up with the neurologist this week and he gave her

Exelon.

* My maternal grandmother died with Alzheimer's.

* My paternal grandmother exhibits all of the main LBD symptoms quite

strongly, but her doctors are disinterested and will only say

" dementia " . It took me 1 hour of Internet research to realize that my

paternal grandmother has LBD and that they've made her irreversibly

worse with certain meds. We're determined that this won't happen to my

mother.

I've been reading everything you all have been sharing over the past 10

days and I very much appreciate your willingness to do so.

~Mae