Re: [Fwd: ander 5mos. w/ charge!

[Guest guest]

Holly and -

Welcome to the list! Glad that you have found us! has the severe

gagging despite G-Tube and Fundo (Nissen); we have been on continuous feeds by

pump for almost a month now and it has not stopped the gagging, but it has

helped. Is fed only by G-Tube right now? has a heart surgery

coming up too - we can hang in there together!

Amy - Mom to (2) and (9 mos - CHaRgE)

Atlanta, GA

[Guest guest]

Amy Thank you for replying back. My son is only on bolus feeds w/ his

G

tube every 3 1/2 -4 hours @ 83cc. Boy it is tiring. I've asked about continous

feeding but the Surgeon said he wants to see how he does w/ bolus feeds right

now. My son only weighs 8 lbs. and the nurse that comes to my house said that

he

should gain about 2-3 oz. a day. I go back to our Pediatricin on Friday to ask

about calorie intake he is on enfamil Lactofree 20cal. Your daughter is having

heart surgery , What is wrong w/ her heart? How much does she weigh? We go back

to the Cardio doctor Friday also to find out when they are going to check the

pressure in his heart and lungs. Then will find out when his surgery will be.

Hopefully not any time soon.

thanks Holly ( 5mos w/ charge), 4, Bill( husband)

St. Cloud, FL

Cae@... wrote:

> From: Cae@...

>

> Holly and -

>

> Welcome to the list! Glad that you have found us! has the severe

> gagging despite G-Tube and Fundo (Nissen); we have been on continuous feeds by

> pump for almost a month now and it has not stopped the gagging, but it has

> helped. Is fed only by G-Tube right now? has a heart surgery

> coming up too - we can hang in there together!

>

> Amy - Mom to (2) and (9 mos - CHaRgE)

> Atlanta, GA

>

> ------------------------------------------------------------------------

>

[Guest guest]

Holly,

WELCOME !!!

8 pounds at 5 months is about what weighed.. we

had to wait til he was that or over to have his first cleft

surgery.. Geez what I would have given for him to gain

even an ounce a day. He's still little, 6.5 yo and is 41

inches tall and only weighs 36 pounds.. One thing I

always joke about with the slow growth is our kids are

the only kids I know of that actually wear out clothes and

shoes before they outgrow them.

hang in there.. we are here for you and I promise.. it will

get easier..

Casey

charge@...

minnow@...

Mom to Dawn 19, Ken 8 ADHD, and 6 CHARGE.

Cobb California

ICQ UIN# 728514

ICQ Pager http://wwp.mirabilis.com/728514

[Guest guest]

Holly,

Hi there, just reading your message to Amy regarding 's

feeding. I think the nurse might be mistaken, 2-3 oz a day is a lot.

Our daughter Kennedy's pediatrician is happy with about 20 grams a day

for a weight gain - which is a little less than 1 oz <30 grams = 1

ounce>. I'd check with his pediatrician about how much he should gain.

Good luck on Friday with the Cardiologist, Kennedy has already had her

open heart surgery <at nine days old>, so we are hoping we are over that

one for good!

By the way, Welcome to the list! Glad you found us and I hope you find

it useful, I know we sure did and do!

Mom to Kennedy <almost 8 month old CHARGEr>, 9, 7, and wife to

Graeme.

--

Graeme & Weir

gweir@...

http://www.geocities.com/SunsetStrip/Palms/5716