More Secretin info: booklet available FWD

[Guest guest]

A little more on this subject. I know a teen in Portland who has received

this treatment and I will try to find out how he has reacted. -

> Beck is the mother, yes parent, who first suggested trying

>secretin. (See what we parents can do?????) She just joined the big autism

>list and since some listmates here have expressed and interest, here is what

>she wrote:

>

> Beck

>

>My name is Beck and I am a newcomer to your list. Some of you

>already know me or have heard from me on other lists, but this is the first

>time I am posting on this list. I've noticed that several of you have been

>raising questions about secretin, and are interested in where you can get

>more information.

>

>My husband and I have been flooded with phone calls over the past few

>months regarding secretin. A few weeks ago, we decided to gather all of the

>research and information we thought was most important and compile it in a

>form that was friendly to other parents and useful for physicians . Our

> " little " effort quickly turned into a rather major project, but I think the

>end result was well worth our time. The booklet is 112 pages of information

>on secretin, which includes what it is, what it does, what we know relative

>to autism and related disorders, testimonials from other parents and doctors

>(names omitted) , FDA regulations regarding its use (which allows for

> " off-label " treatment), and roughly 50 pages of medical abstracts and

>information to assist you and your doctor in determining whether this is an

>option you want to pursue with your child.

>

>I want to emphasize that we are NOT profiting from the sale of the booklet..

>We simply want to make the RIGHT information available to those who may be

>interested. It will be available from The Autism Research Institute within

>the next week. The cost will be $12.00. You will be able to find out how

>to get this information by visiting their websites at either " secretin.com " or

> " autism.com/ari " . Numerous news organizations are running pieces on the

>topic of secretin next week, and you will see a glimpse of the booklet then.

>We plan to update the information and testimonials on the website as both are

>reported to us.

>

>I sincerely hope that you will find this effort helpful to you, and that it

>will

>encourage more physicians to become familiar with secretin.

>Moreover, I am hopeful that other children will respond as our son has

>responded to secretin treatment.. It has changed HIS life, and OURS in the

>process.

>