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Dena, I am so sorry about your Aunt's passing. I know you are tired, and the

biggest part of that is the stress of loosing a LO. That had to have been

hard on you to be there and watch her.

It was hard for me to watch my MIL. I moistened her lips with glycerin, and

she rubbed them together, so I knew she appreciated it. That just about tore

me up. She was more aware of what was going on than I had previously

understood. She labored long and hard to breath, and finally after several

hours the

labor was gone, and she, too, went to sleep. Had it been my mother, it would

have just about killed me.

So any of you going through loosing a close loved one I do understand. I

lost my daddy and that was the hardest loss I have ever endured. I was sick for

three years.

Yes, I have been there and then some, so I understand, and I am more sorry

than you can imagine. The pain is horrendous. Stay with the group and gain

understand and knowledge of what and why things are going on. LBD Hates all of

us. I love Donna's words. This knowledge helps us endure the hard times.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

In a message dated 10/21/2006 3:02:48 PM Central Daylight Time,

d_j_leavitt@... writes:

Hi Everyone

I just wanted to let that my Aunt Louise passed away

last night at 8:00pm. I picked up her daughter, my

cousin, from the airport and we headed straight to the

hospital. They removed the breathing tube about 6:00pm

and a pastor from my church was there and we all held

hands and prayed. I guess earlier a priest was there

and gave last rites too. She did struggle for a while

and I asked the nurse to give her more of whatever.

Then fifteen or so minutes later she went to sleep.

She did struggle from 20-30 minutes and I really hated

that. Once she was asleep that was it. The next shift

administered a 3rd dose of Morphine and Ativan and

within 15 minutes she was gone. I am sure that helped

everything along. Unfortunately my Uncle and cousin

had gone to dinner and just my husband, myself and my

Aunts sister Ruth were the only ones there. He was so

upset at himself for going to dinner, but I think he

has forgiven himself a little today. Their son was in

heavy traffic from San Diego and did not arrive until

1 1/2 hours after she passed. I have had a sleepless

night and I am really tired, so if my writing is a

mess, please for give me. They are off making

arrangements now. They hope the service will be on

Wed.

Thank you to all who have prayed for our family. It

was a tough 4 weeks. We are all so blessed to have it

over. Especially my Aunt Louise.

Dena

Mother (84) Her birthday is today. End stages LBD

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Dena

My condolences to you and your family on the passing of your Aunt. My

prayers to you and your family.

Happy Birthday to your Mom.

God Bless you all

Jacqui in So Florida

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Dear Dena,

My prayers are with you and your family at this time. I hope your

dear Uncle will forgive himself...I believe it was meant to be like

that, that everything happens for a reason. I just said a very extra

prayer for Uncle. Please take care of yourself Dena, you are always

there for everyone and it takes a lot out of a person.

God bless!

Carol Incognito

>

> Hi Everyone

>

> I just wanted to let that my Aunt Louise passed away

> last night at 8:00pm. I picked up her daughter, my

> cousin, from the airport and we headed straight to the

> hospital. They removed the breathing tube about 6:00pm

> and a pastor from my church was there and we all held

> hands and prayed. I guess earlier a priest was there

> and gave last rites too. She did struggle for a while

> and I asked the nurse to give her more of whatever.

> Then fifteen or so minutes later she went to sleep.

> She did struggle from 20-30 minutes and I really hated

> that. Once she was asleep that was it. The next shift

> administered a 3rd dose of Morphine and Ativan and

> within 15 minutes she was gone. I am sure that helped

> everything along. Unfortunately my Uncle and cousin

> had gone to dinner and just my husband, myself and my

> Aunts sister Ruth were the only ones there. He was so

> upset at himself for going to dinner, but I think he

> has forgiven himself a little today. Their son was in

> heavy traffic from San Diego and did not arrive until

> 1 1/2 hours after she passed. I have had a sleepless

> night and I am really tired, so if my writing is a

> mess, please for give me. They are off making

> arrangements now. They hope the service will be on

> Wed.

>

> Thank you to all who have prayed for our family. It

> was a tough 4 weeks. We are all so blessed to have it

> over. Especially my Aunt Louise.

>

> Dena

> Mother (84) Her birthday is today. End stages LBD

>

> __________________________________________________

>

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Dear Dena-

I am so sorry that your Aunt Louise passed, but at the same time I am glad her

struggle is over. It must have been very difficult for you and the family,

since it went on for so long.

Also wishing your Mom a Happy Birthday and saying prayers for her too.

Hugs,

Gerry

Dena's Aunt Off Topic

Hi Everyone

I just wanted to let that my Aunt Louise passed away

last night at 8:00pm. I picked up her daughter, my

cousin, from the airport and we headed straight to the

hospital. They removed the breathing tube about 6:00pm

and a pastor from my church was there and we all held

hands and prayed. I guess earlier a priest was there

and gave last rites too. She did struggle for a while

and I asked the nurse to give her more of whatever.

Then fifteen or so minutes later she went to sleep.

She did struggle from 20-30 minutes and I really hated

that. Once she was asleep that was it. The next shift

administered a 3rd dose of Morphine and Ativan and

within 15 minutes she was gone. I am sure that helped

everything along. Unfortunately my Uncle and cousin

had gone to dinner and just my husband, myself and my

Aunts sister Ruth were the only ones there. He was so

upset at himself for going to dinner, but I think he

has forgiven himself a little today. Their son was in

heavy traffic from San Diego and did not arrive until

1 1/2 hours after she passed. I have had a sleepless

night and I am really tired, so if my writing is a

mess, please for give me. They are off making

arrangements now. They hope the service will be on

Wed.

Thank you to all who have prayed for our family. It

was a tough 4 weeks. We are all so blessed to have it

over. Especially my Aunt Louise.

Dena

Mother (84) Her birthday is today. End stages LBD

__________________________________________________

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Dear Dena ......Sorry to hear about your aunt , my sympathy's

goes out to you and your family , Eileen B

-- Dena's Aunt Off Topic

Hi Everyone

I just wanted to let that my Aunt Louise passed away

last night at 8:00pm. I picked up her daughter, my

cousin, from the airport and we headed straight to the

hospital. They removed the breathing tube about 6:00pm

and a pastor from my church was there and we all held

hands and prayed. I guess earlier a priest was there

and gave last rites too. She did struggle for a while

and I asked the nurse to give her more of whatever.

Then fifteen or so minutes later she went to sleep.

She did struggle from 20-30 minutes and I really hated

that. Once she was asleep that was it. The next shift

administered a 3rd dose of Morphine and Ativan and

within 15 minutes she was gone. I am sure that helped

everything along. Unfortunately my Uncle and cousin

had gone to dinner and just my husband, myself and my

Aunts sister Ruth were the only ones there. He was so

upset at himself for going to dinner, but I think he

has forgiven himself a little today. Their son was in

heavy traffic from San Diego and did not arrive until

1 1/2 hours after she passed. I have had a sleepless

night and I am really tired, so if my writing is a

mess, please for give me. They are off making

arrangements now. They hope the service will be on

Wed.

Thank you to all who have prayed for our family. It

was a tough 4 weeks. We are all so blessed to have it

over. Especially my Aunt Louise.

Dena

Mother (84) Her birthday is today. End stages LBD

__________________________________________________

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Oh Dear Dena-

Please know your whole family has been in my

thoughts and prayers for days. I shall send up

more prayers as your family faces the days and weeks

to come. Please accept our deepest condolences.

And a very Happy Birthday to your mom.

Wow, 84 - makes me smile!!

Love and Hugs-

Sandie and

-- Dena's Aunt Off Topic

Hi Everyone

I just wanted to let that my Aunt Louise passed away

last night at 8:00pm. I picked up her daughter, my

cousin, from the airport and we headed straight to the

hospital. They removed the breathing tube about 6:00pm

and a pastor from my church was there and we all held

hands and prayed. I guess earlier a priest was there

and gave last rites too. She did struggle for a while

and I asked the nurse to give her more of whatever.

Then fifteen or so minutes later she went to sleep.

She did struggle from 20-30 minutes and I really hated

that. Once she was asleep that was it. The next shift

administered a 3rd dose of Morphine and Ativan and

within 15 minutes she was gone. I am sure that helped

everything along. Unfortunately my Uncle and cousin

had gone to dinner and just my husband, myself and my

Aunts sister Ruth were the only ones there. He was so

upset at himself for going to dinner, but I think he

has forgiven himself a little today. Their son was in

heavy traffic from San Diego and did not arrive until

1 1/2 hours after she passed. I have had a sleepless

night and I am really tired, so if my writing is a

mess, please for give me. They are off making

arrangements now. They hope the service will be on

Wed.

Thank you to all who have prayed for our family. It

was a tough 4 weeks. We are all so blessed to have it

over. Especially my Aunt Louise.

Dena

Mother (84) Her birthday is today. End stages LBD

__________________________________________________

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Dena,

Please accept my sympathies on the passing of your aunt. I know that you all

must be very tried and worn out. Its alway so hard to watch a LO suffer but now

she is at peace. I will lift your family up during this time of sadness.

Please try and get some rest today as I know the coming days will be busy with

people visiting and the other plans that must be made.

A gentle hug for you

Vallerie, in OH

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dena

i am sending you and your family strenght and hugs to go thru this time of such

mixed emotions. i am sure that your aunt is at peace now, painfree, and happily

being a guardian angel to her family whom she loved and loved her dearly. i

feel confident that all of our family members are sharing ice cream and funny

caregiver stories to each other while being our guardian angels. hugs to you ,

and please tell your uncle and cousin to not berate themselves for not being

there, i felt that way too when my dads immenint death was miscommunicated to me

by the nurse adn we werent there with daddy i was told by many wonderful angels

in this group that many times our loved ones will wait till we arent there,

becuase if we were there our lo would want to hang on even tho He was calling

them to come home. with that thought i was able to come to peac ewith me not

being there, well 99% of the time, sometimes the pang of guilt still lurkes.

but she had people there that loved her and it was her time to go home.

hugs and more hugs, sharon m

---- Dena LEAVITT wrote:

Hi Everyone

I just wanted to let that my Aunt Louise passed away

last night at 8:00pm. I picked up her daughter, my

cousin, from the airport and we headed straight to the

hospital. They removed the breathing tube about 6:00pm

and a pastor from my church was there and we all held

hands and prayed. I guess earlier a priest was there

and gave last rites too. She did struggle for a while

and I asked the nurse to give her more of whatever.

Then fifteen or so minutes later she went to sleep.

She did struggle from 20-30 minutes and I really hated

that. Once she was asleep that was it. The next shift

administered a 3rd dose of Morphine and Ativan and

within 15 minutes she was gone. I am sure that helped

everything along. Unfortunately my Uncle and cousin

had gone to dinner and just my husband, myself and my

Aunts sister Ruth were the only ones there. He was so

upset at himself for going to dinner, but I think he

has forgiven himself a little today. Their son was in

heavy traffic from San Diego and did not arrive until

1 1/2 hours after she passed. I have had a sleepless

night and I am really tired, so if my writing is a

mess, please for give me. They are off making

arrangements now. They hope the service will be on

Wed.

Thank you to all who have prayed for our family. It

was a tough 4 weeks. We are all so blessed to have it

over. Especially my Aunt Louise.

Dena

Mother (84) Her birthday is today. End stages LBD

__________________________________________________

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Dena:

Our thoughts and prayers are with you as you go thru

this trying time. But, you know she is in a better

place now, free of pain and struggling, and you can't

feel bad about that. It is good that you have been

there for those in the family that weren't able to be

present.

I have never been with anyone at the time of death,

except my grandson and wife lost a full-term baby a

few years ago right after birth. They let her and us

hold him, and he was so perfectly formed and a

beautiful baby. I just could hardly stand it when

they had him cremated, so that is one of the reasons I

do not ever want to have anyone in my family cremated.

I am sure that I will be facing the end-of- life

situation in the next several months if my husband

continues to decline as much as he has in the last few

weeks, and I'm not sure I will be able to handle it.

--- Dena LEAVITT wrote:

> Hi Everyone

>

> I just wanted to let that my Aunt Louise passed away

> last night at 8:00pm. I picked up her daughter, my

> cousin, from the airport and we headed straight to

> the

> hospital. They removed the breathing tube about

> 6:00pm

> and a pastor from my church was there and we all

> held

> hands and prayed. I guess earlier a priest was there

> and gave last rites too. She did struggle for a

> while

> and I asked the nurse to give her more of whatever.

> Then fifteen or so minutes later she went to sleep.

> She did struggle from 20-30 minutes and I really

> hated

> that. Once she was asleep that was it. The next

> shift

> administered a 3rd dose of Morphine and Ativan and

> within 15 minutes she was gone. I am sure that

> helped

> everything along. Unfortunately my Uncle and cousin

> had gone to dinner and just my husband, myself and

> my

> Aunts sister Ruth were the only ones there. He was

> so

> upset at himself for going to dinner, but I think he

> has forgiven himself a little today. Their son was

> in

> heavy traffic from San Diego and did not arrive

> until

> 1 1/2 hours after she passed. I have had a sleepless

> night and I am really tired, so if my writing is a

> mess, please for give me. They are off making

> arrangements now. They hope the service will be on

> Wed.

>

> Thank you to all who have prayed for our family. It

> was a tough 4 weeks. We are all so blessed to have

> it

> over. Especially my Aunt Louise.

>

> Dena

> Mother (84) Her birthday is today. End stages LBD

>

> __________________________________________________

>

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Dena,

Condolences to you and your Uncles family. Hope everyone gets a bit of rest

very soon. It sure is hard to do all the traveling they must do to be there for

their Dad. You are a good niece.

Sending good thoughts and lots to hugs to everyone.

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Dena's Aunt Off Topic

Hi Everyone

I just wanted to let that my Aunt Louise passed away

last night at 8:00pm. I picked up her daughter, my

cousin, from the airport and we headed straight to the

hospital. They removed the breathing tube about 6:00pm

and a pastor from my church was there and we all held

hands and prayed. I guess earlier a priest was there

and gave last rites too. She did struggle for a while

and I asked the nurse to give her more of whatever.

Then fifteen or so minutes later she went to sleep.

She did struggle from 20-30 minutes and I really hated

that. Once she was asleep that was it. The next shift

administered a 3rd dose of Morphine and Ativan and

within 15 minutes she was gone. I am sure that helped

everything along. Unfortunately my Uncle and cousin

had gone to dinner and just my husband, myself and my

Aunts sister Ruth were the only ones there. He was so

upset at himself for going to dinner, but I think he

has forgiven himself a little today. Their son was in

heavy traffic from San Diego and did not arrive until

1 1/2 hours after she passed. I have had a sleepless

night and I am really tired, so if my writing is a

mess, please for give me. They are off making

arrangements now. They hope the service will be on

Wed.

Thank you to all who have prayed for our family. It

was a tough 4 weeks. We are all so blessed to have it

over. Especially my Aunt Louise.

Dena

Mother (84) Her birthday is today. End stages LBD

__________________________________________________

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Dear Dena,

My love and prayers are with you and your family at this time. She

waited until he was at dinner. That seems to be how it happens when

LO's have a hard time releasing from the LO's left behind. She needed

to go. Bless her.

Rest up for the weeks to come and call me if you need anything.

Much more love, prayers and wonderful Peace to you,

Stevie

**Caregiver for Mr. B since dx with Parkinson's in 1993, dx with LBD

in 2003, passed away on July 6, 2006 in my home.** His birthday is on

the 25th of October. He would have been 83.

* * * * *

>

> Hi Everyone

>

> I just wanted to let that my Aunt Louise passed away

> last night at 8:00pm. I picked up her daughter, my

> cousin, from the airport and we headed straight to the

> hospital. They removed the breathing tube about 6:00pm

> and a pastor from my church was there and we all held

> hands and prayed. I guess earlier a priest was there

> and gave last rites too. She did struggle for a while

> and I asked the nurse to give her more of whatever.

> Then fifteen or so minutes later she went to sleep.

> She did struggle from 20-30 minutes and I really hated

> that. Once she was asleep that was it. The next shift

> administered a 3rd dose of Morphine and Ativan and

> within 15 minutes she was gone. I am sure that helped

> everything along. Unfortunately my Uncle and cousin

> had gone to dinner and just my husband, myself and my

> Aunts sister Ruth were the only ones there. He was so

> upset at himself for going to dinner, but I think he

> has forgiven himself a little today. Their son was in

> heavy traffic from San Diego and did not arrive until

> 1 1/2 hours after she passed. I have had a sleepless

> night and I am really tired, so if my writing is a

> mess, please for give me. They are off making

> arrangements now. They hope the service will be on

> Wed.

>

> Thank you to all who have prayed for our family. It

> was a tough 4 weeks. We are all so blessed to have it

> over. Especially my Aunt Louise.

>

> Dena

> Mother (84) Her birthday is today. End stages LBD

>

> __________________________________________________

>

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Hi June

I don't think any of us thinks they can handle it

until they are deep into the situation and then

somehow God just seems to step in and there seems to

be a peace or acceptance. My Aunt's sister was really

not sure she could do it either. I asked her to get on

the other side of her sister and hold her hand and she

said I don't know if I can and I just told her

everything would be alright and that she could do it

this and she did. It is the last thing you can do for

someone. So June if or when your husbands time comes,

you may be there or you may not. Only God knows for

sure. So don't dwell on it now. Just enjoy all the

days that you have together and know that when the

time comes you will be able to handle whatever comes

your way. Live one day at a time and try to love it

all.

I was so sorry to read about your loss of a great

grand baby. I hope they are doing well now.

I will keep you in my thoughts and prayers also, June

Dena

Mother (84) End stages of LBD and very stable there.

--- June Christensen

wrote:

> Dena:

>

> Our thoughts and prayers are with you as you go thru

> this trying time. But, you know she is in a better

> place now, free of pain and struggling, and you

> can't

> feel bad about that. It is good that you have been

> there for those in the family that weren't able to

> be

> present.

>

> I have never been with anyone at the time of death,

> except my grandson and wife lost a full-term baby a

> few years ago right after birth. They let her and

> us

> hold him, and he was so perfectly formed and a

> beautiful baby. I just could hardly stand it when

> they had him cremated, so that is one of the reasons

> I

> do not ever want to have anyone in my family

> cremated.

> I am sure that I will be facing the end-of- life

> situation in the next several months if my husband

> continues to decline as much as he has in the last

> few

> weeks, and I'm not sure I will be able to handle it.

>

> --- Dena LEAVITT wrote:

>

> > Hi Everyone

> >

> > I just wanted to let that my Aunt Louise passed

> away

> > last night at 8:00pm. I picked up her daughter, my

> > cousin, from the airport and we headed straight to

> > the

> > hospital. They removed the breathing tube about

> > 6:00pm

> > and a pastor from my church was there and we all

> > held

> > hands and prayed. I guess earlier a priest was

> there

> > and gave last rites too. She did struggle for a

> > while

> > and I asked the nurse to give her more of

> whatever.

> > Then fifteen or so minutes later she went to

> sleep.

> > She did struggle from 20-30 minutes and I really

> > hated

> > that. Once she was asleep that was it. The next

> > shift

> > administered a 3rd dose of Morphine and Ativan and

> > within 15 minutes she was gone. I am sure that

> > helped

> > everything along. Unfortunately my Uncle and

> cousin

> > had gone to dinner and just my husband, myself and

> > my

> > Aunts sister Ruth were the only ones there. He was

> > so

> > upset at himself for going to dinner, but I think

> he

> > has forgiven himself a little today. Their son was

> > in

> > heavy traffic from San Diego and did not arrive

> > until

> > 1 1/2 hours after she passed. I have had a

> sleepless

> > night and I am really tired, so if my writing is a

> > mess, please for give me. They are off making

> > arrangements now. They hope the service will be on

> > Wed.

> >

> > Thank you to all who have prayed for our family.

> It

> > was a tough 4 weeks. We are all so blessed to have

> > it

> > over. Especially my Aunt Louise.

> >

> > Dena

> > Mother (84) Her birthday is today. End stages LBD

> >

> > __________________________________________________

> >

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Stevie,

Hope you are doing ok. Sending a big wish sky ward for a Happy Bithday to Mr.

B. He is probably eating ice cream with those others.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Dena's Aunt Off Topic

Dear Dena,

My love and prayers are with you and your family at this time. She

waited until he was at dinner. That seems to be how it happens when

LO's have a hard time releasing from the LO's left behind. She needed

to go. Bless her.

Rest up for the weeks to come and call me if you need anything.

Much more love, prayers and wonderful Peace to you,

Stevie

**Caregiver for Mr. B since dx with Parkinson's in 1993, dx with LBD

in 2003, passed away on July 6, 2006 in my home.** His birthday is on

the 25th of October. He would have been 83.

* * * * *

>

> Hi Everyone

>

> I just wanted to let that my Aunt Louise passed away

> last night at 8:00pm. I picked up her daughter, my

> cousin, from the airport and we headed straight to the

> hospital. They removed the breathing tube about 6:00pm

> and a pastor from my church was there and we all held

> hands and prayed. I guess earlier a priest was there

> and gave last rites too. She did struggle for a while

> and I asked the nurse to give her more of whatever.

> Then fifteen or so minutes later she went to sleep.

> She did struggle from 20-30 minutes and I really hated

> that. Once she was asleep that was it. The next shift

> administered a 3rd dose of Morphine and Ativan and

> within 15 minutes she was gone. I am sure that helped

> everything along. Unfortunately my Uncle and cousin

> had gone to dinner and just my husband, myself and my

> Aunts sister Ruth were the only ones there. He was so

> upset at himself for going to dinner, but I think he

> has forgiven himself a little today. Their son was in

> heavy traffic from San Diego and did not arrive until

> 1 1/2 hours after she passed. I have had a sleepless

> night and I am really tired, so if my writing is a

> mess, please for give me. They are off making

> arrangements now. They hope the service will be on

> Wed.

>

> Thank you to all who have prayed for our family. It

> was a tough 4 weeks. We are all so blessed to have it

> over. Especially my Aunt Louise.

>

> Dena

> Mother (84) Her birthday is today. End stages LBD

>

> __________________________________________________

>

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Wishing Mr. B a " Heavenly Happy Birthday " In memory of Mr. B....Hugs, Jan

Donna Mido wrote: Stevie,

Hope you are doing ok. Sending a big wish sky ward for a Happy Bithday to Mr. B.

He is probably eating ice cream with those others.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Dena's Aunt Off Topic

Dear Dena,

My love and prayers are with you and your family at this time. She

waited until he was at dinner. That seems to be how it happens when

LO's have a hard time releasing from the LO's left behind. She needed

to go. Bless her.

Rest up for the weeks to come and call me if you need anything.

Much more love, prayers and wonderful Peace to you,

Stevie

**Caregiver for Mr. B since dx with Parkinson's in 1993, dx with LBD

in 2003, passed away on July 6, 2006 in my home.** His birthday is on

the 25th of October. He would have been 83.

* * * * *

>

> Hi Everyone

>

> I just wanted to let that my Aunt Louise passed away

> last night at 8:00pm. I picked up her daughter, my

> cousin, from the airport and we headed straight to the

> hospital. They removed the breathing tube about 6:00pm

> and a pastor from my church was there and we all held

> hands and prayed. I guess earlier a priest was there

> and gave last rites too. She did struggle for a while

> and I asked the nurse to give her more of whatever.

> Then fifteen or so minutes later she went to sleep.

> She did struggle from 20-30 minutes and I really hated

> that. Once she was asleep that was it. The next shift

> administered a 3rd dose of Morphine and Ativan and

> within 15 minutes she was gone. I am sure that helped

> everything along. Unfortunately my Uncle and cousin

> had gone to dinner and just my husband, myself and my

> Aunts sister Ruth were the only ones there. He was so

> upset at himself for going to dinner, but I think he

> has forgiven himself a little today. Their son was in

> heavy traffic from San Diego and did not arrive until

> 1 1/2 hours after she passed. I have had a sleepless

> night and I am really tired, so if my writing is a

> mess, please for give me. They are off making

> arrangements now. They hope the service will be on

> Wed.

>

> Thank you to all who have prayed for our family. It

> was a tough 4 weeks. We are all so blessed to have it

> over. Especially my Aunt Louise.

>

> Dena

> Mother (84) Her birthday is today. End stages LBD

>

> __________________________________________________

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